Husbands first Chemo today 5hrs came home with Pack for two days stage 4 colon cancer with liver met

desnee2029
desnee2029 Member Posts: 28
in Colorectal Cancer #1
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  • desnee2029
    desnee2029 Member Posts: 28
    #2
    Don't know what to expect scared.

    Husband had first Chemo today.  He came home with fu5 pack?  Stage 4 several mets to liver.  It is all new to us.  I'm trying to be strong but emotions all over the place.....liver mets have to shrink 90% to do liver resect?  He has colonostomy.

     

     

  • desnee2029
    desnee2029 Member Posts: 28
    #3
    Don't know what to expect scared.

    Husband had first Chemo today.  He came home with fu5 pack?  Stage 4 several mets to liver.  It is all new to us.  I'm trying to be strong but emotions all over the place.....liver mets have to shrink 90% to do liver resect?  He has colonostomy.

     

     

  • NHMike
    NHMike Member Posts: 213 Member
    #4
    It's rough for spouses

    My wife told me that what I'm going through has been tough on her - I'd been somewhat self-absorbed going through it all and my emotions were all over the place. I also started chemo yesterday.

    This is a good place to learn a lot of things, and to get some emotional support. It's really tough to find out and then to learn what the process is.

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #5
    Go with the flow

    Welcome to the forum. I am sorry for your husband's diagnosis. 

    Go with the flow of your emotions. It is common for loved ones to want to be strong, and thats good, but it can backfire in a number of ways.  I personally got the feeling that my husband and children didn't care that much. They were being so 'normal', almost flippant. I find out later that they wanted to be strong for me. Truth is, I needed to see their emotion. 

    Allow yourself to feel sad, angry, bewildered, or whatever emotion hits you; just don't let that emotion take control of you.  You are experiencing a loss  of life as you know it. Life changes when there is a diagnosis of Cancer, or any major illness; but, you slip into a new normal, and you'll be surprised how soon that happens. 

    Make sure you take care of yourself emotionally and physically, as you take care of your husband. 

    We're all here for you. Its colorectal Cancer, after all, so we talk about the nitty gritty stuff that normal society shys away from!

    Tru

  • bobby66
    bobby66 Member Posts: 69
    #6
    hi

    My husband is going thru the same thing. colon cancer and mets to liver and taking chemo. if you need to talk let me know. it is hard on us.

  • SophDan2
    SophDan2 Member Posts: 150 Member
    edited August 2017 #7
    desnee2029 said:

    Don't know what to expect scared.

    Husband had first Chemo today.  He came home with fu5 pack?  Stage 4 several mets to liver.  It is all new to us.  I'm trying to be strong but emotions all over the place.....liver mets have to shrink 90% to do liver resect?  He has colonostomy.

     

     

    Don't be afraid to get help for yourself.

    All of us on this page have very similar cancer albeit at different stages. I go for my 5th treatment of 12 tomorrow (Stage 3C Colon Cancer). Throughout this process, I (like your husband) am going through emotions that are unfamiliar to me, let alone how it is affecting my wife a 2 kids.. My wife, like you, is still trying to wrap her mind around what has happened to me/us. I recommended that she search out help of a professional, to help her be the strong person that she's always been. She has done just that, and I am so proud of her for helping herself through the process, as I am not sure that I would be able to help as well as a professional, while dealing with my own concerns.

    Good luck moving ahead; positive energy is much better than negative energy!

    Barry

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    #8
    Its very understandable and normal to feel a lot of emotions

    Cancer isn't an easy hurdle.  You have to be strong, for yourself and for your husband.  Stay positive and stay happy! Chemo is a part of the healing process and it'll soon be over before you know it.

  • impactzone
    impactzone Member Posts: 555 Member
    edited August 2017 #9
    Stage 4 guy here who started

    Stage 4 guy here who started when kids were 12 and 10. It is now almost 11 years out and I am doing well. Not easy and there were many setbacks but there were also great things. Caregivers really need support. Lots of love and attention given my direction but it was wife and kids who also suffered without lots of help until I made sure that all our relatives/friends spent time with and for her.

    All my best and prayers

    Chip

  • desnee2029
    desnee2029 Member Posts: 28
    #10
    Such Support

    I am so grateful for everyones reply to my post.  I don't feel so lost and alone.  T omorrow we are supposed to take out the porta Chemo needle and unhook pack.  Kinda scared.  Wish my husband would get on this support group.  Prayers and positive thoughts for everyone

  • desnee2029
    desnee2029 Member Posts: 28
    #11
    bobby66 said:

    hi

    My husband is going thru the same thing. colon cancer and mets to liver and taking chemo. if you need to talk let me know. it is hard on us.

    Yes thank you...

    Tomorrow we take out the Chemo portable pump/needle.  5-FU  We go back in two wks for more chemo.  Have not seen any bad side effects yet.  Tomorrow is day 3 .....unhook pump.

     

  • beaumontdave
    beaumontdave Member Posts: 1,289 Member
    #12
    desnee2029 said:

    Such Support

    I am so grateful for everyones reply to my post.  I don't feel so lost and alone.  T omorrow we are supposed to take out the porta Chemo needle and unhook pack.  Kinda scared.  Wish my husband would get on this support group.  Prayers and positive thoughts for everyone

    Welcome, this is a marathon

    Welcome, this is a marathon you and hubby are on now, and the shock does wear off, with a sense of routine, and many  anxious times moving in, usually built around appointments, procedures, scans and blood panel results. There are people that come here, who have similar initial diagnoses, that have ten years of survival and are still trucking on, you can read their back stories by clicking on their blog name. Tell your hubby even strong, silent types come here to unload stuff they can't tell anyone else. Humans are remarkably adaptable and you will find a new normal, it just takes awhile. In the mean time, read everything here and general info on the internet, just stay away from prognosis and survival estimate stuff as it isn't current and just scares everybody needlessly..................................Dave

  • bobby66
    bobby66 Member Posts: 69
    #13
    desnee2029 said:

    Yes thank you...

    Tomorrow we take out the Chemo portable pump/needle.  5-FU  We go back in two wks for more chemo.  Have not seen any bad side effects yet.  Tomorrow is day 3 .....unhook pump.

     

    my husband is going today.

    my husband is going today. take his pump friday afternoon. this is his 6th treatment.

  • Woodytele
    Woodytele Member Posts: 163
    #14
    Chemo

    This is a marathon, he may not feel side effects for a few days, usually day five ( 5 days after infusion) is the toughest for me, then you have a week of recovery and trying to bring yourself back. This is a battle. You have to take it day by day. 

  • desnee2029
    desnee2029 Member Posts: 28
    edited August 2017 #15
    bobby66 said:

    my husband is going today.

    my husband is going today. take his pump friday afternoon. this is his 6th treatment.

    Pump removal

    It went well bobby.  We reread instructions as we/I was doing it.  Got nervous and called our cancer prompt care when taking needle out but, she said I did fine wasn't pulling hard enough.  Hub has some stomach?/liver pain dull but ate well today and went to visit his brother to small engine repair shop.  Where he likes to help.  He found out tonight he can't hold cold things but ate ice cream!  Two wk break until next Chemo.  Surgeon visit tomorrow to check port out.  Still some sleeping/energy issues.  How are you and your hub doing?  Sending prayers and positive energy.......Des

     

  • desnee2029
    desnee2029 Member Posts: 28
    edited August 2017 #16
    beaumontdave said:

    Welcome, this is a marathon

    Welcome, this is a marathon you and hubby are on now, and the shock does wear off, with a sense of routine, and many  anxious times moving in, usually built around appointments, procedures, scans and blood panel results. There are people that come here, who have similar initial diagnoses, that have ten years of survival and are still trucking on, you can read their back stories by clicking on their blog name. Tell your hubby even strong, silent types come here to unload stuff they can't tell anyone else. Humans are remarkably adaptable and you will find a new normal, it just takes awhile. In the mean time, read everything here and general info on the internet, just stay away from prognosis and survival estimate stuff as it isn't current and just scares everybody needlessly..................................Dave

    beaumontdave

    You are so right on.........read enough on the internet to make my head spin and not be able to sleep..........but here I feel so much support and hope and I am beginning to understand the new normal.............no words to explain what that means to me.....life goes on thank you

     

  • desnee2029
    desnee2029 Member Posts: 28
    edited August 2017 #17
    Woodytele said:

    Chemo

    This is a marathon, he may not feel side effects for a few days, usually day five ( 5 days after infusion) is the toughest for me, then you have a week of recovery and trying to bring yourself back. This is a battle. You have to take it day by day. 

    Woodytele

    Thank you for sharing.  It is all new to us......

     

  • Bellen
    Bellen Member Posts: 281 Member
    #18
    Hello Desnee - I was

    Hello Desnee - I was diagnosed last summer with colon cancer with multiple mets to my liver.  They saw the liver mets first in an ultrasound.  I started folfiri chemo with avastin (same as folfox but irinotecan instead of oxyplatin) and get it every 2 wks.  I have had about 4 "extra week breaks".  That extra week is wonderful and I feel almost "normal".  If you have any questions would be glad to help if I can.  This is a great support group.  We all know what you are going through.  Wishing you and your husband well, and yes it is an emotional and physical roller coaster ride - day to day.  I try to get out whenever I feel good - laughter, friendship, just a chance to feel back to your old self whenever he can.  

  • bobby66
    bobby66 Member Posts: 69
    #19
    desnee2029 said:

    Pump removal

    It went well bobby.  We reread instructions as we/I was doing it.  Got nervous and called our cancer prompt care when taking needle out but, she said I did fine wasn't pulling hard enough.  Hub has some stomach?/liver pain dull but ate well today and went to visit his brother to small engine repair shop.  Where he likes to help.  He found out tonight he can't hold cold things but ate ice cream!  Two wk break until next Chemo.  Surgeon visit tomorrow to check port out.  Still some sleeping/energy issues.  How are you and your hub doing?  Sending prayers and positive energy.......Des

     

    he is doing pretty good. We

    he is doing pretty good. We dont pull the pump. He goes back to the office and they remove it. He did very good in this session. Avastin was not good for him so we removed it from the cocktail and they low his dosage of all the other meds. About your husband I'm very surprise he was able to eat ice cream. I'm happy for him. Let me know how everything keeps going.

  • desnee2029
    desnee2029 Member Posts: 28
    #20
    Bellen said:

    Hello Desnee - I was

    Hello Desnee - I was diagnosed last summer with colon cancer with multiple mets to my liver.  They saw the liver mets first in an ultrasound.  I started folfiri chemo with avastin (same as folfox but irinotecan instead of oxyplatin) and get it every 2 wks.  I have had about 4 "extra week breaks".  That extra week is wonderful and I feel almost "normal".  If you have any questions would be glad to help if I can.  This is a great support group.  We all know what you are going through.  Wishing you and your husband well, and yes it is an emotional and physical roller coaster ride - day to day.  I try to get out whenever I feel good - laughter, friendship, just a chance to feel back to your old self whenever he can.  

    Yes Bellen

    Just what the Dr. ordered today.  Get out and do life as you feel.  Don't sit in your recliners and get more tied and weak..........i and my dear husband needed to hear that........Thank you are soo very right .

     

  • Julez
    Julez Member Posts: 9
    #21
    impactzone said:

    Stage 4 guy here who started

    Stage 4 guy here who started when kids were 12 and 10. It is now almost 11 years out and I am doing well. Not easy and there were many setbacks but there were also great things. Caregivers really need support. Lots of love and attention given my direction but it was wife and kids who also suffered without lots of help until I made sure that all our relatives/friends spent time with and for her.

    All my best and prayers

    Chip

    congrats on 11 years! my

    congrats on 11 years! my husband will just start his first treatment on Tuesday its so hard to stsy strong. If you dont mind me asking where was your cancr?

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