Also recommended for bladder removal but when I went to surgeon he said I was too old (78) and in bad physical shape (overweight with large stomach) for surgery.  Have since started chemotheraphy and radiation.  

i was diagnosed at age 45....about a year ago and have since had radiation and light chemo. had a pet scan done about 10 days ago and was informed it had spread to my lymph nodes in my back and surrounding areas. 2 days later i was admitted to the hospital for acute hematuria which is passing blood and quarter sized clots. very painfull 4 days in hospital but finaly cleared up. was told it would keep happening because the tumor in my bladder would continue to shed tissue. i m not sure what will come next or how much longer i will live. guess its a waiting game to see where it shows up next. i started imunnatherapy and have my second treatment next week. hoping it will buy me some more time. i refuse to take heavy chemo.....just cant see how  poisoning my body will save or extend my life. i have a wife and 6 yr. old daughter at home and i worry about there future. i also worry about how much suffering and pain i m gonna go through.can  anybody relate to my condition? would like some info on what comes next or just to share your story. thanks!

I am currently being treated for stage 2 high grade muscle invasive bladder cancer. Doctors wanted to remove my bladder, but I decided to have them treat it with chemotherapy and radiation.

I want to share with anyone receiving chemotherapy with an infusion pump to be very careful. My doctor prescribed 2 mL /hr rate of infusion. This is written right on the prescription that will be attached to the chemo ball.

There is a tube they connect to your pick line that has a censor on it that should match the infusion rate, therefore in my case the censor should have said 2mL/hr on it. Problem was it said 5 mL/h. The end result is the chemo I was supposed to get over a five day period was pumped into my body in a day and a half.

I was hooked up to the infusion pump on a Thursday morning and the chemo ball was empty by Friday morning. While having my radiation treatment on Friday morning I ask the radiologist why they would have me carry an empty chemo ball around for four days. His response was this is how they work.

I then returned to the hospital on Monday to have the Chemo Ball removed and asked the nurse the same question. Why would the have me carry around an empty chemo ball for four days.

I then showed her the chemo ball was empty and told her I noticed the censor on my arm said 5 mL/hr and asked if this was correct. The nurse seemed very concerned and the next thing I know is I am in a meeting with my chemotherapy doctor and my radiation doctor. They informed me I was overdosed and the chemo drug which I received was infused to fast. The chemo drug was fluorouracil.

Don’t Trust a Nurse to Administer the Correct Chemo Drugs! Check the Prescription, Censor Rate and anything else in regards to your drugs !

I am now being treated for cancer and chemo overdose! Not what I expected from one of the top notch cancer hospitals in the country!

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I also have bladder cancer and my doctor says my surgery options are a neobladder or a Ileat conduit has anyone had either of these ?

If you go to bcan.org, you can submit a request to speak with survivors with both kinds of diversions. It is called the Survivor to Survivor program. They can tell you of their experiences and why they chose their particular diversion.