Stanford Cancer Survivorship Program

donna_lee said:

That sounds pretty good.

After I had the 2 recurrences, about 5 years after the 3rd surgery, the Dr. went to US of the abdomen/pelvis; and because of the mets to the liver, also a chest x-ray.  We don't have a Survivorship Program here, but I've seen what the one in Seattle does, and it is probably similar.

Today, I enter the next phase of having one kidney...seeing a nephrologist.  My eGFR has slowly dropped and I'm in the 3B range.  Yuck.

Good luck on your journey-pleasant I hope.

Hugs,

donna_lee

Thanks Donna.  I'm pretty sure it will be pleasant.....and probably interesting.

stub1969 said:

My second primary cancer results....

During my baseline scans after I was first diagnosed, my thyroid lit up.  Mets to the thyroid was not unheard of, but my doctor thought it was more likely a second primary cancer.  He was right--a couple of days after my surgery I traveled back to Rochester so doctors could do a biopsy of my thyroid.  Turns out it was papillary thyroid cancer and a month later I was on the table again for a thyroidectomy.  I've been traveling to Rochester for the annual thyroid US ever since.  In my last report, they mentioned they will move me to the Mayo cancer survivor program if my next scan is clear.  I'm not sure what this involves, but some strange sense of relief--even a sense of victory came over me as I read the words in the report.   I'm hopeful I see the same words in the kidney scan report later this week. 

 

Wishing you continued good health, Bay!

Stub   

Thanks Stub!  Your kidney results will be fine.  We'll be toasting in no time, along with all of our mid-2016 colleagues.

a_oaklee said:

Thankyou for the information.

Thankyou for the information.  I went to the website to check it out.  After you get involved in this program, I would really like to hear how its working out for you.

My husband had/has a Palliative Care doctor throughout this entire process.  From what I read on the website, it sounds like it is similar.  She is my favorite doctor, and I think it would be great for everyone to have that experience.  She guided us in having the best quality of life.  The visits lasted an hour.  We couldnt get that time and attention from surgeons and oncologists.  I understand that they deal with their speciality, and make referrals.  

I'm not sure when I will be getting an appointment.  The appointment notes do say that I'll be referred to them.  However, since I have no idea if my present insurance would pay for this, I'll likely wait for a couple of months when I get on to Medicare (sigh at getting old) and a good Medicare supplement plan that a former employee offers for their retirees.  I've looked up the information there and they seem to indicate the I can self-refer to pretty much any doctor that takes Medicare.

jazzgirl said:

Medicare??

Never, ever, never would I guess from your photo that you are near joining the Medicare cohort! Must be all the interesting travel - and sushi. I'll be asking my doc some insurance questions, and whether there is a Stanford-like program near me. Take care -

Ah. bless you child.  LOL. The picture is from our one trip to Beijing, about 8 years ago.  We went with my wife's sister and her husband, and met one of her cousins from Singapore there for five or six days.  The picture is from a park across from the Forbidden City.