NED!

Dominick0711
Dominick0711 Member Posts: 99 Member
in Kidney Cancer #1

Hey all, it's been quite some time since I've been on here but I wanted to share some good news.  Almost 2 years out from my partial nephrectomy (January of 2019) and I am NED again on my most recent scans!  Was a little less anxious this go around too, which was great. I am still wiaitng to hear officially from doc but i think they will move me to annual appointments now (according to the PA).

 

I have had shoulder pain, which my doctor at SLOAN says can not be related to cancer but I've never had a bone scan or radiological scan on the shoulder. He has done cat scans of spine, pelvis, kidney, abdominal area, and pelvis.  Should I push more forcefully for a scan of my shoulder. It has gotten progressively worse over the last three years and was bothering me prior to them finding my kidney cancer.  I can't find a doctor who will take it seriously, they all think its related to getting older etc and recommend a cortisone shot.

Comments

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    edited December 2020 #2
    Congrats on NED

    We always like good news.

    Shoulder Pain---Maybe an orthopaedist and an MRI would be the next step.  You could have torn any one of different muscles or tendons.  Your onc. doesn't think it's related to the kidney, so he's not going to do anything.  Start with your PC-Primary Care and get a referral to and Ortho.

    Good luck,

    donna_lee

  • daisybud
    daisybud Member Posts: 541 Member
    edited December 2020 #3
    That's great!

    Happy for you! 

  • Deanie0916
    Deanie0916 Member Posts: 626 Member
    edited December 2020 #4
    Congrats!

    Great news!

  • APny
    APny Member Posts: 1,995 Member
    edited December 2020 #5
    Congrats, so happy for you! I

    Congrats, so happy for you! I agree that you should see an orthopedic doc. Hope you get some resolution.

  • eug91
    eug91 Member Posts: 471 Member
    edited December 2020 #6
    NICE!

    Congrats on the NED! Keep it going! 

    As for the shoulder, agree with the advice above. I injured my shoulder this year, and like all things with my health, I wondered if it could be cancer-related. Orthopedist did an MRI of the shoulder and found nothing out-of-the-ordinary. They fixed me up with a cortisone shot (which was awesome) and physical therapy. 

    Good luck! 

  • stub1969
    stub1969 Member Posts: 978 Member
    #7
    What a wonderful term

    "N.E.D". I'm assuming you had pre-op. scans, correct?   If you did, they would have picked up most any other issue from your neck down.

    Take care!

    Stub

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