My mind is wondering again..so worried
Can stage 2 hodgkin's lymphoma be cured with stem cell transplant? From the start it was only stage 2 they did not stage my relapse. I know its borderline activity in 2 nodes. That was 3 weeks ago im still waiting for insurance to approve my chemo. But I read so many storied some people going through this for 7-9 years? Im so worried! I just really thought they got mind early & the 6 cycles of ABVD would have worked...:(
Comments
-
It is a journey
I have been fighting my demon for almost 10 yrs, original diagnosis 2008, with 2 relapses, one in 2012 and the last 2015, so far my last scan in Sept was clear, next scan in Jan, there is no cure for this type of cancer i am sorry to say only remission. I truly believe focusing on the goal to kick its **** should be the main thing to think about. I kept a sense of humor thru it all and i think that kept me from losing it during treatments, i always say i dont live with cancer, cancer is living with me, im in charge. Good luck to you!
0 -
If you don’t mind me askingChris17 said:It is a journey
I have been fighting my demon for almost 10 yrs, original diagnosis 2008, with 2 relapses, one in 2012 and the last 2015, so far my last scan in Sept was clear, next scan in Jan, there is no cure for this type of cancer i am sorry to say only remission. I truly believe focusing on the goal to kick its **** should be the main thing to think about. I kept a sense of humor thru it all and i think that kept me from losing it during treatments, i always say i dont live with cancer, cancer is living with me, im in charge. Good luck to you!
If you don’t mind me asking what was your diagnosis? And what stage ? A lot of people told me this can Be cured what do you mean by only remission?
0 -
DiagnosisLacieAnn728 said:If you don’t mind me asking
If you don’t mind me asking what was your diagnosis? And what stage ? A lot of people told me this can Be cured what do you mean by only remission?
I was diagnosed follicular non hodgkins lymphoma stage 3 grade 2, some doctors say "cured" it is usually no evidence of disease or NED i was told its remission as there is no cure for non hodgkins lymphoma. some surivors have said that it lies dormant when called remission, i believe that if the cancer is caught in early stages that it can possibly be called "cured" after treament has been successful.
0 -
My daughter has stage 3
My daughter has stage 3 Hodgins lymphoma. From what doctor's have told us and what I've read it can be put in remission. Some people do get it back and others have not. I found out asking questions about your diagnosis will help you with unanswered questions or concerns. I'm still learning so I hope this helps.
0 -
Cure and Lymphomas
It is my understanding that aggressive lymphomas for the most part are curable, non aggressive are not. DLBC is considered cured after 5 years remission. And ShadyGuy is correct on Hodgkins as far as I know. Sometimes it takes a lot of chemo to get patients there however. My NHL was agressive but because I have the Ebstein Barr Virus and a reduced immune system I can never be considered cured. But remission is great.
0 -
Thank you ShadyGuy & Kellie
Thank you ShadyGuy & Kellie for the positive reply. I have classic Hodgkin’s lymphoma & after 6 cycles few nodes have some activity so I was just having a bad day thinking the wors. I just hope this line of treatment help me.
0 -
So more aggressive can beyesyes2 said:Cure and Lymphomas
It is my understanding that aggressive lymphomas for the most part are curable, non aggressive are not. DLBC is considered cured after 5 years remission. And ShadyGuy is correct on Hodgkins as far as I know. Sometimes it takes a lot of chemo to get patients there however. My NHL was agressive but because I have the Ebstein Barr Virus and a reduced immune system I can never be considered cured. But remission is great.
So more aggressive can be cured and not none aggressive? I heard Hodgkin’s lymphoma is not aggressive? My doctors say it can be cured I just read so many post of people still getting it back. I don’t have none Hodgkin’s it’s classical Hodgkin’s lymphoma with low activity in a few nodes.
0 -
Put in PerspectiveKellie75 said:Your very welcome. Hoping you
Your very welcome. Hoping you have a quick recovery. Prayers going out to all that someday there will be a cure and noone will have to go through this again.
Kellie most classical Hodgkin's lymphomas (cHL) may not in definiton be curable, but most people with cHL who achive complete remission never see it again : So why worry ?
My strain of non-classical HL ("NLPHL") has the highest relapse rate for all HLs, but only relapses at around 15%. This means 85% of people even with my strain never relapse. So hope and plan for the best, since the best is overwhelmingly the most common outcome against HL generally.
max
0 -
In time...
it will get easier. I have follicular NHL stage 4 grade 2. When I finished treatment and received a great result, I was told I was good. My ONC said it's not really remission, it's just not active and may never be active again but it could come back. Having that said to me, I wrestled with how on earth do I live with that? I know follicular comes back, just a matter of when. Well I talked with a Councelor and she told me one day I wouldn't think of cancer each day. I looked at her like she had two heads. She was correct, in time I moved on. Don't get me wrong, there are times I think about it but fortunately there are more times I'm NOT thinking about it. Give yourself a pass, learn to breathe easy and be good to yourself.
Beast regards,
OO7
0 -
Thanks for clarifying thatPut in Perspective
Kellie most classical Hodgkin's lymphomas (cHL) may not in definiton be curable, but most people with cHL who achive complete remission never see it again : So why worry ?
My strain of non-classical HL ("NLPHL") has the highest relapse rate for all HLs, but only relapses at around 15%. This means 85% of people even with my strain never relapse. So hope and plan for the best, since the best is overwhelmingly the most common outcome against HL generally.
max
i had read or been told that something like 80% live a normal lifespan with no recurrence. To me that is cured even if it does not meet the strict meaning of the word.
0 -
I unfortunately worry about
I unfortunately worry about everything. I do hope that everyone's cancer doesn't return. My daughter goes for her 2nd pet scan to see how the chemo is working. Hopefully everything is well and only 8 more treatments to go. Her bosses daughter had CHL and has been in remission for 3 years now but her niece also got it and had a relapse. That's where I got my information from. Again still learning all about this.
0 -
Thanks everyone for the
Thanks everyone for the replies I’m still waiting on insurance to approve my chemo! It’s been almost 3 weeks I’m getting very worried like this is the last thing I should be worrying about with having cancer. I just hope whatever they gives me gets me clear scan results so I can go on with my life. Cancer is unfair and nobidy deserves this life!
0 -
Who ?LacieAnn728 said:Thanks everyone for the
Thanks everyone for the replies I’m still waiting on insurance to approve my chemo! It’s been almost 3 weeks I’m getting very worried like this is the last thing I should be worrying about with having cancer. I just hope whatever they gives me gets me clear scan results so I can go on with my life. Cancer is unfair and nobidy deserves this life!
Lacie,
Who or what determines "fair" in life ?
I understand your point, however. Just be thankful that likely you will recover and have a long life,
max
0 -
im Thankful no matter what &Who ?
Lacie,
Who or what determines "fair" in life ?
I understand your point, however. Just be thankful that likely you will recover and have a long life,
max
im Thankful no matter what & it doesn’t matter who can determine it , it’s a fact it’s unfair to people and their families. But that never takes away how thankful I am.
0 -
Hi LacieAnn,LacieAnn728 said:im Thankful no matter what &
im Thankful no matter what & it doesn’t matter who can determine it , it’s a fact it’s unfair to people and their families. But that never takes away how thankful I am.
Hi LacieAnn,
I think it's awful that any insurance company can slow down health treatment. It's absurd given that they are paid to offer this coverage when one finds the need to actually utilize it. I mean most of us pay into it for years never really using it, and then we find ourselves needing life-saving tests and treatment, they drag their heals "approving" it. What a crock! There needs to be more accountabiity for these companies when they drag their heels and cause us undue pain and anguish!
All we can do while we wait out the insurance, appointments, and test results, is enjoy every second we have with those we love. That is something that life's curve ball cannot take away from you. What a blessing that your daughter has you to be her mom; there is no better gift to balance out the negatives in life than the blessing of our children and families.
God bless you both and may he bring you peace and renewed health for a blessed holiday with your daughter ) Hang in there
0 -
bone marrow cancerLacieAnn728 said:Thanks everyone for the
Thanks everyone for the replies I’m still waiting on insurance to approve my chemo! It’s been almost 3 weeks I’m getting very worried like this is the last thing I should be worrying about with having cancer. I just hope whatever they gives me gets me clear scan results so I can go on with my life. Cancer is unfair and nobidy deserves this life!
Hello LacieAnn, I have non-hodgkins lymphoma, stage 4 and I am 69. Good luck with your insurance being able to give you the treatments asap. I start mine Tuesday, 2 days a week then rest a month and have 12 treatments for 6 months. Then I will have all the tests again after 6 months to see how it is. Cancer sucks and noone needs to suffer! But we will fight it and survive
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.7K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 308 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 395 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.3K Kidney Cancer
- 670 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 236 Multiple Myeloma
- 7.1K Ovarian Cancer
- 58 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.4K Prostate Cancer
- 1.2K Rare and Other Cancers
- 537 Sarcoma
- 726 Skin Cancer
- 650 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards