What year and age dx?

In 2019 at age 71 I was diagnosed with a mixed tumor. 70% endometriod carcinoma, 30% serous.  Stage 1A, Figo grade 3. No lymph node invasion.  Had surgery, did 6 chemotherapy, 4 brachytherapy.  Finished treatment in Nov. of '19.  Seems it is never far from from my mind.  No reoccurrance at this point.

I was diagnosed at age 56 in January 2018 with endometrioid adenocarcinoma, Grade 1, Stage IVB. It had metastasized to my lungs without stopping anywhere else in between. Chemo (carboplatin and taxol) killed the lung mets, I also had brachytherapy, and have been on hormone therapy since completing chemo in 2018.

Stage IIIC1, High Grade 3, Mixed 50% Endometrioid Adenocarcinoma (EAC) and 50% Uterine Serous Carcinoma (USC)

First day of treatment started with both chemo & radiation, 2 rounds of Cisplatin 3 weeks apart along with 28 external radiation treatments, followed by 4 rounds of carboplatin/paclitaxel targeted every 3 weeks.

I am new to the forum today. Diagnosed by gyn on 13 Nov 2020, age 60. Had radical abdominal hysterectomy plus everything else on Dec 1 as well as removal of 13 lymph nodes of Which 5 came back positive for cancer including 3 in para-aortic region. Starting chemo next week on 16 Dec. This has moved at lightning speed. My surgical staging was 3C2, grade 3. Before surgery it was 3B, G1. I am being tested for Lynch since IHC test came back showing two genes with possible mutations. We are pressing on with the chemo though. Compared to some of you ladies I have only just begun the journey. The shock was tremendous but I had more clarity in my thinking and processing than I've ever had before. There is no doubt in my mind I will do everything I can to wipe this out. I love my treatment team even though I have met them only a few times mostly in the hospital. I trust them completely.

Dak82 said:

2020

I am new to the forum today. Diagnosed by gyn on 13 Nov 2020, age 60. Had radical abdominal hysterectomy plus everything else on Dec 1 as well as removal of 13 lymph nodes of Which 5 came back positive for cancer including 3 in para-aortic region. Starting chemo next week on 16 Dec. This has moved at lightning speed. My surgical staging was 3C2, grade 3. Before surgery it was 3B, G1. I am being tested for Lynch since IHC test came back showing two genes with possible mutations. We are pressing on with the chemo though. Compared to some of you ladies I have only just begun the journey. The shock was tremendous but I had more clarity in my thinking and processing than I've ever had before. There is no doubt in my mind I will do everything I can to wipe this out. I love my treatment team even though I have met them only a few times mostly in the hospital. I trust them completely.

While I'm very sorry that you had to find this site, you'll find that most of us have been through the same process as you'll be starting and can share their experiences to help as you start this unwelcome journey.

Even if you learn that you do have Lynch Syndrome (which I have too), most women still start treatment with chemo. So you may want to read the FAQ at the top of this board's topics. There are two discussions linked there that you might find especially helpful right now: Ladies going through chemo - how are you doing? and Icing

Be sure to sure check back in with us with any questions you have. When you do, I recommend that you start a new topic with your questions so that more members will spot your post easily.

Some of us have added information about our experiences in our site profile. Click on the member's user name to read the profile, where it's available.

Had hysterectomy May 2017. 2nd opinion in Oct 2017. Did 3 chemo and 6 brachytherapy. Recurrence 18 months after frontline. Did 6 more taxol/Carbo chemo. 2 month break and started Keytruda/Lenvima in April 2020 until September. Started Abraxane the end of Oct. My CA-125 has gone from 316 to 98.1 to 36.8 after 2 infusions, so I am hopeful.

Dak82 said:

Thanks for references

CMB thank you for the references. My oncologist was curious about the why of my cancer since I have no other risk factors. One of my sisters, was a bio-patent lawyer which means she is an expert at research and has access to many subscription services. I will happily share whatever she finds and sends to me. I am concerned with LS only in that I have 3 kids entering the ages where LS can influence cancer manifestations, and I have 4 siblings with kids who are interested.

Although both my parents had cancer, neither was "typical" of Lynch Syndrome. My mother's cervical cancer wasn't considered hereditary and my father's colon cancer was diagnosed very late in life – long after the typical presentation of this cancer as a result of Lynch Syndrome. Plus my particular type of uterine cancer (uterine carcinosarcoma or MMMT) isn't the type of uterine cancer typically influenced by Lynch Syndrome. In fact, my insurance company originally refused to cover the genetic testing that I had to confirm the initial pathology findings based on these factors. (I appealed and they did eventually agree to cover the cost).

But while I don't have children, my sister has seven, plus grandchildren. So my three siblings also took the genetic test. Fortunately, my sister with children and my other sister did not inherit Lynch Syndrome, but my brother did. He doesn't have children either, so at least this mutation dies out with us in our direct family line. I also alerted my cousins since we don't know which side of the family has the mutation (both my parents died many years ago). As you say, it's important for other family members to know if they are at risk for cancer from Lynch so they can be proactive.

CeciMcV said:

2014 a los 30 años

Luego de tener a mi primer hijo, me encontraron un tumor en el útero que resultó siendo un carcinosarcoma grado 4 B. Fui sometida a Quimioterapia y luego una histerectomía con conservación de ovarios. Hasta el momento Y PARA SIEMPRE voy a estar sana :-)

CeciMcV, I hope you don't mind I put your text in a translation tool for everyone.  She wrote:

After having my first child, they found a tumor in my uterus that turned out to be a grade 4 B carcinosarcoma. I underwent chemotherapy and then an ovarian sparing hysterectomy. Until now AND I will be healthy FOREVER :-)

NoTimeForCancer said:

CeciMcV, I hope you don't

CeciMcV, I hope you don't mind I put your text in a translation tool for everyone.  She wrote:

After having my first child, they found a tumor in my uterus that turned out to be a grade 4 B carcinosarcoma. I underwent chemotherapy and then an ovarian sparing hysterectomy. Until now AND I will be healthy FOREVER :-)

They usually come back saying all kinds of crazy things. I speak Spanish fluently.

I was diaganosed in May 2009 at age 53 yrs. Stage 2B endometrial andenocarcinoma. The cancer had gone from uterus wall down into cervix. Open surgical procedure to remove uterus, fallopian tubes, ovaries, omemtum, sentinal peri-aortic  lymph node and 26 other lymph nodes. Taxol and Carboplatin every three weeks x3 then 25 external pelvic radiation treatments and 3 brachytherapy (internal vaginal radiation treatments). Followed by another 3 rounds of chemo Taxol and Carboplatin. My 72 year old mother was diagnosed and died at the age of 72 yrs old just 4 years before my diagnosis. I also never had children either. Still have chemo induced neuropathy in feet and fingers which affects my ablility to fall asleep some nights. Due to the lymphedectomy (removal of so many lymph nodes) I have lymphedema (swelling) in both legs and pelvis. Compression stockings are helpful.  Also, where I had pelvic radiation my skin definately feels different -more dry and itchy in the winter time. I am blessed to be a survivor and thankful for my life! As my dear Dad would say when asked how he was, “ Good! I can’t complain.” ???