Interested in speaking to people have had the prostectomy and post op Hormone therapy and radiation

My heart sank reading your note…what was your Gleason score before your prostectomy? I hope the best for your treatment?

@phooverjr

As Old Salt stated, your case is not uncommon at all. In fact, there are many of us here who have experienced PCa recurrence.

I had a radical prostatectomy, and my first PSA test was 0.05. My PSA grew to 0.11 in a year, and I underwent hormone (Lupron and Casodex) treatments for 6 months, along with IMRT radiation treatments for 38 sessions and a total of 68 Grays on the prostate bed. At the end of the treatments, my PSA was undetectable.

After 30 months of undetectable PSA (every 3 months), my PSA started rising again, and over the next 3 years, it rose to 0.98, at which time I had a PET scan, and PCa was found in my left pubis bone. I underwent hormone (Lupron and Zytiga and Prednisone) treatments for 2 years, along with SBRT radiation treatments for 3 sessions and 30 Grays on the pubis bone. At the end of the treatments, my PSA was undetectable.

At 22 months after the 2 year hormone treatments ended, my 3 month PSA tests have remained undetectable so far, the most recent test result being last Wednesday. There is no question in my mind that PCa will eventually rear its ugly head again in some part of my body, and I will consult with my Oncologist regarding the best and most effective available treatments at that time.

As you can see, for many of us, PCa is in fact a journey, and not a one-and-done occurrence. Managing quality of life along this journey become a primary guiding factor as the years go by. I wish you the best of outcomes on your PCa journey.