Ch-Ch-Changes

Its been too long since Ive checked in. I feel really guilty for not logging on sooner but; I had a baby which has changed everything in the most wonderful way. Also the new format is ugly and not user friendly so thats a less than inviting change.

I see that Tueffels Dad is gone. So heartbreaking. I think she mentioned leaving the site and that makes sense of course, I might send her a message to thank her and her dad for sharing with us, but I also I dont want to serve as some sort of thorn to remind her. Still thinking on that one.

I plan on updating my main profile with my dads timeline, I cant remember my last posts here either so Ill just point out a few things here.

Dads doing good now. Diagnosed December of 2020 Stage 3A T2N1M0 adenocarcinoma, normal CEA, CA19-9 tested after resection but not before and it was normal. Negative Perineural invasion, positive lymphovascular invasion, KRAS and BRAF were normal, cant remember exactly but whatever was most common he was. Had a resection in Jan 2021. Had infection shortly after and had to have an ileostomy. Did 6 treatments of FOLFOX. Nausea, anxiety/depression, fatigue,weight loss and cold sensitvity were his bigest side effects. He has mild neuropathy, but very mild, almost a year out from finishing. Probably due to only doing 6 treatments instead of 12, hopefully the 6 were enough as some studies suggest.

A few weeks after finishing chemo in June 2020 he has hematuria (blood in his urine), lasted for a week or so and stopped. No pain. Ended having a bladder scope and nothing was discovered. Hasnt had a problem since.

Somewhere after chemo he had a CT that showed a possible metastisis near an artery in his abdomen, but a PET scan showed it was not that and either inflammation from his surgery or an inactive lymph node that had responded to chemo. Hopefully it was the former.

In September of 2021 he had his ileostomy reveresed and by the grace of whatever controls fate, he has not had any issues. Recovered fairly well. Back to normal bowel habits. Thats also when I had my baby and he met his first grandchild.

He has gained a little too much weight and about a month ago his blood pressure started to sky rocket but other than that he has been good.

In a week he has his PET scan. CEA was a .7 and CA19-9 was a 2, higher than before but still normal I guess. Nerves are through the roof.

I hate how unfair it is that not everyone can have some reprieve like it seems we are. In some ways it just makes me superstituous and I dont even want to hope that it lasts out of fear that it wont. Doesnt make sense I know.

Im just putting this out there, not because I think anyone is necessarily waiting for an update, but more so for anyone in the future who stumbles upon this while researching there prognosis or that of a loved one. This is just what has happened so far.

I am eternally grateful for anyone who has ever replied to my posts, really. You all are so kind to give an anxious daughter your time and energy.