4 years next month NED and now....

Nanaof10 · December 2021

Had my annual CT right after Thanksgiving. Stage 1, Grade 2 measured at 2 cm. Di Vinci Right Kidney CCRCC. Still NED thankfully, BUT they found a highly suspicious and pretty much unviewable lesion in my liver right under my rib cage in a very difficult place. Ultrasound couldn't get to it and subsequent MRI Oncologist ordered can't adequately determine that it is cancer or benign. Alpha Fetoprotein Tumor Marker is rated to be normal <6.1. I am 7.6. Oncologist basically laughed me out of the office when I consulted her about recurrence 4 years ago. Have had about 3 different scares that she also very quickly brushed off. This time, she is more than very concerned. I see her Jan 14th to discuss MRI and AFP. Has anyone here had Mets to the liver? Looking for some hope.

Deanie0916 · January 2022

I haven't had any mets to the liver. I just wanted to let you know prayers are with you. Hang in there!

Nanaof10 · January 2022

https://csn.cancer.org/discussion/comment/1691834#Comment_1691834

Thank you very much.

medic1971 · January 2022

https://csn.cancer.org/discussion/324568/4-years-next-month-ned-and-now

No, mine keep popping up in my kidneys. Have you thought about getting a second opinion if you don't get the answers you need or maybe just a fresh set of eyes to look at everything?

Here is a list of top 10 list of caner hospitals according to US News and World Reports:

https://health.usnews.com/best-hospitals/rankings/cancer

X37 · January 2022

Nanaof10 - I was also Stage 1, grade 2. On a routine follow-up scan, they found a small mass on my liver. My doctors were concerned as well but told me it was unlikely it was a metastasis. After an MRI, they confirmed it was a benign liver mass, which are very common. Best of luck to you!

Shecka1121 · January 2022

Hi Nana, I remember you very well as we had similar situations. I will keep you in my thoughts and prayers and please keep us posted. LIke someone mentioned, begin lesions/masses are very common on the liver. I hope that is all it is...

Allochka · January 2022

That is definitely a stressfull time for you…

Can they make a biopsy? Mu husband had liver biopsy due to his Hepatitis C, it was a very easy procedure. Perhaps this spot can also be biopsied?

What is your action plan?

Nanaof10 · January 2022

https://csn.cancer.org/discussion/comment/1691905#Comment_1691905

I do not know her plan as of yet. My guess is: A) She thinks it's benign B) She will biopsy C) Watch it 🤷‍♀️

Nanaof10 · January 2022

https://csn.cancer.org/discussion/comment/1691904#Comment_1691904

Wow! What a great memory you have! Thank you for your thoughts and prayers. Much needed for sure. I do have other benign masses in my liver but this one is behaving a tad bit different. We shall see. I will keep you all posted in a couple of weeks.

Nanaof10 · January 2022

https://csn.cancer.org/discussion/comment/1691894#Comment_1691894

Thank you. I do have a 3x3 cm mass that is deemed benign. Hopefully, this one will be as well.

Nanaof10 · January 2022

https://csn.cancer.org/discussion/comment/1691893#Comment_1691893

My Kidney Dr, Endo Dr and PCP have all looked at it. My Oncologist is one of the top ones here in Indianapolis. All 3 have also expressed concern.

Deanie0916 · January 2022

Medic thinking of you and praying for you for wisdom today.

Allochka · January 2022

Hello Nana,

do you have any update? What is the action plan?

Nanaof10 · January 2022

https://csn.cancer.org/discussion/comment/1692866#Comment_1692866

Thank you for asking. She was still unsure and sent me to a Cancer Liver specialist. He also isn't sure. Gave me 50/50 odds of it either being benign or Liver Cancer, not mets. Ordered an MRI MRCP for mid-April along with another Alpha Fetoprotein Tumor Marker blood test. He presented my case to the Tumor Board and they all agreed with the 'Wait and Watch' treatment plan. Went thru that for 9 months before they determined and removed my kidney cancer. Just keep testing every 3 months until it can be determined what is going on. Moving on to liver cancer board since this isn't Mets.

4 years next month NED and now....

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