Paraganglioma carotid body


Can anyone recommend a center of excellence or surgeon for removal of this rare tumor?  My 23 year-old daughter was just diagnosed and we are searching the country for the best surgery team to resect this tumor.


  • johnsonbl
    johnsonbl Member Posts: 266 Member
    The below list is a pretty good place to start...


    I'm at the University of Iowa Hospitals and Clinics which is #5 on this list...but we're likely a low volume center as Iowa has only 3M people...  Somewhere like a Hopkins or UCLA have a much larger base of patients and thus probably a higher volume of these cases done.  Good luck.