Was just diagnosed

2

Comments

  • Optimisticgirl
    Optimisticgirl Member Posts: 82 Member
    edited November 2017 #22

    Maybe it is just me, but at 5 cm that will be coming out anyway most likely. A biopsy is just an unnecessary step in the process. My husbands Dr explained there was no advantage to knowing ahead of time, since at 6 cm there was no way it would be staying. 

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    edited November 2017 #23
    Three doctors here in Canada

    Three doctors here in Canada said they do not biopsy. They told me they take the mass out first then determine exactly what it is. Even if they think it isn't cancer they remove it and treat it as if it is cancer.

  • Angie1496
    Angie1496 Member Posts: 154
    #24
    Sal7864 said:

    Anyone ever had a kidney biopsy?

    Just wondering what all is involved

    Sal,

    Sal,

    i had a ct guided needle biopsy. It came back inconclusive. Sounds like good news but it was unnerving. Doc told me the tumor can have parts that are not Cancer ans parts that are. Didn’t do a second biopsy. He said regardless of cancer or not the tumor was destroying my kidney. Pain wise it wasn’t that bad. I had diagram pain after inserting the guide needle and for several days after. Left a small puncture mark is all. Mine ended up being CCRCC. Had a partial nephrectomy in September  To do over I would have skipped the biopsy. its hard to ensure they get part of the tumor.

  • Angie1496
    Angie1496 Member Posts: 154
    #25
    Sal7864 said:

    no date for biopsy yet

    and curious  for a reason to those who would pass on it ?  Or I wonder if a PET scan would confirm it?

    John Hopkins has a program

    John Hopkins has a program that can determine oncocytoma or RCC without biopsy. I checked into it but didn’t do It. The tumor needs to come out. 

  • joedad
    joedad Member Posts: 8
    #26
    New here too

    (removed)

  • rdoyd2
    rdoyd2 Member Posts: 80 Member
    #27
    i would not have the biopsy

    i would not have the biopsy either. jsut have it removed and move on with life. the biopsy is just an added procedure that will cause youu un needed stress.

  • Sal7864
    Sal7864 Member Posts: 52
    edited November 2017 #28
    Weight loss after surgery during recovery?

    Hi, another question on how much weight might I lose during recovery? I am 5' 11"  only 140, (I lost 35 lbs this year due to a previous fissure surgery ) and am concermed about losing weight during my recovery. I am not underweight but am very close.

    Thanks again all, really appreciate all of the input.

     

     

  • Sal7864
    Sal7864 Member Posts: 52
    #29
    Update

    Pre admission testing for biopsy 11/22

    Biopsy 11/27

    Consult to discuss biopsy results 12/5

    I wonder if I will have to do more pre admission testing for the surgery and how long that wlill take between that and the actual surgery? UGH

  • kiwi68
    kiwi68 Member Posts: 110
    #30
    DreamOnDeb said:

    No.....the cancer will not

    No.....the cancer will not spread because of a biopsy.  With modern biopsy methods, using coaxial sheaths, and fine needle aspiration, there is no risk of spreading cancer.  Interventional Radiologists are highly experienced in safe biopsy methods.

    I asked my Urological Surgeon

    this question and he gave me the same reply.  Reports of 'seeding' are not relevant to current medical practice. 

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    #31
    Sorry

    to keep repeating but did they suggest why the biopsy was a good idea first

    Going on schedules and tests it will be January before you are having your operation if that is the agreed plan

     

    Sorry but I would want it out tomorrow.  

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    #32
    Sorry I hope I am not causing stress

    and anxiety and obviously your surgeon is the expert  but Just want the best solution for you

  • kiwi68
    kiwi68 Member Posts: 110
    #33
    Sal7864 said:

    Weight loss after surgery during recovery?

    Hi, another question on how much weight might I lose during recovery? I am 5' 11"  only 140, (I lost 35 lbs this year due to a previous fissure surgery ) and am concermed about losing weight during my recovery. I am not underweight but am very close.

    Thanks again all, really appreciate all of the input.

     

     

    In my case weight gain!

    Sal, I had a partial nephrectomy laprascopically last Thursday - so 5 days ago.  3 hours post op I ate a lamb roast, clear soup and a jelly.  Most of it anyway, fed to me by husband. I was a bit woozy.  My pre op instrucitons were to have a hearty breakfast by 7am for surgery at 1pm.  Yours could be different.   Since the operation I had 3 squres a day - in hospital these were all 3 courses including breakfast, 2 lots of morning tea and as of today am officially on a diet, cannot blame the tummy on the gas and swelling.   I am not overweight, but at this rate I would be.   To be fair, I had no nausea after the anesthetic, Tramadol agreees with me and I was actually starving at every meal, which isn't a usual thing for me.  My mum who is here looking after me actually asked quite nicely today if I have weighed myself... I am not game. Lol. 

    If you are concerned about feeling unwell, make some nutritious soups with added coconut milk, fortify some normal milk with extra milk powder make and freeze some of your favourite foods that could be puree'd or organise for someone to help make you some easy to digest egg dishes etc.  Ice cream is great.  Custards.  Mine are all sitting in the freezer still.  I will take them to a friend who I also make food for who is on a puree diet for 8 weeks due to maxofacial surgery. 

     

  • Sal7864
    Sal7864 Member Posts: 52
    edited November 2017 #34
    Wehavenotimeatall said:

    Sorry

    to keep repeating but did they suggest why the biopsy was a good idea first

    Going on schedules and tests it will be January before you are having your operation if that is the agreed plan

     

    Sorry but I would want it out tomorrow.  

    He said that it will be done

    He said that it will be done this year, and that he want biopsy in the event that it's non cancerous 

  • Angie1496
    Angie1496 Member Posts: 154
    #35
    Sal7864 said:

    Weight loss after surgery during recovery?

    Hi, another question on how much weight might I lose during recovery? I am 5' 11"  only 140, (I lost 35 lbs this year due to a previous fissure surgery ) and am concermed about losing weight during my recovery. I am not underweight but am very close.

    Thanks again all, really appreciate all of the input.

     

     

    Just weighed and I have

    Just weighed and I have gained 6 pounds since surgery 9 weeks ago.  I was not happy as I was losing weight (on Purpose) before diagnosis.  I am finally back at the gym now and hope to get back to my weight loss. 

     

  • Angie1496
    Angie1496 Member Posts: 154
    edited November 2017 #36
    Sal7864 said:

    Update

    Pre admission testing for biopsy 11/22

    Biopsy 11/27

    Consult to discuss biopsy results 12/5

    I wonder if I will have to do more pre admission testing for the surgery and how long that wlill take between that and the actual surgery? UGH

    I had a biopsy of a 4.5 CM

    I had a biopsy of a 4.5 CM well defined mass on the upper pole of my kidney.  It came back non-diagnostic for cancer.  that sounds good but it was not.  It just meant the tissue they got was not cancerous.  My second opion (urologic oncologist) did not want to do another biopsy as the mass was destroying my kidney and had to come out regardless.  My second and third opinion (both urologic oncologists) said that the tumor can have pockets of tissue that do not have cancer cells in them and that is why you can get that reading even when they don't have a hard time actually getting the tissue from the tumor.  Have you had a second or third opion about a biopsy?  Mine WAS CCRCC.  The only way to know for sure is to have it removed and tested. 

  • Angie1496
    Angie1496 Member Posts: 154
    #37
    Wehavenotimeatall said:

    Sorry

    to keep repeating but did they suggest why the biopsy was a good idea first

    Going on schedules and tests it will be January before you are having your operation if that is the agreed plan

     

    Sorry but I would want it out tomorrow.  

    I am with you... I went from

    I am with you... I went from friday to finding out about it to Tuesday having a biopsy.  In hindsight I would not have done it and moved forward with surgery but I was naive at the time and it seemed logical.  My second Opinion doctor is the one that made me understand that it didn't matter.  Cancer or not it was a mass that was not a cyst and it was destroying my kidney and needed to be removed.

  • Angie1496
    Angie1496 Member Posts: 154
    #38
    I don't want to add stress...

    I don't want to add stress... but I wish I had found this forum BEFORE I had surgery or the biopsy.  So many here have walked this walk before us and really know what to expect etc... Lots of wonderful people and knowledge here!

     

  • angec
    angec Member Posts: 924 Member
    edited November 2017 #39
    Sal, ppl usually forego the

    Sal, ppl usually forego the biopsy because at 5cm, you can get a false negative, the tumor has to come out anyway and biopsy is an extra step that slows down surgery and is added anxiety. But, some do go for it on the off chance it is something else. Make sure to get copies of all tests and reports. All the best to you.

  • hardo718
    hardo718 Member Posts: 853 Member
    #40
    Just my opinion

    Earlier when I said I would not go the biopsy route, my opinion is based on a biopsy I had years ago for a thyroid nodule.  The results were inconclusive.  It was VERY painful! 

    I know, I know, 2 completely different things.  And actually, the thyroid biopsy was more painful than my kidney surgery...haha....go figure.  I did have to go thru the thyroid biopsy a second time but I insisted that the pathologist be present so they would know right then & there is they got what they needed, and that was the only way I would agree to a repeat.

    As far as kidney beast?  Biopsy was never mentioned as an option to me, they just knew by the looks of that little $hit what it was and it needed to go, as small as it was.  Looking back on it, even if biopsy was an option, I would not have opted for that.  Not based on experience or advice, just my opinion.  Bob the Blob needed to be removed, why poke that little sucker?  Remove it, then poke, slice, dice, saute', roast or fry...whatever you like.

    Best wishes, whatever you decide.

    Donna~

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    #41
    Just as others have said, I

    Just as others have said, I had doctors tell me you can get a false negative. They all (but 1) suggested just taking it out. Glad I did because in 3mths it had grown so much I lost my whole kidney. They say a kidney tumor has to come out anyway. They treat it as cancer until proven otherwise. For me time was of the essence.

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