5-year milestone

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  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #22
    Dave S said:

    Post no. 2

    Just my 2nd post. I read some old posts about people on sunitinib (Sutent) as I am who last there sense of taste or had bad taste after taking Sutent. My taste has mostly disappeared and it makes eating almost a chore. I'm starting to lose weight because of it and I'm not a big person. One post talked about using L glutamine to get your sense of taste back , possibly in as little as 3 days. I have been taking it for 10days with no effect. I was wondering about the dosage, I followed the instructions on the bottle of 5 grams a day. Wondering if anyone has tried this or is aware of a different dosage?

    Hello and welcome Dave! You

    Hello and welcome Dave! You are posing an important question. So I would recommend you start a new post for more to answer your question about Sutent. Also, don't forget to go to SmartPatients.com too.

    Hugs, Jan

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #23
    Welcome Dr. Armit! And

    Welcome Dr. Armit! And congrats Foxy and others on your ever-growing years since diagnosis. Each year gained is a huge win for all of us!

    Hugs

    Jojo

  • Deanie0916
    Deanie0916 Member Posts: 626 Member
    edited March 2017 #24
    So wonderful to hear good news

    Congratulations to you on 5 years and to all the other survivors here!

  • DAC677
    DAC677 Member Posts: 59
    #25
    Jojo61 said:

    My 3 year was in December...

    My 3 year was in December....Congrats on yours! My oncologist said that a 3 years NED is a biggie for much lower chance of recurrence!

    Hugs

    Jojo

    3 years!

    Jojo, im sorry i missed this during my hiatus and didnt reply but 3 years is huge!

    The experts that I spoke to told me that 3 years is the new window or time frame that most of the stats are tied to. He said if we could make through three years that the odds of reccurrance drop significantly. Congrats!!!

  • foroughsh
    foroughsh Member Posts: 779 Member
    edited April 2017 #26
    Congrats

    Congrats

    So happy for you.thanks for sharing your good news with us

    Forough

  • Rob57
    Rob57 Member Posts: 25
    #27
    Congratulations

    That is great news! May the good news continue well into the future.

  • donna_lee
    donna_lee Member Posts: 1,045 Member
    edited April 2017 #28
    Congrats on 5 years.

    It is a milestone and any reason to celebrate is a good reason.

    What's with the badmouthing our Oregon Rain and Wind and Snow.  At least the snowpack is looking good for summer, except for the Wallowas.

    I used to be able to say no Hurricanes, Tornados, etc., but we've had some really nasty wind storms this winter.

    Good Luck,

    donna_lee

  • Bellweather
    Bellweather Member Posts: 102
    #29
    Almost at 6 years

    August 10th 2017 will be 6 years since my nephrectomy.  Glad to see more and more people pushing the envelope.

  • GregP
    GregP Member Posts: 22
    #30
    So happy to hear good news...

    So happy to hear good news....it lifts all our spirits and continues to give us all hope.....btw... My surgery is 1 week from today

    PS.....does everyone go on a certain drug afterwards?

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    edited April 2017 #31
    GregP said:

    So happy to hear good news...

    So happy to hear good news....it lifts all our spirits and continues to give us all hope.....btw... My surgery is 1 week from today

    PS.....does everyone go on a certain drug afterwards?

    Greg's question

    Greg,

     

     You asked a question about drugs afterwards. If it is a smaller tumer the surgery alone is often enough. You have not posted anything in your bio about your tumor etc. or with your question so it is a little hard to suggest where you may be on your journey in a vacum. Please start a new forum post with your details so we can help you move forward.

    Icemantoo

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #32
    Congrats to all for your

    Congrats to all for your bravery, perseverance ! Thanks for sharing with us here!

    Dr Armit, you'll be an even better surgeon because, well... you know!! Glad you are here!

    Hugs to all!! (3 years NED Dec 2016 for me)

    Jan

  • Darron
    Darron Member Posts: 310 Member
    #33
    Congrats on 5 years!

    Congrats on 5 years. I am a 2012 diagnosis as well. Still alive and kicking (well, skiing, golfing, and enjoying my kids).

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