How long have you survived

Options
1…111213141517»

Comments

  • Dr_ROZ
    Dr_ROZ Member Posts: 5 Member
    #322
    Options

    47 years since total parotidectomy due to a Mucoepidermoid Carcinoma in the left Parotid Gland followed up with External Beam Radiation Therapy 7,000 RAD max [70 Gray] three times a week for 6 weeks. The concern of osteoradionecrosis has been present the whole time, but so far has not been an issue. My story is not over as a recent MRI for another reason identified a mass on my right parotid. A fine needle biopsy classified as a Benign Pleomorphic Adenoma.  Surgery is scheduled with the hope it the pathology remains classified as a non-cancerous tumor. 

  • wbcgaruss
    wbcgaruss Member Posts: 2,294 Member
    #323
    Options

    Hello Dr. Roz, and welcome to the CSN H&N discussion forum.

    I would recommend you check out the Superthread at the top of the page there are loads of information in there with links and you will find it helpful.


    I believe you are the only person on here and probably almost any forum that would go back that far, 47 years ago for cancer treatment. You had the hardcore radiation in those days. I am sorry all these years you have been cancer-free and now some kind of growth has shown up. Hopefully, it is as they say it is benign and can be easily excised. Praying for a smooth operation with no complications. And you mentioned osteoradionecrosis, I believe that is all head and neck patients' worst fear. Dr. Roz are you a doctor? If so what kind of doctor are you? Just wondering and good to have you on the forum.

    Our Motto On Here is NEGU (Never Ever Give Up)

    Take Care, God Bless

    Russ

    th-883708666.jpg


  • Dr_ROZ
    Dr_ROZ Member Posts: 5 Member
    #324
    Options

    My doctoral degree is in education, so I help the mind not the body.

  • wbcgaruss
    wbcgaruss Member Posts: 2,294 Member
    #325
    Options

    Very good Roz, with all the stress and emotions involved in these cancer situations we can always use a little mind help.

    Take care, God Bless

    Russ

  • Dr_ROZ
    Dr_ROZ Member Posts: 5 Member
    #326
    Options

    Good news - My surgery was last week and the lab analysis confirms the mass in my right parotid was a Benign Pleomorphic Adenoma. I am happy it is out of my body so it does not grow any bigger (Graded as a "T2 hyperintense mass"), or turn malignant at a later date. The Surgeon was great and I have very little nerve function loss at the one-week mark. Much better than the one done 48 years ago this month on the parotid on the left side which was bigger and malignant.

  • wbcgaruss
    wbcgaruss Member Posts: 2,294 Member
    #327
    Options

    Well, Dr_ROZ, this is good news. It is nice to have good news here on the forum. Not only was your tumor benign but was removed by surgery successfully with very little nerve function loss. You must have had a very good surgeon. Hopefully, this is the last time you have to go through any tumors or surgery, who needs it anyway. I am so glad that this turned out so well for you.

    I celebrate with you.....

    Wishing You The Best

    Take Care, God Bless

    Russ

    cheers-happily.gif


    1001.gif


    firework-2020.gif


  • Mavish
    Mavish Member Posts: 84 Member
    #328
    Options

    I am happy for you. Thank you for sharing good news. God bless

  • BryanB
    BryanB Member Posts: 2 Member
    #329
    Options

    4 years as of last week. HPV+SCC base of tongue and very large tumor in right neck. 35 rads, 3 large cesplatin doses followed by radical neck dissection. I appreciate life more every day 😁.

  • wbcgaruss
    wbcgaruss Member Posts: 2,294 Member
    #330
    Options

    BryanB, welcome, and so glad you hit the 4-year mark, that is surely a good feeling the farther you get away from treatment. You will soon be at the 5-year mark which is supposed to be a good thing because I think they feel the odds are pretty slim for a recurrence if you make it that far.

    Wishing You The Best

    Take Care, God Bless

    Wishing You The Best celebrate with you

    468840471ba-super-colorful-smiley-face-fireworks-aimted-gif-pic.gif

    Russ

  • rush1958
    rush1958 Member Posts: 223 Member
    #331
    Options

    SCC base of tongue January 12, 2010. Stage III. I'm more than 14 years out and still NED. After 47 lymph nodes removed, 35 radiation sessions, 3 rounds cisplatin - I'm still just onery as ever.

  • wbcgaruss
    wbcgaruss Member Posts: 2,294 Member
    #332
    Options

    Congratulations Rush, so very glad you are doing so well.

    The fact that you have accrued 14 years free of cancer is quite a feat and instills great hope for the rest of us.

    Wishing You The Best

    Take Care, God Bless

    Russ

  • MrsBD
    MrsBD Member Posts: 617 Member
    #333
    Options
    https://csn.cancer.org/discussion/200835/how-long-have-you-survived

  • MrsBD
    MrsBD Member Posts: 617 Member
    #334
    Options

    Ten Years

    Post SCC Base of Tongue with Neck Lymph Nodes Involved

    33 rounds of radiation and 8 weeks of Cetuximab. It took several years and therapy for my swallowing function to return to almost normal, but it's good now. My advice is to stay hydrated. It will help you feel better now and protect your kidneys for the future.

Discussion Boards