Looking for a top notch salvage surgeon

Steve1961
Steve1961 Member Posts: 618 Member
edited July 2023 in Prostate Cancer #1

I’ll be proactive here. I’m only 62 cancer is back after almost 5 years after radiation. The PSMA scan came back stating that the tumor is still in the prostrate.psa 1.7 I think I may be a candidate for salvage surgery. I know it’s not done a lot and I know it’s risky, but what do I do breakytherapy therapy again didn’t work the first time why would it work this time cryotherapy maybe but I’m not too confident there either so I’m just wondering if anybody might know anyone that had salvage surgery done unfortunately the doctor I’m seeing is getting up there an age yes he’s an expert but he had two bad reviews lately one of them said his daughter saw his hand shaking so now I’m not too confident with this doctor he’s got to be probably in his mid-70s if not at 75 or 76 years old ..thanks

Comments

  • Clevelandguy
    Clevelandguy Member Posts: 1,180 Member
    #2

    Hi,

    I know of a good surgeon in his thirties-fourties in the Cleveland, Ohio area if thats not too far. Dr. Lee Ponsky at University Hospitals Siedman cancer center. He did my surgery back in 2014, my Internist did not recommend anyone but him.

    Dave 3+4

  • BJBear
    BJBear Member Posts: 2 Member
    #3

    Where are you located?

  • bdhilton
    bdhilton Member Posts: 866 Member
    edited September 2023 #4

    Contact the closest recognized teaching hospital is always a good bet. I've been blessed to the have the department heads do 3xsurgery- 2x radiation from Northwestern, UCSF and UC DAVIS during the last 15 years...do a little research and call or email their clinics. These medical School doctors are available...

  • Steve1961
    Steve1961 Member Posts: 618 Member
    #5

    The saga continues. I’m glad all these top most doctors don’t think this is serious but obviously I sure as hell do it all started you know five years after radiation PSA went up three times in a row to 1.1 to 1.9 anyway, I had my first pet scan on June 26 And now four months later four months later I’m going for a biopsy on October 23 just wish me luck I don’t understand all this I don’t know how I could have 3-4 last time and then have it sent out or genomic testing? and have them tell me that it is aggressive And now they think that it might not be hopefully it won’t be but I’m not counting on it

  • Steve1961
    Steve1961 Member Posts: 618 Member
    #6

    How could you have cribiform cancer before and not have it again I know they have to be sure but come on once aggressive always aggressive in my book

  • hunter49
    hunter49 Member Posts: 247 Member
    #7
    https://csn.cancer.org/discussion/comment/1709403#Comment_1709403

    I would go to any major center and get a younger doctor. You need it done robotically since you had radiation. They should start you on a hormone blocker ASAP then remove the gland that is best chance for a cure. Good luck . I am 61 had prostate removed at 49 was clean 10 years before starting to come back now starting salvage radiation tomorrow. PSA hit .38 and a doubling time of 30 months. PSMA showed activity where the tumor was against the wall.

  • Old Salt
    Old Salt Member Posts: 1,505 Member
    #8

    The issue is, unfortunately, that there are very few specialists who will surgically remove a prostate that has been irradiated.

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