New-IDC with Triple Negative
Comments
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Well I haven't been able to walk, appetite has been off, I was 122 at the beginning, down to 111, gained 3 lbs and lost less then 1 pound. One reason why I didn't want to do chemo, I think am to tiny to deal with it. Sunny, I know the weather out west can get bad, I don't know how you guys deal with it. Glad everything worked out, it always seems to in the end.
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We are actually in western Kentucky. I don't think anyplace is safe from bad weather now. It has changed so much in the last few years. We had a heavy rain last night. I feel sorry for the ones in Eastern KY who had all that flooding and now are getting more rain.
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Whoops I thought you were in San Diego. Here in Virginia its either rain or 98 degrees. No happy medium.
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I think the weather is crazy everywhere this year.
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Hello, I'm new to this network so have been trying to find my way around and learn from others. Today, I had my second excision for Invasive Ductal Carcinoma. I'm 73 and still deciding about hormone therapy but will do the radiation treatment the doctors recommend. I want you to know that your comments have been so very helpful and encouraging to me. Blessings, Mary
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Thank you so much, Mary! That's what I want to do is encourage people! Just listen to your oncologist and ask plenty of questions! They will be glad to answer you. I don't know about hormone therapy for someone your age (I'm 75) but just go by your doctor's advice. Praying all will be well! Sunny
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I am replying to you because we have similar issues. I have aggressive IDC triple negative, stage 1 breast cancer. I am 66 and live alone. I talk to my dog a lot 😆. I had 4 A/C chemo treatments and just had 4th weekly treatment of taxol. So that means 8 more to go. Then to the breast surgeon to discuss what type surgery to get. I don't want mastectomy but i dont want it coming back and going through all this again. So I'm hoping shes going to suggest lumpectomy. So far I've just had chemo treatments. At first I was scheduled for radiation but changed their minds. So if I have to have radiation after surgery so be it.
I have been lucky in that I have not had many side effects. I get tired easy, got a slight rash on my back and got cream thats helping and dry nasal issues. My nose runs, but dry sores in nasal passages and blood then blowing my nose. I'm using a saline rinse that is helping. My sense of smell and taste is wonky. It's a few things but nothing thats awful.
It is nice to read about other folks dealing with similar stuff. Makes me that I'm not alone. Thank you everyone.
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Hello Jeannie,
You are the first message I have seen pop up since just after my surgery.
As your profile is similar to mine - I was 62 (now 64) and had very early stages of breast cancer diagnosed 2 years ago.
I decided on full breast removal (instead of partial as I had originally intended) because of the stats and general info about statistical risk of recurring breast cancer that I was provided by the radiologist. See below cut and paste from my earlier post with some updates.
Full breast removal - 1 to 2% ( also no need for radiation if sentinel nodes are clear)Thankfully,my nodes were clearLumpectomy with radiation - 7%Lumpectomy without radiation - 20%I was concerned about a few things with lumpectomy.- Possibility of having to do more than one cut if they find the margins aren't clear on first surgery. My breasts are small and the incidence of cancer is quite close to the nipple so not ideal. Mandatory requirement of radiation with lumpectomy.Seems like more impact on system with chemo and radiation. They also do an xray each visit for each radiation sessionFurther - Regarding radiation in addition to chemo, I was concerned about heart and lung impacts, impact to bone density, impact to skin via radiation and less viable, unaltered skin to use if I should choose to go for reconstructive surgery in the future.
Everyone's situation is different of course but it's nice to have background info to base your decision on. I also advocate for asking lots of questions before a final decision.
Hope this info is helpful to your journey.
Very best wishes,
Anng
Sunny5Member Posts:147MemberJuly 2022#8Of course, you have to make your own decision. I'm sure the position of your cancer and the size of your breasts have a bearing on what you choose. You just have to weigh the possible outcomes and what you feel most comfortable with. I've had seven out of 19 radiation treatments and am doing very well. When they did my lumpectomy most of it was gone from the chemo, but there was a very small bit of the cancer left and they removed that, and the radiation is to take care of any microscopic cells that might be left that they couldn't see that might start growing. As of now I'm cancer free. They talked about pills afterwards, to reduce the chance of it returning. I've decided not to take them. They can cause side effects, because they are a type of chemo. I'm 75 years old, so I am going to take my chances. Prayers for your complete recovery! Keep us posted.
anngieMember Posts:10MemberJuly 2022#9Hello Sunny5,Great to hear that you are doing so well! Congratulations on being cancer free! Out of general interest and comparison post chemo - did they do an MRI and report on the remaining size of your cancer tumor prior to surgery? Mine is 12 mm down for 14 on the original MRI at the start of treatment.Didn't seem like a significant reduction but they said a reduction in tumor size is a good indication of impact at the microscopic level.-
Sunny5Member Posts:147MemberJuly 2022#10No, I didn't have an MRI before surgery. They could feel that my tumor had shrunk significantly. It started out over 3 cm and before surgery it was 3 mm. So it had shrunk enough they could go ahead and take it out. They said if there had been nothing left after chemo I wouldn't have had to have radiation. So when he did surgery he got all the rest of it. Radiation is a precaution. I may have already said that. I did have an MRI before starting chemo. Congratulations on your tumor shrinkage! Praying it continues! -
anngieMember Posts:10MemberJuly 2022#11Hello Sunny5,Wow! Your tumor shrunk a lot! That is very impressive. What type of Chemo drugs did you have and for how long?Seems like your chemo tx was very effective! -
Sunny5Member Posts:147MemberJuly 2022#12I had Doxorubicin first than then switched to Taxol. I had seven treatments , one every other week. Started the end of December and finished April 5th. It was very effective, and I give God the credit. I had hundreds of prayers going up for me. Where are you in your treatment right now? 
ExcellentTrouble321Member Posts:16MemberJuly 2022#13I have recently been diagnosed IDC. Estrogen positive. I'm going for lumpectomy unless genetic test is positive.-
Sunny5Member Posts:147MemberAugust 2022#14Hi, Anngie, I have now finished with surgery and radiation and am cancer free. Radiation was not hard at all. Each treatment is less than five minutes. I was so happy to ring that bell! My surgery was a success and they were able to remove the last of the tumor. What have you decided to do? continued prayers and well wishes!Sunny 
Truckincrazy1Member Posts:97MemberAugust 2022#15Glad to hear you are cancer free and over radiation. I am still struggling with radiation side effects, I guess I wasn't one of the lucky ones. I have anxiety anyway so that probably doesn't help any.-
anngieMember Posts:10MemberAugust 2022#16Hello Sunny an Truckincrazy1Hello Sunny,Great to hear your treatment was such a success! That's wonderful to hear. Congratulations! I decided on a full mastectomy and am now waiting for the analysis of my sentinal nodes to see if I will need radiation. I expect the results in about 2 to 3 weeks from now. It's now one week post surgery and I am feeling pretty good all things considered! Onward and upward! I'm enjoying the rest and feeling so much gratitude and love for all those who have and still are supporting me! Thanks for your prayers and well wishes too! I came across a good Rumi quote a few weeks back that you may like...."Gratitude is like wine for the soul. Go on, get drunk!"And so I will...with heartful thanks to all!Ann -
Truckincrazy1Member Posts:97MemberAugust 2022#17 -
Truckincrazy1Member Posts:97MemberAugust 2022#18I didn't join this group until a few weeks ago. My cancer was found on a PET scan, Lymph nodes were clear. Breast Surgeon was confident that the cancer would be removed with lumpectomy, maybe chemo prior to surgery to shrink tumor, 22 weeks of chemo and 20 treatments of rads. I said no to chemo. They were not happy. One lymph node was removed since they did not show up hot on PET scan. Biopsy showed, margins clear, lymph nodes clear and tumor was in situ. (did not spread) I am still struggling with side effects of the radiation. Last treatment was July 12, 2022. I sometimes wish I had not done it. I'm tired of being tired. The only support I get is from here and therapists. I am just now learning to accept that my adult daughters just don't understand. I am cancer free, tired and alone. I am grateful for this site. Sometimes though I just want to go a day without thinking about cancer, I don't want to be called a survivor or Pink Sister. I did what I thought was best for me. Glad your recovery is going well. -
Sunny5Member Posts:147MemberAugust 2022#19I am so sorry radiation did not go well for you. I pray that your side effects will soon subside. Everyone has to make their own decision. I understand your decision, since it was in situ. My daughter-in-law had the in situ and was cured by radiation and never had chemo. You are not alone! Even though we don't know each other personally, there are people on here that care. I want to pray for you and encourage you. Keep us posted on how you do! Sunny -
Truckincrazy1Member Posts:97MemberAugust 2022#20I didn't even realize it was in situ until after the radiation. I was re reading my biopsy report a few weeks ago. To be honest, its the constant being tired and no energy that is getting to me. Just get through the next 24 hours and small steps. It's ok, not to be ok. -
Sunny5Member Posts:147MemberAugust 2022#21Yes, any of your feelings are valid! It will eventually pass, even though it seems like a long road right now. We were hit by a monster tornado in December, our house was very damaged, but not destroyed, thank God. A week later I was diagnosed. We didn't have heat, electricity, or water for weeks. Had to stay away from home. We were able to spend a few days with my son at Christmas, and I started chemo Dec. 27th. Plus we had all the insurance stuff and repairs to deal with. But there were so many people that came from all over the country to help. Even though it was a hard time, we were so blessed through it all. We were able to return home before I started chemo. I still had to drive 30 miles but since I only had it every two weeks, it wasn't too bad. I hope you can revive some energy. Have they told you to walk every day (if you are able)? Also nutrition will play a big part in that. I lost a bunch of weight. I have struggled with being overweight all my life, and now they have told me they don't want me to lose any more weight. I said, "No one has ever said that to me in my whole life, I love you!" LOL
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