appendix cancer

margaretg1954
margaretg1954 Member Posts: 1
edited December 2022 in Rare and Other Cancers #1

being treated with folfox for cancer o the appendix...anyone know anything...

Comments

  • Lovely_63
    Lovely_63 Member Posts: 2
    edited September 2020 #2
    I was just diagnosed with

    I was just diagnosed with appendeceal cancer which was undetected.  They thought it was ovarian cancer but it started in the appendix and spread to the ovaries.  It was removed and now they are talking about another surgery called HIPEC.  All pathology reports showed no malignacies but they want to be sure there are no cells left behind.

  • Dorsann30
    Dorsann30 Member Posts: 1
    edited October 2020 #3
    Appendix cancer

    I was diagnosed with a neuroendocrine carcinoid in my appendix.   I had a right hand assisted hemichikectomy in January if 2019

     

  • abrub
    abrub Member Posts: 2,174 Member
    edited October 2020 #4
    Lovely_63 said:

    I was just diagnosed with

    I was just diagnosed with appendeceal cancer which was undetected.  They thought it was ovarian cancer but it started in the appendix and spread to the ovaries.  It was removed and now they are talking about another surgery called HIPEC.  All pathology reports showed no malignacies but they want to be sure there are no cells left behind.

    Hipec is a standard treatment for appendix cancer

    Where are you getting care?  I was diagnosed with strange 4 appendix cancer,  fortune on my ovary in 2007.

    Pm me if you'd like

  • ckusa21
    ckusa21 Member Posts: 4 Member
    #5
    Dorsann30 said:

    Appendix cancer

    I was diagnosed with a neuroendocrine carcinoid in my appendix.   I had a right hand assisted hemichikectomy in January if 2019

     

    Appendix cancer

    Hope you're well. What kind of treatment are you on?

  • ckusa21
    ckusa21 Member Posts: 4 Member
    #6
    Lovely_63 said:

    I was just diagnosed with

    I was just diagnosed with appendeceal cancer which was undetected.  They thought it was ovarian cancer but it started in the appendix and spread to the ovaries.  It was removed and now they are talking about another surgery called HIPEC.  All pathology reports showed no malignacies but they want to be sure there are no cells left behind.

    Appendix cancer

    What type of cancer cell was diagnosed?

  • Amy_B
    Amy_B Member Posts: 5 Member
    #7

    I was treated last year for stage 4, high grade appendix cancer that metastasized to the peritoneum & diaphragm. There is a private Facebook group and non-profit group dedicated to us appendix cancer warriors. Links below:

    https://pmppals.net/

    https://www.facebook.com/groups/PMPAppendixCancerSupportGroup/?ref=share

  • farraleeaouellette
    farraleeaouellette Member Posts: 4 Member
    #8

    Lovely-63 I was sick for 2 years and 2 months before getting my diagnosis of appendiceal cancer psuedomyoxoma peritonei. I underwent a laparoscopy with the ob/gyn dead Set on I had endometriosis. They called a 3rd surgeon into operating room as something looked off with my appendix. That was October 15, 2019.since then I've had 3 additional surgeries, 2 of them HIPEC was used. Hipec stands for heated intraperitoneal chemotherapy. The chemo was put into my abdomen during surgery. Then I was rocked for 90 minutes to make the chemo spread through my abdomen. I will be undergoing lots of abdominal surgeries as I've been told that is the only treatment. It is impossible for surgeons to remove every cancer cell in my abdomen. I deal with chronic daily nausea and vomiting. I deal with chronic abdominal pain from all the surgeries.

    If they use Hipec prepare yourself mentally. I had no time to prepare myself and it was bad. I had 3 weeks between my first two surgeries and 2 weeks between the other two. At one point the hipec caused me to hallucinate. Got creeped out.

    Make sure you see a specialist for the appendix cancer. Acpmp website has a list of states with providers. Make sure you ask questions. Make sure you understand what providers are saying to you.

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