Prostatectomy + RT + ADT

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  • Georges Calvez
    Georges Calvez Member Posts: 547 Member
    3rd anniversary of prostatectomy

    Hi everybody;

    The third anniversary of my prostatectomy has ticked by in mid February, and I am close to a year and a half off the ADT.
    So what gives?
    My testosterone level is now up to 3.00 ng/mL, 10.41 nmol/l and my PSA is still below < 0.05 ng/ml
    Next test at the end of September and an interview with Dr Tigger on my birthday in October, this will be after the fourth anniversary of diagnosis.
    In the meantime we have to move house, I have a faster car pencilled in, but I have to sneak that one past the wife!
    The best thing is that I am still keeping looking at the daisies from the wrong side at bay.

    Best wishes,

    Georges

  • Old Salt
    Old Salt Member Posts: 1,258 Member
    Thanks for the update, George

    Is Calvados an option in the area where George lives?

  • Georges Calvez
    Georges Calvez Member Posts: 547 Member
    Lambig
    Hi there,

    We have this stuff which is like Calvados but better, everything is better in Brittany than it is in Normandy, moules, herbe, cidre, femmes, chattes, beurre, you get the idea.
    https://en.wikipedia.org/wiki/Lambig

    Best wishes,

    Georges
  • GeorgeG
    GeorgeG Member Posts: 152
    Blood pressure

    Georges

     

    My BP goes down when I am on Firmagon and back up when I am on my "holiday". I also get insomnia and sweating, low energy and fatigue. Now I have hip joint pain which may be related to SR or ADT. Of course old age (66) is being added to the equation so .... Each cycle is different for some reason. Almost no insomnia this time, last time that was the worst part.

     

     

    George

     

  • VascodaGama
    VascodaGama Member Posts: 3,638 Member
    3rd anniversary

    Hi Georges,

    Congratulation on the remission. The results are supper. Hope this reinforces your cured status.

    For me the best in Brittany is its traditional fish diet with produces from its long costal ocean areas. I like its history involving the Celts (IX century) from wohm I may descend. Think of Asterics and you have it all. Lol

    Best,

    VG

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 411 Member
    Whoo Hoo!
    Nice one!

    Whoo Hoo!

    Nice one!

  • Old Salt
    Old Salt Member Posts: 1,258 Member

    Lambig
    Hi there,

    We have this stuff which is like Calvados but better, everything is better in Brittany than it is in Normandy, moules, herbe, cidre, femmes, chattes, beurre, you get the idea.
    https://en.wikipedia.org/wiki/Lambig

    Best wishes,

    Georges

    Would like to try some...

    Close, but no cigar:

    in Belgium there are beers in the Lambiek family (fermented with a variety of fruits).

     

  • Georges Calvez
    Georges Calvez Member Posts: 547 Member
    Old Salt said:

    Would like to try some...

    Close, but no cigar:

    in Belgium there are beers in the Lambiek family (fermented with a variety of fruits).

     

    Bière et les Breton(ne)s

    Hi there,

    We like our beer down here, so we have the beer that we make ourselves plus English and Belgian beer as well.

    Best wishes,

    Georges

  • Clevelandguy
    Clevelandguy Member Posts: 940 Member
    edited March 2021 #110
    Congrats

    Congrats George,

    Great report, hope and pray for many more undetectable readings.  I think we all just live from PSA test to test to a certain extent.  We should all enjoy life when we can and fight the beast if and when it returns. In the mean time get on with getting on.

    Dave 3+4

  • Georges Calvez
    Georges Calvez Member Posts: 547 Member
    PSA timeline

    8 September 2017 131     Dx
    14 Septembre 2017 144,90
    Prostatectomy non nerve sparing 19 February 2018
    26 March 2018 2,03 Five weeks after the operation
    30 March 1st injection Firmagon
    12 April 2018 0,27
    15 May start of 66 Gy radiation
    25 June 2018 < 0,03 Cobas Roche electroluminescence ECLIA sandwich (sérum plasma )
    2 July end of radiation
    26 September 2018 < 0,03 Cobas Roche electroluminescence ECLIA sandwich (sérum plasma )
    26 December 2018 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    25 March 2019 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    25 June 2019 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    25 September 2019 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    30 September 19th and last injection Firmagon
    18 December 2019 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    23 March 2020 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    23 March 2020 Testosterone 192 ng/L, 666 nmol/L 193-740 ng/L, 670-2568nmol/L
    22 Juin 2020 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    21 September 2020 Testosterone 230 ng/L, 798 nmol/L 193-740 ng/L, 670-2568nmol/L
    21 September 2020 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    14 December 2020 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )
    22 September 2021 < 0,05 Architect Abbott chemiluminescence CMIA ( sérum )

     

     

    As you can see I had two results fairly close together that may show a rising trend and then no tests for the four months up to the operation, in that time it could have been fairly stable or risen to more than a couple of hundred, we really do not know.
    Five weeks after the operation it had collapsed to 2,07, indicating that the bulk of the tumour producing PSA was gone, I think that it might have declined further as I have seen other cases on Yananow where it continued to decline. No matter as I was strongly advised to take Firmagon, I had another test on the 12 of April that showed a further decline and I suspect that I was at the limit of detection for the end of the month, certainly before the start of the radiation.
    Conclusions, most of the tumour was gone, the remaining fraction was highly susceptible to testosterone deprivation.

  • Georges Calvez
    Georges Calvez Member Posts: 547 Member
    Yay, drinkies

    Hi there,

    So I mosied down to the lab and logged in another < 0.05 ng/mL.
    I am now four years after diagnosis and two years after stopping Dr Tigger's special monkey glands.
    Maybe I will die of something else!
    Now to buy a chicken run and a 200+ hp car!

    Best wishes,

    Georges

  • Old Salt
    Old Salt Member Posts: 1,258 Member
    Looking good

    Again!

    Be careful with that 200 HP car; better stick with a Citroen 2CV?

  • Bill91101
    Bill91101 Member Posts: 81 Member

    Yay, drinkies

    Hi there,

    So I mosied down to the lab and logged in another < 0.05 ng/mL.
    I am now four years after diagnosis and two years after stopping Dr Tigger's special monkey glands.
    Maybe I will die of something else!
    Now to buy a chicken run and a 200+ hp car!

    Best wishes,

    Georges

    Good news, Georges - we can
    Good news, Georges - we can never have too much of that.
    I'll raise a toast with my herbal tea. I started on Gabapentin, so I'm avoiding anything stronger for the time being.
    It's a trip to the lab for me in the next couple of weeks. We'll see how the Xtandi is doing.
    Take care,
    Bill
  • Josephg
    Josephg Member Posts: 368 Member
    edited September 2021 #115
    Great News!

    Great news, Georges.  I'll toast your success with a glass or two of red wine tonight.

  • Georges Calvez
    Georges Calvez Member Posts: 547 Member
    Cooking with gas!

    Hi there,

    Testosterone up to 3.70 ng/mL, 12.84 nmol/L.
    I already have a 140 hp car, going to 200+ is not that much faster as there is a law of diminishing returns.
    Air acts more and more like a fluid as you get faster, plus there is increased rolling resistance, etc, so it is not quite 50% faster.

    Best wishes,

    Georges

  • VascodaGama
    VascodaGama Member Posts: 3,638 Member
    Great results

    Congratulations for the continuing remission. 

    Great story and great results. How about celebrating the occasion in a drive on the Virgin Galactic if you like speed.

    Best

    VG 

  • hewhositsoncushions
    hewhositsoncushions Member Posts: 411 Member

    Yay, drinkies

    Hi there,

    So I mosied down to the lab and logged in another < 0.05 ng/mL.
    I am now four years after diagnosis and two years after stopping Dr Tigger's special monkey glands.
    Maybe I will die of something else!
    Now to buy a chicken run and a 200+ hp car!

    Best wishes,

    Georges

    Nice!!!!

    Nice!!!!

    Every good result is a win!