Stage 1Breast Cancer

I was diagnosed with early stage 1 ILC on left side by mammogram in mid Dec. #1 time I hear "that's a less common type, only 10-15% get". Lumpectomy was the plan as it was a very small spot. But lets do an MRI but #2 so rare for it to be in both breasts. MRI....found three very small spots on the right side. (My Mom had IDC at 59, post menopausal, no chemo) Two of those spots were ILC, one was not. It is neuroendocrine carcinoma. #3 Rare to find in the breast. Biopsied and it "acts" like a breast cancer with E and P positive receptors as well a HER2 negative. Dr "confident" it's a primary breast cancer. Two surgeons have done a palpation check on lymph nodes and "fairly certain by feel" that there "shouldn't be any lymph issues". Won't know that for sure til after surgery. But because it's in both breasts, which is "unusual" let's do a genetic test. Found out yesterday, I carry the BRCA2 gene mutation. Genetic counselor says #4 "I had no expectation based on your history that you would be positive" My mom was never tested but is going to be. No other extended family on her side with cancer except a great aunt but wasn't even sure what kind she had. My dad passed when he was 85 but never had any cancer but his brother did. I've been in touch with cousins on both sides. I have a CT scan on Friday. I hope I don't light up like a Christmas tree!

I am waiting on my surgery date for a double mastectomy with expanders. How are you doing with yours? With the BRCA2, I also now get to look forward to getting my ovaries and tubes out. As with you, I'll have the oncotype test and make determinations for post care.

yes, that'd be great! Every risk/question that is listed for possible BRCA gene was a"no"....but this journey has been tough as I have hit every exception or rarity that there is....