Neuroendocrine tumor

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georgeanns
georgeanns Member Posts: 8
edited April 2022 in Colorectal Cancer #1
Has anyone had a neuroendocrine tumor of the rectum, anus, or colon? I was diagnosed with rectal cancer, a neuroendocrine type, in 2002 at age 32, and I am told it is a rare type of tumor to occur in the rectal/anal area. I had chemo, a colostomy, radiation in 2002-early 2003, then a recurrence this past Sept. 2003 in my liver, with a good respose to chemo so far.

Any responses with information would be appreciated.

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  • nanuk
    nanuk Member Posts: 1,358 Member
    #2
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    did you try word searching neuroendocrine? I came up
    with about 10 hits.. Bud
  • georgeanns
    georgeanns Member Posts: 8
    #3
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    nanuk said:

    did you try word searching neuroendocrine? I came up
    with about 10 hits.. Bud

    I will try that. Thank you very much
  • JoshC
    JoshC Member Posts: 5 Member
    #4
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    I have neuroendocrine but on my pancreas. Spread to my liver

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #5
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    My goodness, the date on this post is OLD - as in 18 years old.

    The other posters haven't been on the forum for almost that long, so there will be no replies from them, I'm thinking

    But, hello JoshC. I hope you are doing well - or as well as can be expected.

    Tru

  • JoshC
    JoshC Member Posts: 5 Member
    #6
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    So this was your post from 18 years ago???

  • JoshC
    JoshC Member Posts: 5 Member
    #7
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    I guess you are doing ok if you’re still here 18 years later!!???

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #8
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    https://csn.cancer.org/discussion/comment/1695909#Comment_1695909

    No, someone called georgeannes. Looks like they only posted eight times, and then didn't come back on the forum.

    Tru

  • catisha
    catisha Member Posts: 5 Member
    #9
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    I was diagnosed with this type of tumor. They tried chemo as a treatment it didn’t work and the mad on my bladder grew 1cm and the others along with the mass in the rectal area remained the same. My physician just switched me to immunotherapy and I am praying that it works. Has anyone had success with immunotherapy?

  • JoshC
    JoshC Member Posts: 5 Member
    #10
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    I know someone who had amazing results on immunotherapy. My doctor confirmed it is very successful many times.

    good luck!!

  • catisha
    catisha Member Posts: 5 Member
    #11
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    https://csn.cancer.org/discussion/comment/1696036#Comment_1696036

    Thank you. I am praying for the best. I have 4 more rounds on it.

  • JoshC
    JoshC Member Posts: 5 Member
    #12
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    I am on my third round of oral chemo. Lmk how yours goes. Best of luck!

    josh

  • catisha
    catisha Member Posts: 5 Member
    #13
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    https://csn.cancer.org/discussion/comment/1696106#Comment_1696106

    How is your oral chemo coming along? Any side effects?

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