6 Month NED

skidog
skidog Member Posts: 74 Member
in Head and Neck Cancer #1

Hello. sorry I forgot to post this earlier. Had my 6 month post Proton beam rads treatment for right side tonsil and rifght lymph node SCC. My ENT said all looked great. She went on to say after scoping my throat..." i would challenge any doctor to find any evidence that you received 6 weeks of radiation for HNC". I still have some dry mouth on the right side at night ( I am a mouth breather when sleeping) and my taste is about 80%...hoping to get to 100%. My ENT is at a different hospital from Mayo Clinic where I received 6 weeks of daily Proton beam Rads. She had never examined a patient that had Proton beam...only Photon rads at their hospital. She was extremely impressed with my results. If any of you have an option to receeive Proton beam rads...I would strongly recommend. 

Comments

  • Barbaraek
    Barbaraek Member Posts: 626
    #2
    That’s great news

    And may your journey continue to be free of complications! Congrats on NED!

    Barbaraek

  • wbcgaruss
    wbcgaruss Member Posts: 2,484 Member
    #3
    Congratulations on Your

    Clear and Lookin Good 6 month checkup. You are through the treatment and You're headin in the right direction. Thanks for the tip on types of radiation it must make a difference if your ENT was impressed. God Bless and may you have many more clear checkups.

  • skidog
    skidog Member Posts: 74 Member
    #4
    Barbaraek said:

    That’s great news

    And may your journey continue to be free of complications! Congrats on NED!

    Barbaraek

    Barbaraek

    Thank you!

  • skidog
    skidog Member Posts: 74 Member
    #5
    wbcgaruss said:

    Congratulations on Your

    Clear and Lookin Good 6 month checkup. You are through the treatment and You're headin in the right direction. Thanks for the tip on types of radiation it must make a difference if your ENT was impressed. God Bless and may you have many more clear checkups.

    wbcgaruss

    Thank you!

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #6
    6 MONTH NED

    Skidog,

    Congratulations on your 6 month NED!

    I hope you have many more.

    Matt

     

    sd

  • ERomanO
    ERomanO Member Posts: 323 Member
    #7
    Congratulations, skidog!

    I had my 6 month NED in Dec.  It's a good feeling, eh?  The surgeon on my team scopes my throat each time and there was no evidence of any scarring whatsoever at the primary location (BOT).  The dry mouth was gettting much better up through Dec, but the cold winter weather made it do a 180° turn and now it's kinda bad.  If you only have minimal dry mouth consider it a true blessing!

  • skidog
    skidog Member Posts: 74 Member
    #8
    CivilMatt said:

    6 MONTH NED

    Skidog,

    Congratulations on your 6 month NED!

    I hope you have many more.

    Matt

     

    sd

    Ha Ha

    THAT IS AWESOME!! Thanks Matt! You have talent there young man!

  • skidog
    skidog Member Posts: 74 Member
    #9
    ERomanO said:

    Congratulations, skidog!

    I had my 6 month NED in Dec.  It's a good feeling, eh?  The surgeon on my team scopes my throat each time and there was no evidence of any scarring whatsoever at the primary location (BOT).  The dry mouth was gettting much better up through Dec, but the cold winter weather made it do a 180° turn and now it's kinda bad.  If you only have minimal dry mouth consider it a true blessing!

    Thanks ERomanO

    I appreciate your encouragement. I'm glad to hear you are doing well too! NED to infinity and beyond!!!

  • patricke
    patricke Member Posts: 570 Member
    #10
    CONGRATULATIONS

    Congratulattions Skidog, I hope that this is the first of continuous post exam NED results that you will be receiving!  Keep It Mov'in Forward!

  • big G
    big G Member Posts: 177 Member
    #11
    patricke said:

    CONGRATULATIONS

    Congratulattions Skidog, I hope that this is the first of continuous post exam NED results that you will be receiving!  Keep It Mov'in Forward!

    keep on keeping on

    Congrats on the 6 months NED, and hope there are many more for you!

  • Chris50
    Chris50 Member Posts: 14 Member
    #12
    Congratulations Skidog!

    Here’s to many more NED results going forward.  I have heard great things about Proton Beam Therapy.  It should give all of us hope to see ongoing advances in the treatment of cancer.  IMRt radiation was itself an advance that more precisely targeted tumor sites thereby causing less damage to adjacent, healthy tissue, and now with Proton Beam therapy the radiation treatment component is even more precise and less damaging.  When I recently went in for a check up my radiation oncologist said that clinical trial are advancing  that the future treatments  likely include a combination of immunotherapies with highly targeted radiation.  God forbid recurrence, but I do take some solace in the  treatment options.  

     

    But most importantly, congratulations!

     

    chris50

Discussion Boards