nasopharyngeal cancer

aprilshower55 said:

NPC surviour
hi,
i am chinese and 58 years old. my parents born in canton china, and i born in hong kong.
i notice slight bleeding when i did my nasal potty. i did not think anything of it for about 9 months. then i started feeling water in my ears, and pressure in the ears. i was scared to go to ent, cause i was afraid of the worse. i had stage 3 npc, and stage 1 in my lymph nodes. started 35 days of radiation and chemo in july and aug my 2nd chemo. nov was my 3rd and last chemo. i had a feeding g-tube put in two weeks into my radiation and removed
my tube in jan. when i wake up from my sleep my neck and shoulders hurt each day. i have schedule for eye and hearing exam next month. i was giving myself sometime to hopefully heal a little more before getting new glasses. i do not know if i need hearing aides. i do notice my hearing is not the same. i often hear ringings sounds in my ears. my biggest challenge is sleeping and eating. as you may know i have very dry mouth and i have not been able to eat much solid foods. i drink 3 or 4 ensure plus with 350 calories a day. i eat a table spoon of oatmeal with almond milk and slice of apple diced small with cinnamon for breakfast. i make a protein smoothie for lunch and dinner stir fry few slices of zucchini,and 2 mushrooms. i usually get about 11/2 hour of sleep and awaken with very dry throat. i would drink some water and rinse with biotene oral rinse and use biotene jel before trying to sleep again. i usually get up about 3 or 4 times a night before my alarm wakes me up for work.

are you able to eat any solid foods? do you have problem swallowing? i am glad to have found this site, and know there are others who had the same kind of cancer as myself.

lodie said:

nasalpharangheal carcinoma
hi i finally made it back to this site after 3 months of bieng out of treatments...
i did 39 rads and like 5 24 hour chemos for 5 days at a time then 2 months straight chemo once a week.... anyone else who has or had this cancer can write me for support if they want...it's not often i find many people to talk to about what i went through..
I am in remission right now and am doing fairly well for th most part.. my sense of taste has ot returned albeit i can taste some things like syrup and mostly anythng sweet, i crave foods alot but eating them is a whole new ballgame... i can eat also mussells and oysters and clams and calamari.. and tons of milk since my salivary glands were comprimised..my hair is growing back curly which is funny since normally it's straight..
my nose runs and my eyes drip and burn...i still have a peg tube in me which i only use not to flush and i am anticipating the day when it gets pulled out...*ouch.
my feet are still numb around the toe areas but my fingers are starting to feel ok again.. the numbness in my face around the eyes went away.. which i don't remember when it just so happened i was like touching my eyes and i realized i could feel sensatons again... things are a slow progress but each new one is great...
I am also on face book... so i'm here if anyone needs a friend.<3 Elizabeth</p>

 I know the feeling… a cancer as rare as ours… You would think you won the lottery right? And the whole notion of it being for the wood workers... I do not sidle wood... lol. At my 44 years young I was dealing with headaches, sinus issues, allergies...  then after 15 months of having this I was finally diagnosed.  Yes, completely sucks when everybody misses it… cancer… But the good side is that they caught it! And hopefully you are outside of your radiation treatment and are doing well. I am three weeks out from my radiation treatment… I have a PET scan in April and I'm looking forward to hearing those words... you know the words the words... that say hey it's all gone!  I may sound extremely Bubbley in this thread...Please be forewarned that you're catching me at a good moment… I have decided to go seek treatment for the emotional whirlwind that the entire cancer treatment and diagnosis has spun around me much like a tornado.  I can attest that staying positive is very very good for you… but the gloominess of cancer happens almost daily... please feel free to contact me in anyway shape or form to say hello.

the beekeeper

Beekeeper said:

Hey there fellow adenocarcinoma member

 I know the feeling… a cancer as rare as ours… You would think you won the lottery right? And the whole notion of it being for the wood workers... I do not sidle wood... lol. At my 44 years young I was dealing with headaches, sinus issues, allergies...  then after 15 months of having this I was finally diagnosed.  Yes, completely sucks when everybody misses it… cancer… But the good side is that they caught it! And hopefully you are outside of your radiation treatment and are doing well. I am three weeks out from my radiation treatment… I have a PET scan in April and I'm looking forward to hearing those words... you know the words the words... that say hey it's all gone!  I may sound extremely Bubbley in this thread...Please be forewarned that you're catching me at a good moment… I have decided to go seek treatment for the emotional whirlwind that the entire cancer treatment and diagnosis has spun around me much like a tornado.  I can attest that staying positive is very very good for you… but the gloominess of cancer happens almost daily... please feel free to contact me in anyway shape or form to say hello.

the beekeeper

Beekeeper,  I  had Stage III went through 65 rounds of Radiation (2 times a day) with Erbitux chemotherapy once a week.  I've been cancer free for six years now.  Count my blessings daily.  As a result of radiation I have no saliva and it has caused eating issues.  I just look at it as this is my new normal.  

Starting last year I started having issues with my teeth.  It took six months working with TRICARE in order for the dental work needed to be covered under medical.  It's called Adjunctive Dental.  With the help of case manger she has helped me through this nightmare. I went through 20 dives Hyperbaric before surgeon pulled all my teeth in Oct 2016 and 30 dives later.  All covered by TRICARE medical.  I go this week to surgeon to see if im ready for implants. Then 4-6 month healing then new teeth. Hang in there and stay positive....this journey continues.

Hi

I am 16 years post treatment for NCP and have had numerous late complications from treatment (ch

emo and radio) Lately I have had a lot of bleeding from nasopharynx. DRs say that they can see where it is bleeding and have also got some ulceration of the area- only found out yesterday and am rather concerned? Has anyone else had this happen to them?

anet48 said:

hi.. one of my family member has nasal pharyngeal cancer.. jus wondering if u know someone that has this kind of cancer b4... please email me back..thanx

I had nasal cancer about 25 years ago.

Hondo said:

Hi Karri
Sorry you are having to go through this and I hope things turn around for you very soon. Sometimes just talking to others who like you have been there helps a lot; CSN is one great place for that but you might also try other support net worth where you can meet others in your area. I am a NPC survivor, my cancer came back three times and with the help of God and a lot of prayers from my friends I beat it all three times. I am always willing to talk if you need, just click on my name and it will bring you to my profile and e-mail address.

God bless
Tim Hondo

Hi my brother has stage 2 nasopharengeal cancer is he gonna be cure?

aprilshower55 said:

NPC surviour
hi,
i am chinese and 58 years old. my parents born in canton china, and i born in hong kong.
i notice slight bleeding when i did my nasal potty. i did not think anything of it for about 9 months. then i started feeling water in my ears, and pressure in the ears. i was scared to go to ent, cause i was afraid of the worse. i had stage 3 npc, and stage 1 in my lymph nodes. started 35 days of radiation and chemo in july and aug my 2nd chemo. nov was my 3rd and last chemo. i had a feeding g-tube put in two weeks into my radiation and removed
my tube in jan. when i wake up from my sleep my neck and shoulders hurt each day. i have schedule for eye and hearing exam next month. i was giving myself sometime to hopefully heal a little more before getting new glasses. i do not know if i need hearing aides. i do notice my hearing is not the same. i often hear ringings sounds in my ears. my biggest challenge is sleeping and eating. as you may know i have very dry mouth and i have not been able to eat much solid foods. i drink 3 or 4 ensure plus with 350 calories a day. i eat a table spoon of oatmeal with almond milk and slice of apple diced small with cinnamon for breakfast. i make a protein smoothie for lunch and dinner stir fry few slices of zucchini,and 2 mushrooms. i usually get about 11/2 hour of sleep and awaken with very dry throat. i would drink some water and rinse with biotene oral rinse and use biotene jel before trying to sleep again. i usually get up about 3 or 4 times a night before my alarm wakes me up for work.

are you able to eat any solid foods? do you have problem swallowing? i am glad to have found this site, and know there are others who had the same kind of cancer as myself.

Hi there i recently am going through everything you are if you beed to talk more please send me back a response.

Edsel balingit said:

Hi my brother has stage 2

Hi my brother has stage 2 nasopharengeal cancer is he gonna be cure?

I'm a stage 3 NPC survivor.  It's coming up on 8 years.  The journey is hard but it can be beat. Fight, fight, fight.  Prayers of strength and healing.