Any UPSC 1a who did observation rather than chemo/radiation

Interesting about steroids. My question- did others continue getting steroids after treatment? I only had them the night before chemo and day of chemo.

Soup52 said:

Interesting about steroids.

Interesting about steroids. My question- did others continue getting steroids after treatment? I only had them the night before chemo and day of chemo.

My experience was the same, Soup. The night before and day-of only.

i only had them the day of chemo and then through my IV.  Once I was sent home with a prescription for dexamthazone, but I never had to use it.

Hugs and prayers, Lou Ann

I had the dense dose chemo, 6 rounds/18 weeks. Carbo/taxol on week one, taxol on weeks two and three. Steroids, Benadryl, Prilocec (and other nausea meds) at each infusion. On the Carbo/taxol weeks I took steroids (dex) on days two and three. The steroids kept me up all night, so I slept a lot the following days

I will say, you all made me go to grab some of the info I was given (and saved) from almost five years ago.  I was given a calendar with what to take every day starting with the steroids the night before (20 mg), the day of (20 mg), the following day (8 mg in the am and 8 mg at noon), the day after that (8 mg in the am and 8 mg at noon), the day after that (4 mg in the am and 4 mg at noon) and FINALLY the next day (4 mg in the am and 4 mg at noon) - so I had total of 6 days starting at 20 mg and stepping down.  (Each pill was 4 mg)   I knew you had to step steroids down so I stuck to the schedule.  Funny that they would prescribe so much ativan I could never use it but they would only write scrips for the steroids in enough for each treatment.  

Yikes, after I posted I wanted to add:  Linda D - I can't tell if you are working with a gynecologic oncologist or not.  If not - go find one and get a second opinion from them.  

I also was told to take Zofran - anti-nausea meds - during this time on certain days and had extra if I needed it.  

Miss Donna - love the new look!  

Love that hat, where are you from.  That is the common head gear where I am from.  I am glad the second treatment is going better for you .  You are strong and you will make it through.

Hugs and prayers, Lou Ann

Six rounds of chemo led me to the conclusion that seriods are evil, at least for me. I only had them intravenously during treatment; my first session was at 21 mg and I was high for three days afterwards. I made them dial it down...and down...and down for each subsequent treatment. My last chemo was on April 10th and my dosage was 8 mg. My symptoms were typical: restlessness, moon face, flushing, and a ravenous hunger, specifically for anything carb-based. I'm still waiting for that crap to flush out of my system! Also I would like to dump the 10+ pounds I gained. I understand that steroids are a necessary evil, but in my case I wasn't able to strike an effective balance between benefits and side effects. I'm glad *that* part of my journey is over!!

I saw an oncologist at a Cancer Center in Kennebunk on Friday.  She will set up a consultation at Dana Farber in the next two weeks.  The cancerous polyp did not encroach into the uterine muscle - myeometrium.  But is was attached - or maybe just sitting on the inner uterine wall.  The Dana Farber pathologist will look over the slides from the specimens removed during surgery.

I think that probably I will end up having chemo - just to be sure.  This is all new for me - I don't even have the vocabulary to talk about it.

Are there other IAs who had no myeometrium involvement - and still had chemo?

Are there immunotherapy treatments that are appropriate for this type of cancer?

I need Cliff's Notes!