Possible Screening Test for Endometrial Cancer

I'm sharing this link with my daughter since there's a possibility that she has Lynch Syndrome like me and she's already being treated for PCOS. Her endocrinologist and gynocolgist are both aware of what's going on with me and are watching her more vigilantly as a result, but you're right, this would be a game changer kind of tool in their arsenal! I sure hope a test like this doesn't take too long to become available. It's an "if only" for us, though. Oh, well.

Thanks for sharing! I just sent it on to my sister and niece. Lynch in my family - me, my sister, cousins.... ugh!

Love and Hugs,

Cindi

Love this! Can't wait to see the results of the trials. So very exciting to see these new developments in the fight against this blasted disease. Thank you so much for sharing this with us, Chris. Hope you are doing well!

Would be a great thing...would have been great to have gotten to it a little sooner...maybe couold have basically just a had a hysterectomy and been done with it...maybe?

Wish that had been around when I was diagnosed. It will prevent lots of women from having to undergo a painful endometrial biopsy as I did!

I would also love to see research to identify an alternative tumor marker to CA 125 which for some of us (myself included) does not show changes that can help detect recurrence.

Just finally had time to read this.   I think if the test was that simple more people would do it and find it early.

hopeful56 said:

just diagnosed

I just joined this site.  I had a hysteroscopy done two weeks ago.  Has my life change.  The gyn/surgeon called me to tell me the pathlogy report indicates I have papillary/mixed cell cancer and indicating it's in my fall. tubes and ovaries.  My first symptom was spoting in June.  From that I went to my dr, had the pelivic/internal ultrasound, then met with the gyn/surgeon.  She advised the hysterscopy.  

I have my appt with the surgeon/oncoligst next Tuesday.  Like all of you getting this diagnosis, I have been researching and don't like the statistics.  When I went on this site, and read about the strength, courage and support for living, this has been the first breath of air that I have  felt since that phone call about my pathology report.  

I had a thyroidectomy over 20 years ago due to cancer.  I know this will be a different fight. I want to live beyond those gruesome statistics out there!  This has given me hope as I begin my journey with this diagnosis.  All you ladies have helped me as I begin my first steps.

Thank you.

 

Hopeful56, Welcome to our board. I'm glad you found us and sorry that you needed to. This is a wonderful place to get answers and support. I think we have all gone through the scared to death emotions. Like you, findig the discussion board gave me a sense of living instead of havig no hope. Don't look at the statistics out there. They are outdated. There are many survivors and the progress made to help us is substantial.

While your life will change, you will get through all of this and come out stronger on the other side. One thing I can recommend right now is to ask for a mild anti-anxiety med to help you get through the initial unknowns. I used Lorazapam for a short time and was really glad to have it.

I hope you have time to read many of the posts. I think you will find them helpful and informative.

Please come back and let us know how you are doing.

Love and Hugs,

Cindi