Getting on that roller coaster again, ugh - Update

I thought I was on the clear already with all my organs clear since last year only for that single lung nodule.  I'm still about to meet with my onco on what he would suggest but I'm more inclined to have the VATS as soon as possible so I can start from there.  I'm praying its benign but the possibility of it being a met or a primary is still open.  I've been down but having the surgery gives me hope. Good luck to us.

Hello,

4 thoracic surgeries here including 2 VATS. All went well at Stanford. its 12 years now after stage 4 dx. i still ski and surf and can do most things after the surgery. All my best

Chip

traci43 said:

plsletitrain

You must live in the desert or So Cal with a name like that!  I live in So Cal and would love more rain.

I'd love for mine to be benign, but since it lights up on PET, I'm not holding my breath for that.  I would prefer colon met over lung primary.  Odd thing is I have had a nodule in my right lung since my first CT Scan in 2007, it's never grown and has actually shrunk now, so we have considered it benign.  When the covering oncologist's nurse-yes not even the covering oncologist (mine was on vacation) spoke to me she never mentioned right or left so I thought it was the benign one in the right lung and said I would wait for my oncologist to return and discuss with him. I totally dismissed it!  Boy was I surprised when the covering oncologist called later in the week and mentioned my left lung. That changed everything.

Hopefully your nodule is benign and not a met. I haven't been on in a long time so I don't know if you had a PET scan and it showed activity, I hope not.  It could be benign like mine in my right lung.  In any case, I hope you get the answers you need.  Traci

Sadly, it did grow and its SUV increased so there's a kinda a big possibility that its cancerous.  I do believe in miracles though so I'm praying for one, that its benign.  Nonetheless, if indeed its cancerous, at least we're taking steps to eradicate.  Starting with the VATS first then I'll move from there.  Here's to hoping for speedy recovery for both of us.  And of course, that our nodules are benign.  Take care.  Keep us posted.

HI Traci-newbie on this forum. I was diagnosed with stage 4 with one met to omentum, discovered because appendix ruptured due to the mass blocking off the neck of appendix.m and possible met to lung via CT scan. After srugery to remove colon and omentum mass I had a lung bx that showed mets to Right lower lung, 2 small nodules one slighlty larger than 1cm, one smalller. I was in Northern Va. for this treatment as I was visiting family.  The next step was to have a PET scan when I returned to AZ, the larger lung mass showed up, the smaller not so much.  I was encouraged by oncologist I had in NOrthern Virginina to consider lung resection  and was planning to do so, The oncologist in AZ ordered a high resolution CT scan of lungs  and the radiologist discovered what he thought probable lung mets less than .5 cm in both lungs...too small for PET scan. Oth oncologist then recommended FOLFOX and no lung surgery. So its a tricky thing with lung mets. My personal thought was I know that these cancer cells have been all through my bloodstream so I am happy to do chemo and rescan after 3 months--well as happy as you cn be to be wiped out lol!

traci43 said:

thanks!

Alice, thanks.  I hope you're doing well after your recurrance a year or two ago (I can't remember, sorry).  I will be doing the VATS survery and just a wedge recection, not a lobectomy, so only 1 night in hospital and 2 weeks at home.  Traci

But we're doing watch and wait.  Over all, I'm doing very well. The newest tumor is growing by slowly,  and hopefully we won't have to do anything for several years.  Wishing you an easy surgery and uneventful recovery.   Alice

Look into Lions mane mushroom extract.  NIH has a study that shows that has anti-cancer properties and can prevent colon cancer from meta to the lungs.  Best source is in Netherlands from Oriveda- but can be shipped to US.  

I had grade 4 peripheral neuropathy from oxalaplatin and was told that it was likely permanent.  Got Lions mane  and it was 50% better in 4 days.  Now after 3 weeks it is almost gone.  Had no feeling in my fingers from  Sept. 2017 till now.