MMMT complications (met @ bone)

Hello everyone. I want to start by saying thank goodness for all of you because as I struggle to wrap my mind around my mom’s diagnosis  I am comforted and encouraged by your journies. You all are so brave and selfless to share your stories in an effort to help others. 

My mom was diagnosed with MMMT in July and immediately started chemo (taxol) the first two rounds went relatively well and then she had a bad allergic reaction to the third so the started her on Carbo which did nothing but make her sick. Now she is dealing with ascites (fluid in the belly) which was drained twice but since it keeps accumulatin, she had a catheter So that we can drain daily at home. We also have to do at-home hydration because she can’t keep food down. She has lost so much weight from not being able to eat. 

Today she had an appointment where the doctor scheduled her for a new chemo treatment starting tomorrow. I really hope this one takes. I don’t want to get discouraged even though I’m so scared. My mom is 59 and this time last year she was an energetic, vibrant lady full of life. She said she’s going to fight no matter what. I hope she keeps that fighting spirit. I’m rooting for you all. Keep fighting the good fight!

8cloud welcome to our group. Im sorry you have to be here but its a great place for sopport. Thanks for sharing your journey with us. I too hope your moms next chemo works. I was diagnosed with MMMT uterine cancer stage 2 grade 3 may of 2016. Sounds like youand your mom are doing what needs to be done. 

janaes said:

8cloud welcome to our group.

8cloud welcome to our group. Im sorry you have to be here but its a great place for sopport. Thanks for sharing your journey with us. I too hope your moms next chemo works. I was diagnosed with MMMT uterine cancer stage 2 grade 3 may of 2016. Sounds like youand your mom are doing what needs to be done. 

 

i Hope today brings you closer to healing. It just sucks that you have to go through this. What’s crazy is that I didn’t know there were grades to this Until I joined this group. No one ever told us the stage or grade of my mom’s MMMT. I feel like I really don’t want to know. What I do know is that according to the doctor the disease is such that he doesnt think it would be amenable to surgery. So with surgery off the table, im really hoping this chemo does what it needs to. she is going through so much and I feel helpless. 

Northwoodsgirl said:

8Cloud

8Cloud, You are a blessing in your Mother’s life no matter what. She needs your optimism and encouragement in small and quite ways as she fights her cancer. 

Please know I am keeping you and your Mother in my prayers dear one....

You need to remember to take care of yourself in order to help and care for your Mom. It is so hard to be the daughter when you also have to be the advocate and caretaker. 

I also took care of my Mom when she had uterine cancer which she did not survive. Please remember there is always hope despite the survival predictions. 

Peace and grace, 

Lori

Im so very sorry for your loss. You’re amazing to reach out to others as you grieve. I’m sitting in my mom’s hospital room watching her struggle and my heart is breaking apart. I don’t want to eat because she can’t eat. My brain knows I have to take care of myself but my Emotions are focused on her. I have no appetite. My stomach is in knots. This has become one big waiting game. This chemo feels like our Hail Mary half-court shot. It truly is in God’s hands. 

Thank you so much for your Prayers and kind words. It is getting me through this difficult night 

8Cloud, my heart breaks for you.  Your mother certainly raised a loving daughter.  Don't hesitate to be her advocate when she can't be one for herself.  

NoTimeForCancer said:

8Cloud, my heart breaks for

8Cloud, my heart breaks for you.  Your mother certainly raised a loving daughter.  Don't hesitate to be her advocate when she can't be one for herself.  

i hope things are better for your mom. Please tell her she has a lot of women she doesn't know rooting for her. 

Shawnhrsn,  welcome to our forum. As we say im sorry you have to be here but am glad you found support. This is a great place to find that.  Two and a half years a go i found this place and found much love and support. I was diagnosed with MMMt uterine cancer stage 2 grade 3. I have been done with treatments in november it will be two years. I wish your mom the best as you guys go forward.

I am sorry you are having to deal with all that is to come with your Mom’s diagnosis. Just having an appointment at a cancer center starts the journey to fighting this awful disease. 

There are so many daughters of mothers who have some type of uterine cancer... It reminds us all that cancer strikes families and not just the individual in so many common ways. 

As I reminded 8Cloud, please try to take care of yourself so you can help your Mom. You are under more stress than you may realize. Remind yourself that you are strong and resilient and try to stay focus on dealing with one day at a time. 

Lori 

SandyD said:

MMMT resource and hope

Hi wynterpeak,

I was also diagnosed with uterine MMMT (also called carcinosarcoma). I was fortunate to be diagnosed with an early stage although still had to deal with a recurrence which was treated. I am now NED and it's been 3 years since my initial diagnosis. I want to let you know about the MMMT Facebook group. It is quite large (now at about 700 members). It is open to family members as well as MMMT patients. The group has been maintaining statistics over the time the group has been in existence and there are members, including those with stage 3 or 4, who are long term survivors (10 years or more). Because of the size of the group it is a good place to go to learn about different treatments and followup care since there are women who have experience with a wide range of treatments. Hoping for the best for you and your mother. 

Thank you for telling us about the Facebook group! Survivors of 10 years or more! Wow! My mom had a hysterectomy yesterday. It was contained in the uterus. We are awaiting the pathology reports to see if what type of treatment is suggested.

Wynterpeak, I am sorry to hear this news.  Has your mother been told and what is it she wants to do?