NED
During our road trip back from our 12 week post treatment PET, we got a call. The scan shows no CANCER. There is something new in the lung that needs to be followed up on but they repeated several times that it was not cancer. Plus, we ate out after the scan and he ordered food and actually ate it. If you have had a difficult time returning to eating you know how huge any step forward with food is. The words "I am hungry" came out of his mouth. Truly cannot remember hearing that since January. He had maintained his weight for one month. Vitamix has led us to victory with calorie intake. We had been told a week for results so this is amazing to know today. Somehow it exhausted me. I feel totally worn out and emotionally spent. My husband has a visible residual node so we were very concerned we would have active cancer or equivocal PET results and be facing surgery in the next few weeks. We know that surveillance is critical in coming months but today is a good day! So to all of you with eating issues, hang in there. I have seen an improvement this week, finally after only glacier speed improvements before this. He is starting to have some taste back that is not "this food in all its forms revolts and disgusts me." Onward and upward to gettting the PEG tube OUT! There were dark days during treatment and after that I did not know if we would see this day. So if you are in that place, hang on it can be brighter days ahead. I am going to enjoy today and maybe relax for one of the first times in 2017.
Comments
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Hooray!
That is wonderful news all around!
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EAT UP
Congrats on the NED...
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Soooooo happy for ya'll! !!
Soooooo happy for ya'll! !!
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WaitingRobbT said:Great news.
Congrats. My oncologist is making me wait 16 weeks. Torture. Says it so he doesn't see false positives.
It is hard to wait. Honestly we would probably have waited longer but my husband had a concerning residual node after treatment and they were concerned about waiting too long if my husband needed a neck dissection. We both felt there was a chance the outcome at 12 weeks might be a false positive but weighing it all we decided to go ahead. Gratefully, the scan showed a good response to treatment. Hang in there, your day will come.
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