Need to hear from you ladies re path report

so sorry to hear the cancer has returned...all in 6 months...

you mentioned your were dx Stage 1A? Did they give you chemo / radiation at Stage 1a?

I was dx with Stage 1A, and not given any treatments...and I had lymphovascular invasion...

The reaason why I ask because I'm having all sorts of issues again...especially extreme tiredness...

Wtih regards , I would first do the scan see what the results are ...then make a decision on best treatment plan...

Keep strong.

I am so sorry to hear the cancer has returned. My biggest fear too. I don’ t understand why you had chemo at 1a. Maybe radiation would be an option. Don’t know if you need a second opinion but certainly would try it. Please give it a go at more chemo if appropriate and tell them you need better control of side effects! Praying for you...(Hug). 

Lori

My doctor told me after I had a diagnosis of Grade 1a with no invovlement anywhere, that no further treatment was needed.  And boy did they dissect everything they took out of me and I do mean everything.

However, and there is always a "but" he informed me I could have a recurrence and it usually takes about 3 years.  This sucks.

Donna Faye, I found you soon after I found this site. We were both UPSC stage 1A. i am 66 and did 3 taxol/carbs and 6 brachytherapy. I just finished 3 weeks ago.  My CT and follow up are coming in ten days and I’m having scanxiety. I had a couple of nodes on the chest; one shrunk and the other was stable after chemo. Dr. said it was clinically insignificant at the time, but I will feel better if it’s gone and she says NED.

Praying for you and sending hugs! As one Donna to another, We’ve got this!

Donna

So many times I have been "scared"  And these tests are not always accurate.  I could give several examples.

My first transvaginal ultrasound showed a white blob in my uterus.  This was about 5 years ago.  They showed me the actual pictures and told me I had a tumor which needed biopsy.  And when it came time, I had my first D/C and asked the Dr. what was that "white blob?"  She said "What white blob?" there was nothing there.

Aside from some polyps at the time that were non malignant, there was no tumor.  

My husband had a scrotum ultrasound and they told him he had testicular cancer!  He came home so upset.  We went for another opinion.  Turned out to be a cyst.  I really can't trust these tests!

Karen

Donna Faye:

I recently had a biopsy testing positive for adenocarcinoma around my vaginal cuff/rectum.   However, just so you know, I have had lesions in this area for many years.   It has showed up on PET scans with a positive SUV (albiet very low).   I had a CT biopsy done in 2014 - which was negative.   It started to grow a little but given the one test they just watched it.   As the years went by, I started to get pain.  I complained and they kept telling me it was just scar tissue.    In my CT scan in 2017, it indicated that I had another small tissue mass.  At this time my pain was now daily but my gyn/onc just shrugged it off.   He didn't even give me an exam.  Just read me my CT report.   I left that gyne/onc and went elsewhere.   I met another oncologist who reviewed all of my records.   Given the fact of where this was located, it was very difficult to get to.  He decided for me to have an MRI in 6 months.   My pain got worse so I had them move up my MRI 3 months.   The MRI indicated some progresssion and irregularity around the vaginal cuff.   Still not much that they could do.   He then asked for me to have a EUS rectal biopsy.    That biopsy came back negative (although the pathology report indicated that the specimen was "Less than Optimal".   I was then referred to a gyne/oncologist.   I met with her and she was going to just keep an eye on me.  However, she had my biopsy reexamined by her pathologist.   This was came back with questionable readings on some of the slides which could be just endometriosis or it could be disease.   In the meantime, my oncologist wanted me to have a Gatrovue Enema.   This showed significant narrowing near my rectum which could be caused by the tumor.   My gyne/onc then called and asked for me to have a CT Biopsy.   I just had this done.  They where able to go in at a different angle from the one I had in 2014.     This one came back positive for adenocarcinoma.   

It seems to be slow growing.   I have another MRI on Monday and I see the oncologist on March 1st.   I am not rushing into anything.  I don't think I want chemo as it has been there for many years.   I think I will wait to have surgery as long as I can because of how everything is glued together down there.   

My case is different as I have had many surgeries.  I just want you to know that it could just be scar tissue.   I have 3 or 4 masses there - which comes back as connective tissue.

Hang in there!  My best to you.

Kathy

You are one strong lady and I really admire how you've been battling the beast. I'm so sorry that you are facing this again. Please don't give up yet, you seem to have yourself in such a good place to still defeat this monster. This is a huge set back, yes, but life is worth fighting for and you sure seem to have that kind of grit! 

Donna Faye said:

How found

The doctor did a pelvic exam and saw 2 small lesions. She got one for biopsy but other was too flat. They were not near the cuff and she commented they were in an unusual place.

The biopsy came back cancer, but as we know, it could be limited to the vaginal area. Hope to get a scan app't. Monday. Then going on a 10 day trip and when I return, will look at opitions 

I am just more frustrated than anything,as have been cooped up for 19 months. Longest I have ever gone w/o a trip or riding horses. I admit that I don't do puny very well and now am 

feeling great and looking strong. Life happens when we are making other plans.  Thanks all. You input has meant so much to me since Jan. 2017!!!!!

Your spunk inspires me!

So hard to wait but you know we are keeping you close to our hearts and praying for good news...((Hug))

Lori