Third time around the block....BUT --- Update...
Comments
-
Thanks for cheering me on, Letumwork....letumwork said:Keytruda
Phrannie- I hope you're feeling ok. I went through the exact same treatment as you back in 2013 for NPC so I have followed your story closely over the years. You are an inspiration to many people. OK, enough of the sappy commentary. I want to tell you a little story about my Father, He has beaten Cancer twice. Bladder Cancer 15 years ago and most recently Metastatic Melanoma. Over 2 years ago he was diagnosed with terminal metastatic Melanoma and told to get his affairs in order as he had very little time left. The cancer came on quickly and had spread throughout his body in a matter of weeks. His PET scan lit up everywhere. Tumors on his liver, his intestines, his Jaw and lymph nodes throughout his body including an Orange size tumor under his arm. He got approval to try Keytruda after a dose of Chemo did nothing. He went on the Keytruda and gets a treatment every 3 weeks. His first PET scan after only 3 treatments showed huge improvements in all areas. His next PET scan he was NED! His body was riddled with Tumors and now Nothing. Every PET scan since then has been NED. He has a few annoying side effects but we all know how that goes. I hope this helps you stay positive and gives you some confidence in Keytruda. It is kicking some major butt for many people. He also stated that he could feel it working when he would feel pain, tingling and burning at the Tumor sites after the first couple of treatments. Stay strong and kick some butt for the third time. Prayers sent!
I hope I'm one of the lucky ones that Keytruda works on....I won't have a scan until next month, I think....I wish I had even a tiny side effect....something from the Keytruda saying "I'm here and I'm working with you"....LOL. But I have nothing for side effects....zip.
p
0 -
Yeah....Thanks !!phrannie51 said:Thanks for cheering me on, Letumwork....
I hope I'm one of the lucky ones that Keytruda works on....I won't have a scan until next month, I think....I wish I had even a tiny side effect....something from the Keytruda saying "I'm here and I'm working with you"....LOL. But I have nothing for side effects....zip.
p
I have my 4th infusion of Keytruda tomorrow, and I'm not sure that I'm having any side effects or not. I know that for two-three days after, I feel tired, but it's no big deal. After a one hour nap, I'm up and ready to go. Information sent by Merck says to take it easy while on treatment, but instead I find my self working out longer at the fitness center and not feeling sore anytime afterward. I do feel a burning sensation around the back of my jaw where the tumor is located. I may have this feeling about 5 times a day, and may last for mayby 5 seconds. I just go "Ouch".....and it's gone. A PET scan will be set up for me a few days after this 4th Keytruda infusion to see if it's working or not. This is amazing stuff.........if it's working. Good luck tomorrow, Phrannie.
Larry Luster
Baton Rouge, Louisiana
0 -
Team Phrannie
Good Luck Phrannie. I also have gained a weath of knowledge and support from you and your comments. We all have your back here at the H&N forum.
I am glad hear there are no ill side effects. You must be a tough old soul. Fight the Fight.
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards