PET scan results today

ricksmithgolfer said:

Awesome!

I am in my last week of treatment for Tonsil / lymph node cancer. Congrats on your NED. what a blessing. Personally, I have been fortunate and handles the treatment very well. No PEG Tube and am still able to swallow my boost shakes no problem. My biggest problem was losing my taste and saliva late in week #3. I just can not eat anything. I definitely under estimated the loss of taste thing. You mention your taste has returned already. Were you like me and lost all your taste? I find this to be one of my biggest fears right now - maybe never getting my taste back. Did your taste come back all at the same time or a little week by week? Again, congrats on your scan coming back cancer free my fellow cancer warrior. I'm so happy for you.

I had the same cancer right tonsil three node affected and removed. I had seven weeks of radiation M-F chemo every Monday. I faired pretty well until the 6th week, lost taste and burn on neck started to get bad, but never really had a sore throat or issues with swallowing. The fact I couldn’t taste any food altered me from eating so I lost a good amount of weight. I would say taste gradually started coming back a month out of treatment and improved from there, my last treatment was June 15th and here I am September 12th and all taste has returned. Sending prayers you fair as well as I did and just know the taste will return but I also know it’s an awful feeling while going through it and waiting for it to return. Just know this isn’t your forever place this is just a sucky bump in the road!! Prayers to you....