Melanoma

Long_Life_Lady
Long_Life_Lady Member Posts: 5 Member
edited August 2022 in Skin Cancer #1

Hello 

can there be a Board just for this type?  Melanoma has returned to my lungs and would like to find others.

 

thanks for your consideration

 

autumn

Comments

  • CSN_Anne
    CSN_Anne admin Posts: 50
    edited August 2021 #2
    Thank you for your suggestion...

    Hello Long_Life_Lady,

     

    My name is Anne and I am one of the CSN moderators.  I'm sorry that we cannot add a new board specifically for melanoma at this time, but if you need help locating support organizations that are specifically for melanoma patients please contact the American Cancer Society at 1-800-ACS-2345.  We have cancer information specialists at that number 24 hours a day who can assist you with that.

     

    CSN_Anne

     

  • Long_Life_Lady
    Long_Life_Lady Member Posts: 5 Member

    Thankfully I became clear 1/21/22. Thank you for offering.

  • Skrich57
    Skrich57 Member Posts: 1 Member

    Hello,

    Being a melanoma stage 2a cancer survivor myself, I have a question. First, I'm glad you became clear on your lung! Did you have melanoma in your lungs the first time or was it on your skin? I only ask because I've been told once it's on the skin (which was my situation), it can return & that's why it's so important I keep up my dermatologist appointments every 6 months.

  • Long_Life_Lady
    Long_Life_Lady Member Posts: 5 Member

    Hi Skrich,

    I first had melanoma on top of my head. It had also spread to lymph nodes in the left side of my neck. That was 2017.

    In Oct. 2020 we saw through annual scans that it had returned in my lungs.

    Unfortunately cancer will always now be apart of my life now. But knowing I can live a "normal" life is alright with me.

    Hugs,

  • shawna75
    shawna75 Member Posts: 1 Member

    I’m new to this site, but not new to a lot of these discussion’s :(. I am 46 and have been dealing with melanoma for the last 10 years. I am currently NED for the last couple of years for stage 4. I’ve had cancer in my lungs and spread to my brain. About 5 years ago had brain surgery to remove 2 large tumors. I am currently looking for some kind of inpatient rehab facility that takes care of the whole cancer survivor issues. The mind body and sole! I, like a lot of cancer patients, feel lost. I’m not the same person, I was pre cancer. My mental health, physical, and pain management. I’m so tired of dr appts. My dream would be to find a place that I could stay and get care in myself and the effects of cancer and treatments that have changed my quality of like. I have tried to do research on this issue, but not having alot of success. I CANT BE THE ONLY ONE THAT FEELS LIKE THIS, RIGHT? Any response would be welcomed:)