Living with one kidney

I had a Radical Nephrectomy in 2005 and I was told I could live with just one kidney. I honestly never had any problems with having one kidney and I was not told to avoid popcorn or red meat. I was never a heavy drinker but if I had one drink, it would not be any different than if I had two kidneys and a drink. What happened to me in 2019 was in no relation to my solo kidney. I went into kidney failure (due to Crestor) and it destroyed my only kidney. I am now on dialysis. (2 years now) Once again, having one kidney had nothing to do with my kidney failure. Had I had two kidneys, the Crestor would have damaged both kidneys. I urinated normally with just one kidney. Now because of kidney failure, I don't urinate the volume that I used to. I was never told to alter my lifestyle. I was not told that I needed to see someone to find out how to change my lifestyle. I just went on with my life back then.

I've had one kidney since 2018 and I'm doing fine. Expect your lab numbers to jump around a bit for a few years as your kidney adjusts. I see a nephrologist once a year just to check in. At my last appointment in March (by phone) she told me that based on my latest numbers, no doctor could tell I have only one kidney without looking at my surgical records. I haven't changed a thing in my diet, I just am a bit more concientious about my liquid intake. As another doctor told me, just think of all the people who donate kidneys and go back to living normal lives. If you don't watch American Ninja Warrior, I suggest you check out the most recent two or three seasons. One of the top competitors is a kidney donor, so living with one and doing super fine.

Welcome tgpath. Sorry you had to join us, but this is a great forum here. Congrats on getting through your nephrectomy and becoming a cancer survivor. We're in the same boat as you, so we know what you're going through. 

My story is similar to yours. I had a radical left nephrectomy three years ago. I was a little worried about what life would be like with only one kidney, but then started asking around and heard only positive stories. I had a cousin who lost a kidney, and then went on to live another 55 years after. And my doctor explained that your one remaining kidney will grow bigger and stronger to compensate for the missing second kidney. 

As the others above have said, the important thing is to take care of the kidney you have. Drink plenty of water. All the general stuff you hear about good health will be good for your kidney - drink water, eat healthy foods, exercise, watch things like your weight/blood pressure/sodium/etc etc. My doctor said I didn't have to give up stuff like red meat or alcohol or carbonated sodas - just don't over-do it and moderate their intake, like any healthy person should. 

[Side rant: when I told many of my friends about my kidney cancer, I got several of the same reaction: "OH NO. YOU CAN'T DRINK YOURSELF STUPID NO MORE!" Uh, first off, that's the liver - not the kidney. And second off, how much black-out drinking do my friends think I do? Don't answer that - I don't wanna know...]

Honestly, other than trying to live healther, the only major change that I needed to make since my nephrectomy was to switch to Tylenol for pain relief and stop using ibuprofen/Advil - which was not a big deal at all.

As my doctor told me, it was bad luck that I got cancer, but good luck that I got it in an organ that I have two of and only need one to live. If you look at it that way, think positive - we dodged a bullet. 

With your annual follow-up visits, just keep an eye on your kidney health - your GFR and such. As long as you drink plenty of water and stay healthy, you can keep your one kidney in good health for a very long time. 

Hope this helps! 

with a group of classmates at lunch today (60 years since HS grad), the woman next to me said her oldest daughter was born with only 1 kidney, is now 50 and doing fine. That's a slightly different story, bacause the kidney will increase in size as the child grows.

Mine was removed at age 64, and the eGFR has been going down with age. My PC Doc sent me to a Nephrologist.  So I needed to drink more water, eat more protein and vegies, keep my weight and BP down and live my life.  It's been 15 years since Dx and I feel great for my age.

Hugs and good luck,

donna_lee

tgpath1 said:

My doctor said almost the

My doctor said almost the exact same thing...bad luck but luckily I got cancer in an organ I have two of!!  It doesn't really make me less scared  but I think as I adjust over time, that will ease.  

I don't plan to black out drink but I would like to enjoy a cocktail on vacation or at a party.  I have eliminated dark colored soda for now because I read that phosphorus is bad for the kidneys.  Ironically, my blood pressure had crept up (not alarming but enough that my pcp was watching it) so I had already started watching my sodium intake.  Now, I think the blood pressure may have been from the mass in my kidney.  My doctor did tell me that ibuprofen is forever out, which is fine.  I switched to Tylenol and I'm good with that. I have also only heard positive stories, which is amazing and I am grateful for.  Thank you for your feedback...it's exactly what I needed to hear to be prepared fro the nephrologist.  

You are very correct that dark cola contains phosphates and I am forbidden to drink that. (I actually prefer orange, grape and rootbeer) When you have a poorly functioning kidney, you have to watch your phosphates (which is dairy, dark cola, yogurt, whole milks/2%, chocolates and no organ meats) You also, if you have a poorly functioning kidney, have to watch your potassium (potatoes, beans, oranges, orange juice, etc.) It is also correct that Kidney patients should only take Tylenol. The Aleve, Baclofin, Nsaids, Ibuprofin are forbidden and Anitinflammatory drugs can hurt your kidney or if you have a poorly performing kidney, then none at all should be injested except Tylenol. 

That's about right.  I usually have 1 cup of coffee in the morning, and several "mouthful sips" during the day, in addition to the 16 oz container I fill either at work or home.  You're off to a good start.

If you click on user names, and they have posted their back story, you can see what many of us have been through over the years.

Again, keep on being positive and all best wishes.

donna_lee

I also had a radical nephrectomy in 2016 and I'm doing well. I agree with what Eugene said, in my case the only thing I've really changed is switching to Tylenol and cutting back on sodium trying to drink more water. Keep us posted! Best wishes for continued recovery and good health!

tgpath1 said:

That was actually one of my

That was actually one of my questions....you are correct that most restrictions refer to CKD.  Do they consider cancer/radical nephrectomy CKD?  My oncologist indicated that the odds of cancer in my remaining kidney are extremely low...he said it does not jump.  So if my remaining kidney is healthy, I am not sure CKD is a risk.  I am sure the nephrologist can shed more light on this but I can't get in until September so I'm trying to navigate this on  my own until then.  

My nephrologist told me last year (the first time I saw her) that number-wise, I was looking like stage 3 kidney disease - but that was perfectly normal for having one kidney, and it's not the same as having two diseased kidneys. And like I said earlier, my numbers have improved a lot since then. The first few years, there will probably be fluctuation in your numbers as your body adjusts. Don't freak out, just follow any advice your doctors give you.