Lung mets for $2000, Alex...

ImNotDeadYet
ImNotDeadYet Member Posts: 244
in Kidney Cancer #1

Heard from my doc yesterday, and we finally know what my lung nodules are: metastasized RCC. Needless to say, emotions are running the gamut this morning, but I still have work that I have to get done today, which is not going to be easy. I see the oncologist tomorrow, and we'll review the treatment options, which she says there may be a few. Still processing all this. Not the news I was hoping for, but not unexpected either. I'm guessing there will be some medication side effects in my future, and that's OK, because that means I'm still here. What a crazy ride this is turning into...

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Comments

  • foroughsh
    foroughsh Member Posts: 779 Member
    #2
    I'm so sorry for all you're

    I'm so sorry for all you're going through.

    You're in my thoughts and prayers

    Foroygh

  • APny
    APny Member Posts: 1,995 Member
    #3
    I am so very sorry. I hope

    I am so very sorry. I hope the treatment option selected will have minimum if any side effects. Keeping you in my thoughts.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #4
    Thanks

    This is just so surreal right now. I'm sitting here at my desk, in my home office, trying to work. However, my mind is going a mile a minute about 'other things.' Really trying to get it back on track today. What a total head trip!

  • Cybball
    Cybball Member Posts: 111
    #5
    Sorry for your news.  Very

    Sorry for your news.  Very hard to focus when this is happening.  Stay strong and keep positive!!

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    #6
    So sorry

    You are facing this

    but at least now you can start the attack

    pray   You get lots of reassurance tomorrow

    Will be thinking of you

    Annie

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #7
    I'm usually pretty positive...

    ...and maintain a sense of humor that helps me deal with stuff like this - "I'm Not Dead Yet" is the name of the Facebook group I set up for my friends who want to follow along. However, today I found myself sitting at my computer and uncharacteristically bawling my eyes out uncontrollably. The feeling is passing, as these feelings always do. I guess I'm a little raw right now. All part of the process, I suppose. I live with a wonderful woman who has been, and continues to be very supportive. What she's not, by nature, is overly demonstrative in how she shows it. And I hate asking for a hug and such. But you don't get what you want if you don't ask, I suppose. I'm grateful she's sticking by my side through all of this. If not getting hugs when I feel I need them is the biggest issue I end up facing in dealing with this, I'll take it all day.

  • stub1969
    stub1969 Member Posts: 978 Member
    #8
    Sock in the gut

    I'm sorry about this news.  Know that many of us here have our arms wrapped around you giving you that hug.  We feel your pain and will walk with you as much as you want our support.  Good luck tomorrow with your appointment.

    Blessings

    Stub

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    #9
    Ahh

    the hugs will come.  She is obviously processing this  as well

    and I am sending you a million Billion  irish hugs from across the pond

    Annie

  • Cinnamongirl
    Cinnamongirl Member Posts: 199 Member
    #10
    Positive energy

    Sending you positive energy and nothing but love your way. Praying your new plan of attack will come with minimal side effects and the power to keep things at bay. 

    Cin

     

  • MelBlessed
    MelBlessed Member Posts: 71 Member
    #11
    Sending Hugs

    prayers and positive thoughts your way.

  • Hd67xlch
    Hd67xlch Member Posts: 151 Member
    #12
    None of my business......

    but do you have to many mets to have more wedge resections and get them out? Ive had multiple wedge resections and a lobe removed and have had good results so far anyways. Good luck.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #13
    Hd67xlch said:

    None of my business......

    but do you have to many mets to have more wedge resections and get them out? Ive had multiple wedge resections and a lobe removed and have had good results so far anyways. Good luck.

    Not 100% sure yet

    That's definitely one of the questions I have for the oncologist tomorrow. I do seem to remember them saying that the nodules on my left lung would be hard to get to surgically. They did wedge out two on my right side for the biopsy. But the left lung nodules were better positioned for the needle and bronchoscopic biopsies, neither of which was conclusive, hence the wedge biopsy. I have a feeling she's going to recommend some kind of oral med, like a sutent or votrient. I'll definitely ask about surgery. As much as lung surgery sucked, if that can get me clear, I will explore the possibility. Thanks for the suggestion.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #14
    Thanks, everyone...

    ...for the kind words, support, and virtual hugs. I'm really glad I found this group and all of you!

  • Steve.Adam
    Steve.Adam Member Posts: 463 Member
    #15
    Sorry to hear

    I'm sorry to hear your bad news. I hope they can eradicate it with surgery.

    If you ask really, really nicely I'll hug you...

    What is that artwork you have as your pic?

    Steve.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #16
    My favorite tie die

    Thanks, Steve. The art is actually a tie died shirt I bought years ago. It's  seen me through many concerts, some Dead-related, some not,  and lasted a long time. 

  • Retcenturion
    Retcenturion Member Posts: 240 Member
    #17
    Gonna be a long strange trip

    That's what I thought at my diagnosis... The Dead played in endless loop for awhile after leaving the Dr office and calmed me down. You alluded to knowing the answer before confirmation and probably started planning the next steps in your journey. Your not alone here and can have as many virtual hugs as mentioned above! Positive thoughts your way and good luck tomorrow.

     

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    #18
    Retcenturion said:

    Gonna be a long strange trip

    That's what I thought at my diagnosis... The Dead played in endless loop for awhile after leaving the Dr office and calmed me down. You alluded to knowing the answer before confirmation and probably started planning the next steps in your journey. Your not alone here and can have as many virtual hugs as mentioned above! Positive thoughts your way and good luck tomorrow.

     

    A fellow Deadhead!

    Yeah, that's what I have them play when I'm having my MRIs. Definitely a calming influence. Hoping to get Dead & Co tickets for Boulder in July. I'm way overdue to see the boys. 

  • Mighty Frog
    Mighty Frog Member Posts: 152 Member
    #19
    We all here for you!

    It is very hard to accept this news..... very sorry to hear this. We all here for you! 

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    #20
    Sorry.....prayers being sent

    Sorry.....prayers being sent your way.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    edited January 2018 #21
    Mighty Frog said:

    We all here for you!

    It is very hard to accept this news..... very sorry to hear this. We all here for you! 

    Acceptance

    Accepting it wasn't that hard, really. Maybe it's because I was mentally prepared for the dx, even though hoping for something different. The hard part is staying focused on other things, like the job that pays my bills and gives me that great insurance to help me through this stuff. That continues to be my big challenge. Maybe this whole thing is helping make me ready for a change, I don't know. I do know I don't want to be unemployed or changing jobs while starting a new treatment. Anyway, back to working on focusing. Thanks for the good wishes.

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