What year and age dx?

tinacap77

jan9wils said:

June 2014

I was 58 years old. Dx with endometrial adenocarcinoma stage 1B grade 2. Recurred 4 times. Still fighting the fight!

What treatment did you do?

What treatment did you do?

tinacap77

Kaleena said:

Sept 2005, Age 45

I was diagnosed in September 2005 after a "routine" hysterectomy.  I was 45 years old at the time.  Diagnosed with Endometrial Adenocarcinoma Stage 3A, Grade 2 at the time found in my uterus, cervix and left ovary.   They were unable to determine the primary, so they treated it as Ovarian.

Treatment?

Hello: what treatment did you do?

GenevaBe

Diagnosed at 40, just a

Diagnosed at 40, just a couple weeks ago. endocarcinoma of the uterus, grade 1. Scheduling a total hysterectomy including tubes and ovaries. 
GG Grandmother passed of this at 70, but that was back in the early 1900s. Mother needed a hysterectomy in her early 20s but I am unsure why. Sister has PCOS and gestational diabetes. 
I dont meet any of the high risk factors for this sort of cancer. 

ConnieSW

GenevaBe said:

Diagnosed at 40, just a

Diagnosed at 40, just a couple weeks ago. endocarcinoma of the uterus, grade 1. Scheduling a total hysterectomy including tubes and ovaries. 
GG Grandmother passed of this at 70, but that was back in the early 1900s. Mother needed a hysterectomy in her early 20s but I am unsure why. Sister has PCOS and gestational diabetes. 
I dont meet any of the high risk factors for this sort of cancer. 

Geneva

Glad you found your way here.  We will help in any way we can.  I am so sorry you are facing this at such a young age. 

GenevaBe

ConnieSW said:

Geneva

Glad you found your way here.  We will help in any way we can.  I am so sorry you are facing this at such a young age. 

Thank you ?? 

Thank you ?? 

My friends say its just a fast track promotion to Crone lol (the hysterectomy). 
I feel, personally, that if it weren't meant to be happening, then it simply wouldnt be. But my background is in existential psychology which greatly influences my outlook. 

Im glad I found this place too. Reading through the comments this morning has helped ease some confusions or wonderings. 

Kaleena

tinacap77 said:

Treatment?

Hello: what treatment did you do?

Treatment

Carboplatin and Gemzar (I was allergic to Taxol) and then 3 HRD brachytherapy.

MomCat6

Yeo said:

October 2019

Age 55, diagnosed October 2019 carcinosarcoma stage 3.c.1, 1 week later underwent radical hysterectomy, 2 weeks later started chemo. taxol/cabo.  3 rounds, then 28 external radiation treatments, then final 3 rounds  of chemo.,  finished treatment April 2020, 6 month following treatment scan NED.

Nearly identical

Hello, Yeo,

 

Your treatment plan is identical to the one I just began. I was diagnosed w endometrial cancer in July 2019 and had a full radical hysterectomy. It was discoverred at Stage 1, Figo 1 and they did not expect any recurrence given how early it was discovered. Fast forward to Dec 2020 and I was at one of my gyn onc post op exams. A vaginal mass was discovered.  tumor board diagnosed it as a recurrence of my primary endometrial cancer though I no longer have an endometrium or uterus. Adenocarcinoma. St 3. Because they did not expect a recurrence, they decided to reccommend an aggressive treatment rather than just locally treating the vagima mass. I just had my first chemo last week. 6-7 hours infusion. Paclitaxol and Carboplatin. I will have 2 more chemo sessions then 25 radiation, 3 internal radiation treatments then 3 more chemos.

I came through my first  session okay. Spent 9 days barely out of bed-just too weak. Itching top to bottom. some nausea. Really uncomfortable bone pain. I discovered my first hair loss beginning today. Ironically, it is pubic hair. Didnt really expect that. I'm apprehensive about the whole treatment plan. this stuff is harsh on a body. So many people have bad side effects. I guess I will continue but I definitely am not enthusiastic about doing so. 

If you ever see this, I have a few questions:

What is NED?

How are you doing now?

Any regrets about treatment plan?

I hope you are well and doing great!

 

 

Molly110

MomCat6 said:

Nearly identical

Hello, Yeo,

 

Your treatment plan is identical to the one I just began. I was diagnosed w endometrial cancer in July 2019 and had a full radical hysterectomy. It was discoverred at Stage 1, Figo 1 and they did not expect any recurrence given how early it was discovered. Fast forward to Dec 2020 and I was at one of my gyn onc post op exams. A vaginal mass was discovered.  tumor board diagnosed it as a recurrence of my primary endometrial cancer though I no longer have an endometrium or uterus. Adenocarcinoma. St 3. Because they did not expect a recurrence, they decided to reccommend an aggressive treatment rather than just locally treating the vagima mass. I just had my first chemo last week. 6-7 hours infusion. Paclitaxol and Carboplatin. I will have 2 more chemo sessions then 25 radiation, 3 internal radiation treatments then 3 more chemos.

I came through my first  session okay. Spent 9 days barely out of bed-just too weak. Itching top to bottom. some nausea. Really uncomfortable bone pain. I discovered my first hair loss beginning today. Ironically, it is pubic hair. Didnt really expect that. I'm apprehensive about the whole treatment plan. this stuff is harsh on a body. So many people have bad side effects. I guess I will continue but I definitely am not enthusiastic about doing so. 

If you ever see this, I have a few questions:

What is NED?

How are you doing now?

Any regrets about treatment plan?

I hope you are well and doing great!

 

 

MomCat, I'm sorry you are

MomCat, I'm sorry you are dealing with a recurrence. Since this is an old thread, you might want to start a new one so that more people will see it, including Yeo.

NED means "no evidence of disease." It took me weeks to figure that out. I think people use it when there is no sig of cancer but it is too early to considered themselves cured. I believe, but am not sure, that some women always use NED no matter how many years they have made it without a recurrence. 

I had a different kind of uterine cancer than you, but my chemo was the same. I'm so sorry that you're having a tough time with it. Except for the first one, I had an easy time with the chemo. My gynecologist/oncologist thinks I may have been reacting to my first exposure to the castor oil in the taxol. Your care team should be able to help you with any side effects you're experiencing, especially nausea. I didn't have nausea, but they'd prescribed anti nausea meds beforehand just in case.

I think most women on this chemo regimen lose their pubic hair. I think your care team should have prepared you so that you wouldn't have been suprised, if it distressed you. 

Warm best wishes for an easier time.

Molly  p.s. I love your name. I've only ever had one cat, and her name was Mom Cat.