confused

You have only been diagnosed with pneumonia. With a concurrent infection, I have no idea why a doctor would drop the C word. Which nodes, and how many? If they are in the throat/airway/lung vicinity, the pneumonia is a perfect explantion for their reacting. I would be far more concerned about the D-Dimer level - if they explained that to you. A thrombosis, depending on its location and behavior, can halt your life instantly.

Pick a different hospital! Or, at least a doctor with a filter. Some things we think but don't say. If only those who vowed to 'do no harm' would remember that. From a grainy picture, he zeroes in on cancer. Good that things are not always what they seem. He might have seen a similar image in a lymphoma patient who went on to develop pneumonia, but this is only a confirmed case of pneumonia. Let's see, no physician here, but the mediastinum is right there next to those lungs that have pneumonia. Mediastinal lymph nodes react to infection, carrying infection-fighting lymphocytes to the area, and dead virus cells away from it. I see no rocket science there. What, did this doctor get his medical degree by watching the DVD series "House"?

Just watch for additional or worsening symptoms. If it is any consolation, lymphoma can be worse to worry about than to actually have. But, that's just me.

Expecting cancer since my 20s, I found a tumor behind my left ear at 55. There are some things that you just know. 60% of dad's side, including dad, fell to cancer. But, try to convince anyone what it was! My GP had just retired and the noob replacement was clueless. I got antibiotics and some blood work (useles for lymphoma). Then, many nore visible nodes, spiking fevers, weight loss, fatigue and absolutely drenching night sweats. Went back and diagnosed myself with doc as wotness. "Do I have mono?" More blood tests. I had mononucleosis for the second time!

"Then, my immune systen has failed!" I said. I got anxiety meds, which I still have. Left and never wet back. Went to ENT, a straight up guy. He dropped the L word and said we have to get one of those nodes out - you could se them from 50 feet away. His schedule was filled. DW called and found an independent surgeon who could take one out that week. He said, "Nothing against the older guys (doctors), but as they reach retirement age, they are not at the top of their game. If you ever hear a doctor say the word 'wait', run for your life!" He referred me to a local oncologist whom he trusted.

Went there. He just left on 2 weeks vacation, but could see his partner. Fine....Ick! 70 years old! Did marrow biopsy and pathologist saw no cancer. He wanted to "wait" We ran. DW had already made an appointment at Fred Hutchinson/SCCA and we got an initial consult with the sharpest doctor that I have ever seen. He ha much more sophsisticated testing dones and confirmed Peripheral T-Cell Lymphoma, Not Otherwise specified. Stage IV, The pathologist stopped counting at 50 tumors ('innumerable" the report said) and lymphoma in my bone marrow. This began a 10 uear odyssey that has not stopped yet.

Said doctor had just then specialized in the rare T-Cell Lymphomas. A match made in heaven, especially so since I had no diagnosis on my arrival. But, the diagnostic process took two full months.  

Evarista said:

I have to disagree

Your ER doctor would not have been the one drawing the conclusion of possible lymphoma.  S/He would have been communicating the impressions from the RADIOLOGIST who read and reported the results of your CT scan.  That report may have said something like this (I am quoting from my own 1st CT scan):  "IMPRESSION: 1. Multiple enlarged pelvic and retroperitoneal lymph nodes are most worrisome for lymphoma versus metastatic disease." or similar language that included the word "lymphoma". If the Radiologist noted suspected lymphoma in his/her report, the ER doctor would have been seriously remiss or possibly guilty of medical malpractice if s/he did not pass that information on to the patient (= you). 

I do agree with YesYes that you should follow up on this with a reliable oncologist (preferably a Hem-Onc specialist) ASAP.  If you can do that within the same medical system, the oncologist can review the CT scan and radiology notes directly.  If you must be seen somewhere else, take a print out of the radiology report with you.  If you do not have that report, get it from the hospital where you had the scan done.  Good luck to you.

 

What exactly are you disagreeing with?

Evarista said:

I have to disagree

Your ER doctor would not have been the one drawing the conclusion of possible lymphoma.  S/He would have been communicating the impressions from the RADIOLOGIST who read and reported the results of your CT scan.  That report may have said something like this (I am quoting from my own 1st CT scan):  "IMPRESSION: 1. Multiple enlarged pelvic and retroperitoneal lymph nodes are most worrisome for lymphoma versus metastatic disease." or similar language that included the word "lymphoma". If the Radiologist noted suspected lymphoma in his/her report, the ER doctor would have been seriously remiss or possibly guilty of medical malpractice if s/he did not pass that information on to the patient (= you). 

I do agree with YesYes that you should follow up on this with a reliable oncologist (preferably a Hem-Onc specialist) ASAP.  If you can do that within the same medical system, the oncologist can review the CT scan and radiology notes directly.  If you must be seen somewhere else, take a print out of the radiology report with you.  If you do not have that report, get it from the hospital where you had the scan done.  Good luck to you.

 

Years ago my one niece (lived in another state) went to the ER because of severe constipation. The ER DR told her she had stage 4 colon cancer and should go home and get her personal stuff in order. Her dad flew out there that night and the next day got her to a cancer center. They confirmed the diagnosis but said it was treatable. She did survive a little over a year which was significantly longer than what the Dr in the ER said. 

My husband was diagnosed with lymphoma with b cells, after almost 3 weeks. The docotor said he would send his records to an oncology doctor, and we havent heard anything. i mean really

how long does it take to send records, meanwhile this growth on his neck keeps growing.  No one really seeems to care.

Dear all...not sure ifor anyone actually remembers me. I was a member of this board 3 and half years ago when my brother was diagnosed with colon cancer. Kevin sadly passed away 6 months later. I am here again 3 and half years later feeling heavily weighed down as face the similar challenge with my 68 yrs old mom. Mom was diagnosed in March 2017 with low grade lymphoma with multiple masses in the groin. She has attempted chemo but failed hopelessly at it due to constant infection and low platelets. The oncologist changed trearmost to radiation and thereafter stopped the treatment telling her that the masses have shrunk but not cured. I am extremely confused at this gesture as I am aware if cancer is untreated it will triplicate bexcuse she has an aggressive cancer. Is there a chance that her condition is worsening as I watch her become strengthless, always tired, feeling weak and her inability to walk unaided. 

Can somebody please help me understand what could be happening inside her body...

My blessings to you all.

Love and light

I guess I was extremely lucky. I went to ER with high temperatures that i had 4 nights. I also had stomach pains. They did CT scan and admitted me. They told me they suspected lymphoma. The doctor recommended a biopsy. 2 days after biopsy I had diagnosi, had port implanted and my 1st round of chemo.

I hope you find answers soon.