Frozen gloves and socks

I was also put on extra Vit B6 for 12 months. 🤷‍♀️ Since I’m legally blind and really, really needed to get back as much as possible, we tried it all.

I got back most of it, but not the very ends, not the tips. I’ve had to modify some of my tactics. 🤷‍♀️😉 But. It’s working.

I never heard of any of these! I just finished 7 rounds of chemo and have some neuropathy in my fingers and thumbs. The dr. told me it could be permanent. I was supposed to have another round of Taxol and he gave me a choice of stopping because my tumor is small enough to remove. Of course, I chose to stop. I wonder if it is too late to try the cold therapy.

Thank you so much! I'm surprised that my medical team never mentioned this at all to me. I did order some of the gloves. I am hoping they will help or at least that the neuropathy goes away. Wishing you all the best also.

Hi all. Sunny- may I recommend listening to music and I would rock/bop the best I could and count down the songs until I could be done with the ice...I just finished my last weekly (12/12) Taxol/Herceptin this week. I did freeze my feet and hands each visit the best I could as sometimes the hand inserts did not stay as cold as I would have liked... I would then put my hands in a bin of ice then. I really tried hard to keep the blood vessels in my hands and feet constricted during the taxol treatment as I have already dealt with some neuropathy in the past. Thank God, so far I have not had any issues that I can attribute to neuropathy in my feet nor my hands! I wish you all the same results as neuropathy is no picnic!

I now move on to 13 more herceptin treatments every three weeks to complete a year and the addition of letrozol (daily pill) for 5 years. I had very early breast cancer, no lymph node involvement, but HER+ and ER+, and very aggressive growth. Even though they believe they removed all the cancer with my mastectomy, they recommended I go this route. I am tired of not feeling good! I have begun researching 6 months vs 12 months for herceptin... has anyone talked to their oncologist about these studies regarding 6 vs 12 months?

Sorry to hear Sunny... I misunderstood your comment. I thought you were currently receiving chemo:

Your comment April 27 #10

I received the gloves and have used them a few minutes at a time. They are so cold I can barely tolerate them longer than about five minutes. I'm sure it's too early to tell if they are going to help. I'm going to tell my cancer team about them.

I hope wish you the best and hope the neuropathy subsides.

Ann

Hi, I used Cryomax ice packs. Bought 4 from Amazon. They have straps so you can tighten them on your hands and feet. They claim to last 8 hours. I still lost nails, but did not have lasting neuropathy. I refused to stop using gel /acrylic on my nails, and when they started ripping off, I didn't reapply. I wish I would have listened to that piece of advice. I finished treatment in 21. I just started back up doing my own nails, and they still rip in half if I get them caught or bend while the stuff is lifting.

I started using the cold mittens and socks on my first chemo treatment, per my Dr.'s suggestion. I got mine from Amazon. I am on treatment #8 out 16 and haven't had any tingling as a side affect yet. Not sure if it is yet to come, but so far so good. I also used the cold cap in hopes of not losing my hair and spent $2200 on the cap, but that didn't work and my hair is gone. I'm up for trying anything to help with the following symptoms of chemo. So far no tingling but the cold cap didn't work.

My husband ordered ice gloves from Amazon. We have 4 pairs and we switch them every 20 minutes. The oncology center won’t manage any of it because they don’t prescribe the treatment but they are kind enough to let us bring in a cooler and let me stay with my husband to help manage. We have 2 ice blocks and a piece of dry ice in the cooler. He is given 2 chemotherapy drugs, which means he has the gloves on for 4 hours and 15 minutes. When we switch gloves, I put the used pair back in the cooler, close to the dry ice. Then as it moves up in the rotation I move it away from the dry ice so his hands aren’t burnt. We have been through 2 treatment cycles and he so far has no symptoms in his hands. I am still nervous that we are leaving them on too long though and can’t find any information about how long is too long. I don’t want him getting frostbite.