33 diagnosed with 2.2cm Clear Cell Renal Carcinoma

Welcome! I had my robotic partial nephrectomy last year for a 2.9cm clear cell renal cell carcinoma. I was 38 so I know how it feels to be so young facing something you never dreamed you would! This group has been a fantastic, welcoming, resource. I give so much to these people for getting me through my diagnosis and surgery with my sanity!

Ambava.... my wife had her partial robotic today and we are in our room. She is resting comfortably right next to me. Im in this chair so I can get her water or whatever she needs I'm not going anywhere. She's eaten some Jello and a little bit of some frozen lemon-lime goop stuff. Lol

She had her pain meds Thru IV and told the nurse that it was about a 5 out of 10 right now so I'd say it's under control for the most part. The nurse said she is scheduled to get up and walk at 10 pm and at 6am.

I know how you are flipping out right now. My wife had several meltdown, we both did. But you are amongst friends here whether you know it or not. So glad that you found out early like we did. Our surgeons and medical teams do amazing things and yours will too.

Big hugs and well wishes.

ambava,

Don't try to  do too much too soon.

Icemantoo

Oh so sorry that you have this news and at a young age too. Thankful that it is small and that surgery will hopefully resolve this. Sending prayers and love your way. Feel free to ask any questions about anything, the people on here are wonderful and full of wisdom.

Hi, Ambava:

I was 47 and a very healthy man when I was diagnosed, so I know exacly what you are feeling and going through.  Young or older we've all been there and share the same fear and anxiety.  With the size of yor tumor, try to stay positive and focus on the fact that surgery will take care of your cancer.  As you approach your surgery date, ask us questions that come up.  We'll try to help as much as you want.

Blessings,

Stub 

Hi, my name is Steve and I have (had) cancer. Then we tell our story for our own benefit and hopefully for the benefit of others. Some people here can answer technical questions but the best thing is to hear from people who made the same journey and survived. It was very good for me to hear from all of you.

I think I just said something that was already obvious to all. :-)

Steve.

PS: I am not an alcoholic...

I had a similar sized lesion.  I didn't have a biopsy when it was diagnosed in late 2013.  My urologist said it was standard practice to monitor it.  So, we monitored it with scans every six months.  It wasn't until April, 2016 that an ultrasound determined the little bugger had grown slightly that the urologist decided it was time to treat it.  Ablation and surgery were the two options, and he recommended the surgery, as the overall success rate was higher.  So, on June 22nd, I had a robotic assisted partial.  I got to the hospital around noon and I was released the next day at 1:30, so 25-1/2 hours in the hospital.  I had virtually no post-op pain (though reading the experiences of other people, I guess I'm unusual in that regard).  It turned out I had chromophobe RCC.  Chromophobe seems to be a pretty non-aggressive form that grows very slowly, rarely spreads and rarely recurs.  I had my first post-op scan and x-ray in January and they were both clean.  The surgeon wants me to get another scan in six months, then, if it's still clean, switch to annual scans.

it sucks to have what we have.  But it's been found early and surgery will very likely mean you can be just like me.....and bug the living daylights out of everyone for a long, long time.  Well, at least that's my plan.

ambava33 said:

Foxhd,

Foxhd,

So very true! I have anxiety now though about if I have this kidney cancer what other cancer is in my body that we don't know about and when is it going to rear it's ugly face. I mean I feel invaded, I know that's silly but I do. I have gotten two opinions and my second doctor is very skilled and works for Washington Univeristy and has done 100's of the robotic surgeries, so I feel I am in good hands. 

I felt that fear too, about other cancers. Then I looked at it this way, I will be scanned and followed on a regular basis. Where others might not know something is there until it's causinh symptoms and/or large, IF you ever had something else it will be caught super early. So in a way, we are lucky to be watched so closely.