Noob with floor of mouth cancer

Coconut milk is good!  Not salty.  If I can keep up my fluids maybe food will be more attractive.  : )

Well I felt good enough to do dishes, some laundry, scrubbed bathroom sinks and toilets and made wonton soup for seeing eye kid and myself.

Unsalted organic chicken bone broth, garlic, ginger, carrots, celery, cabbage, wontons, rice vinegar, sesame seeds-didn't have sesame oil, soy sauce and some soft cooked rice.  Seeing eye kid had egg rolls with her unblended soup.  My soup was blended but it was still kind of tasty.

Don't do mixed berry ensure.  Seeing eye kid said it was strictly SHTF food a cut above cannibalism.  LOL!  She's funny.

I must have hundreds of people praying for me.

Believe it or not, I ate a piece of cheesy garlic toast last night.

When we got home from rads I made eggs benedict for me and the seeing eye kid and was able to eat!!!!!!!!!!!!! With coffee!!!

Not a whole lot of flavor had to take tiny bites but was able to eat.  

Seeing eye kid thinks God is letting me have whatever I want before it all goes sideways.

I have chicken carnitas in the crockpot.  I'll fry it up and make tacos out of it on homemade tortillas tonight.  We'll see what happens-could be a bust.

God is so good!

Hi Russ.

Chicken carnitas was a bust for me but seeing eye kid liked it.

I ate the rest of the cream of asparagus soup.

If I get hungry later I guess I'll just tube it since I already brushed my teeth.

Carnitas is just spanish word for meat?  I cook chicken or pork in the crock pot with citrus and spice then brown it in fat after cutting up.

It goes on homemade corn tortillas with cilantro and onions and tomatillo sauce.  Really nummy stuff on a normal day.

I busted out my tube supplies today.  Tired of pills getting stuck in my throat(I hacked up more than a few)and tired of trying to eat stuff that  tastes like nothing.  

I'll keep the swallowing equipment functional with whatever I use to degunkify my throat and the occasional ensure.  I just can't keep trying to eat tasteless stuff right now it's starting to turn my stomach.  Not worth getting my teeth filthy right now.  

Man, my stomach is tiny now and anything I put in there just turns into gas.  Burping and pain all the time.  Maybe that will be less with formula.

Maybe now is the time to keep it simple.  Maybe real food is getting to be too much work for my poor cancer ridden body to handle.  Haha!

So I suppose I'd better put swallowing exercises way higher on the old priority list since I'll be doing a whole lot less swallowing now.

I only have 6 more rads to go.  I don't know if I'm on a lower dose or what but right now I just look like I have a sunburn and not even a really bad one.  My mouth is pretty good.  Not too sore.  That could be because I'm actually missing that one nerve that refers pain all over the place on my right side.  I'm actually having far less pain now than before I had my surgery.

I have enough tube feed and ensure to last about a month.  After my mouth heals and some of this chemo rad crap is out of my system, things should taste a lot better and not be so grainy.  Right now, no matter how much I blend something, I can feel the tiny little particles sticking in my throat.  I don't know how on earth I was able to eat what I did the last couple of days.  

After my food settles I'll clean up, change my jammies and work on the baby quilt I started for my son's friend.  My son has known this guy all his life, he has always been a very good friend to my son and I've fed him countless times and treated him like my own.  I've always thought the world of him.  He and his girl are expecting a little boy which is a miracle because they both have issues which would make that difficult.  He had cancer when he was a little boy-some kind of leukemia IIRC.

Ok, over and out for now. 

After today only 4 rads and 1 chemo.  Will try and eat some little thing every other day or so so my esophagus doesn't get amnesia.  Still driving there and back.  Got the silvadene and domeboro from the NP just in case my neck gets really nasty.  I added coconut oil to my skin care regime.  It felt very soothing.

The seeing eye kid and I went to the fabric store yesterday.  First time in three years. I needed a couple things to finish out the baby quilt and we got t shirt fabric for a shirt for me and PJ set for her.  Maybe I'll post a picture of the quilt if it turns out ok.  I'm lousy at apparel but I keep on trying.

Ok, time for brekkie.  Rev up your syringes!  Haha!

Well, things have been going sideways quick!

It really hurts to swallow now.

Looks like I will be tubing it for sure for a while.

I just ate an open face egg sandwich last night too.

I hate to see what I'll be like next week after the last rad. 

Grinding up pain pills and other meds to put into my tube.  Pain pills every 4 to 6 hours depending on what I'm taking.  Gabs are six hours, vikes are four trying to do both every six hours just to keep it simple.  Compazine is every six hours too.  Nothing too earth shattering on the pain meds.