Updates

Hi, I'm Kelly. I was diagnosed with IDC on 3/28/2019, 2.5 cm, Grade 2, Stage IA, ER, PR+, HER2-. Left mastectomy on 4/24/2019, DCIS also found 5 cm. Clear margins and no lymph node involvement, BRCA-. Today I see oncologist to learn my Oncotype score and determine whether chemo will be part of my treatment. I feel like I have waited so long for this and am very nervous. If I'm honest, I want chemo. I want to use every treatment possible to be sure the cancer is gone. I don't understand though how if the breast is gone, margins were clear and no lymph node involvement, what exactly the chemo will be fighting. My oncologist mentioned something about cancer spores. Does anyone have information on cancer spores? Thanks for any information! 

Hi. Was diagnosed 2007 Dec stage 2 breast cancer with some lymph node involvement. Mastectomy, chemo radiation and 5 years of tamoxifen completed. Then April 2017 metastasis to bone in shoulder area so I’m stage 4. Currently on Femara and a new medication called Ribociclib ( clinical trials). So far I’m blessed with some minor aches and pains, dry skin and lousy hair. I thank God I’m still able to work and carry on without too much difficulty and most of my working colleagues don’t even know that I’m ill. I have a wonderful family and great awesome friends that pray for me and are my ardent supporters. Prayers and love to all. Annie ( that’s me name too)

Hi, mine is triple negative breast cancer found in Nov. 2018. Started Chemo in December. Had surgery in March, that chemo treatment didn't kill the cancer. Surgery, got the tumor, margins were clear, 3 lymph nodes involved, 11 removed. It was Stage 2B. Today will be radiation day 10, and so far I am doing well with that.  I will have 28 treatments, if that goes well I will have a 5 day "boost". I am having the whole breast, under the arm and the clavical area done. The doctor wants to do it all so we don't have any regrets down the road. I will start Xeloda for six months after radiation. When that is done I will go into a trial for Pembrolizumab. I hope to chosen to recieve the drug. I am doing everything I can to fight this tooth and nail. My heart goes out to everyone here.  

I found a lump in my breast j  December of 2018.  In January 2019, I was diagnosed with breast cancer - ER+.  I was scanned poeked. and consulted for the next few months and worried about waiting for any intervention.  Everyone seemed to be in such a hurry to do "something".  I got second opinions.  One of the Cancer surviivors I talked to said that she was told that in Canada, sometimes they waint 3-4 months before initiating treatment.  A lot depends on the type and stage.  My first suregery was April 2019 with a bioposy of 2 sedentary lymph nodes.  They were both positive for cancer.  On April 18, 2019, I had my second surgery and 15 lymph nodes were removed.  They were all negative.  My cancer is classified as Stage 2 A.  I am 72 years old.  I have done a some of researach on treatments after surgery.   I have decided not to do radiation - I may possibly want to do reconstruction.  I have opted not to do chemo as I do not want to spend the next 2=3 years of my life merely surviving the effects of chemo and the rest of my life surviving the long term effects.   If I were younger, my five children not all settled and doing well and my husband were still alive, I might consider it.  I do not think I will do the hormone therapy either.   I feel like I want to live.  right now I am dealing with the effects of nerve damage, pain and weakness in my right arm after surgery, possily some lymphadema.  AThat is enough for me right now.  I am sending prayers, love and positive thoughts to all who are going thru this and choices to make.

Great to hear. Annie, did you have bone pain using Ribociclib? And if so what did you use to ease it? I’m in stage four met to spine from breast cancer. I’m 3 years out and just recently started Fulvestrant and will start Ribociclib. Any suggestions would help. I couldn’t tolerate the aromatase inhibitors due to the pain they caused.