Husbands first Chemo today 5hrs came home with Pack for two days stage 4 colon cancer with liver met

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Comments

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    edited February 2018 #42
    impactzone said:

    So sorry for all the new

    So sorry for all the new people and their loved ones. Lots of advice out and here are some of mine:  be an advocate for yourself, be agressive in treatments, don't worry if you feel bad as that always was a sign that something was working..eat healthy...fall down seven but stand up eight... surround yourself with as much positive as possible... what is written on the internet may or may not help... if religion helps - use it.. change viewing habits to something fun and lighter... ask questions.... a slower infusion time can make side effects less... its never too late...nurses are your best friend... you will wait a lot - bring something to read that matters. Whenever I got feeling really sorry, I walked over to the Lucile Packard Children's Hospital and saw true unfairness, strength, love and hope.

    All my best to all

    Hitting the LIKE button

    Great advice!

    Tru

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    edited February 2018 #43
    Robjoe

    The anxiety and worrying is very normal.  I think anyone who says they're all smiles while going through all of this is lying.  As to your question on if it is safe to wait until beginning of April to know where you're at, I guess there's nothing wrong if you bug your doctors to any question.  I think it is your right as a patient or caregiver to be informed of the status of everything.  You just have to talk it over to your doc, anytime.  

    Welcome to the site and I hope there's no new members here anymore.  Ugh.

  • Robjoe
    Robjoe Member Posts: 6
    #44
    plsletitrain said:

    Robjoe

    The anxiety and worrying is very normal.  I think anyone who says they're all smiles while going through all of this is lying.  As to your question on if it is safe to wait until beginning of April to know where you're at, I guess there's nothing wrong if you bug your doctors to any question.  I think it is your right as a patient or caregiver to be informed of the status of everything.  You just have to talk it over to your doc, anytime.  

    Welcome to the site and I hope there's no new members here anymore.  Ugh.

    I spoke to the Mayo Clinic

    I spoke to the Mayo Clinic personally today and after his 3rd treatment, we go down.  That’s March 21.  I think in reasoning it in my head all night, I’m very ok with that, as in my uninformed mind, it will be the first look at what effect treatment is undertaking.  I think we will be in the right place, confidence wise to understand that we’re somewhere I know is highly respected, and to dig in our heels and plow forward!   So today has been a “up” day!  I’m not naive enough to think that won’t change, but I’m in unfamiliar territory and am great full to have you folks to turn to.    Thank you so much.

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