Erbitux + new bone mets

tktktk
tktktk Member Posts: 6
edited March 2021 in Head and Neck Cancer #1

Hi there, 
I am 5+ months post chemorradiation for NPC (nasopharyngeal carcioma). I just had a PET-CT b/c of persistent pain and numbness in my hip / leg. Turns out that I have a whole slew of new mets that now need to be treated. They are putting me on weekly Carbo, Taxol and Erbitux.

A couple questions:

1) has anyone on Erbitux found a way to minimize the rash? I was on it during chemoradiation and it was horrible. So painful and also so ugly. I tried doxy and a topical steroid, but neither worked for me.

2) has anyone had mets activate after their primary tumor disappeared? how did you treat this? I wish I had a better understanding of metastasis.

 

Thank you for your advice!

Comments

  • wbcgaruss
    wbcgaruss Member Posts: 2,482 Member
    edited March 2021 #2
    My Situation Is

    Not like yours and I have not had any metastasis but had cancer 3 times. Here is a link that explains it I hope it helps. Take Care-God Bless-Russ

    https://www.cancer.net/navigating-cancer-care/cancer-basics/what-metastasis

  • LitlCJdoll
    LitlCJdoll Member Posts: 245 Member
    #3
    Hello  tk,

    Hello  tk,

    Please give an Update, on your HNSCC Mets.. How are you now and what treatment course has been chosen for you this time??  I am worried when I hear this.... I have a friend whom is Stage IV, with BOT which metastasized to his Liver, hip bone, spine, and gall bladder .  He has been on chemo for Years ... 

     

    Feel free to private message me. I am Stage III.  Currently battling Aspiration pneumonia again ( #6) and may be admitted, when I see Pulmonary...  

    Anyway, this is about You, so please let me know your next steps.

    Crystal

  • Gea
    Gea Member Posts: 1
    edited May 2021 #4
    Erbitux

    Hi TK

    My husband Steve is on erbitux and I bought him aveno body wash and jergens healing lotion. I also bought him baby wash cloths to use and he takes benadryl. He has been on it for three months and goes in next week for pet scan.Good luck on your treatment.

    Barb

     

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