Bleeding Update

mrou50
mrou50 Member Posts: 389 Member
in Kidney Cancer #1

My Onc/Med team have decided to take me off of the Cabo for a couple of weeks, in part because I have oral surgery on Tuesday, and because they are concerned with all of the bleeding.  I have been very ill since switching to Cabo even more so then when I was on Votrient.  I have been considering discontinuing all chemo and just sticking with radiation, and surgeries as needed.  The chemo treatments have made me very ill most of the time and with exception to Votrient nothing has worked, the votrient worked for six months that was nice and worth all of the flu like symptoms that occured everyday.  I know my med team is leaving it up to me I do have a tumor on my remaining kidney so that would have to be worked on right away.  I will make my decision by next week, but I am open to thoughts, or advice.

Mark

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Comments

  • hardo718
    hardo718 Member Posts: 853 Member
    #2
    I truly believe

    These are personal decisions Mark.  Only you can decide what is best for you. 

    I will be praying for you, as always.  I wish you only the best.

    Donna~

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    edited November 2016 #3
    Hey Mark, sorry you are in

    Hey Mark, sorry you are in this dilemma. Perhaps more folks will post and give you their opinion.

    I wonder why you are having oral surgery? I guess it must be necessary,otherwise who'd want to go through all that?

    Sit quietly, in a serene place that offers you comfort. Just let everything go inside your head (best you can).

    Trust your "inner voice" will guide you in this decision. Rest in quietness..

    The truth-answer will come to you. After you empty your mind, pow, something or someone will say words that suddenly will make sense. Trust that..best you can.

    I am here for you.. all the way

    Sending you peaceful moments, with serenity and a knowingness that cannot be missed..

    Hugs, jan

  • stub1969
    stub1969 Member Posts: 978 Member
    edited November 2016 #4
    Decisions

    Hi, Mark.  I can't imagine the wrestling that your emotions are going through.  You have a fighting spirit and strong heart--that is easy to tell by your personal page.  I like to think I too have the internal fortitude that you do, Mark.  At this point in my cancer journey I have not followed the same path as you, so I can only imagine what I would do if I was in your place.  Because of that I agree with the responses  from both Donna and Jan.  Look within yourself to determine the answer.  Pray and ask God to guide you.  If you listen He will answer.

    Blessings,

    Stub

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    edited November 2016 #5
    Hobson's Choice

    I feel for you, and it has to be your decision. I'm not qualified to give advice, I would ask your medical team who are far more qualified than I. Are there any new treatments coming down the line? What are the consequences of you're choices? Are these new surgeries either urgent or necessary?

    Good luck. You know we'll all be rooting for you

     

  • Deanie0916
    Deanie0916 Member Posts: 626 Member
    edited November 2016 #6
    Prayers

    Praying for you to have guidance to make the decision that fits. Prayers for healing in all ways. God bless.

  • mrou50
    mrou50 Member Posts: 389 Member
    #7
    Jan4you said:

    Hey Mark, sorry you are in

    Hey Mark, sorry you are in this dilemma. Perhaps more folks will post and give you their opinion.

    I wonder why you are having oral surgery? I guess it must be necessary,otherwise who'd want to go through all that?

    Sit quietly, in a serene place that offers you comfort. Just let everything go inside your head (best you can).

    Trust your "inner voice" will guide you in this decision. Rest in quietness..

    The truth-answer will come to you. After you empty your mind, pow, something or someone will say words that suddenly will make sense. Trust that..best you can.

    I am here for you.. all the way

    Sending you peaceful moments, with serenity and a knowingness that cannot be missed..

    Hugs, jan

    Oral Surgery

    The oral surgery is just an extraction of a difficult tooth that has began to crumble inside my jaw.  The dentist felt that given my bleeding issues it was best to have an oral surgeon do it that is also an MD. I am okay with this as I get nervous at the dentist so being put to sleep will help me with the stress and having an oral surgeon/MD there in case there is issues with bleeding can put my mind at ease somewhat.

    Mark

  • LauraM3
    LauraM3 Member Posts: 27
    #8
    Prayers and a Hug

    Prayers and lots of hugs...

  • Allochka
    Allochka Member Posts: 1,072 Member
    edited November 2016 #9
    Have you received a second

    Have you received a second opinion on this? 

  • todd121
    todd121 Member Posts: 1,448 Member
    edited November 2016 #10
    Advice

    I wouldn't/can't assume to know enough to give advice. Perhaps another member can.

    Sending you warm wishes and hope you get the help you need to make your decision.

    Hugs,

    Todd

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #11
    mrou50 said:

    Oral Surgery

    The oral surgery is just an extraction of a difficult tooth that has began to crumble inside my jaw.  The dentist felt that given my bleeding issues it was best to have an oral surgeon do it that is also an MD. I am okay with this as I get nervous at the dentist so being put to sleep will help me with the stress and having an oral surgeon/MD there in case there is issues with bleeding can put my mind at ease somewhat.

    Mark

    I see. Oral surgery is also a

    I see. Oral surgery is also a source of infection, to remove it, yet open up the area to bacteria. Be very careful and

    follow all post op directions. NOTHING with carbonation, no smoking (don't think you do), no straws, lots of ice. It usually heals up pretty fast (used to work in the dental field).

    Hugs to you...dang, enuff!

    Jan

  • mrou50
    mrou50 Member Posts: 389 Member
    #12
    Jan4you said:

    I see. Oral surgery is also a

    I see. Oral surgery is also a source of infection, to remove it, yet open up the area to bacteria. Be very careful and

    follow all post op directions. NOTHING with carbonation, no smoking (don't think you do), no straws, lots of ice. It usually heals up pretty fast (used to work in the dental field).

    Hugs to you...dang, enuff!

    Jan

    Oral Surgery

    The procedure went well there was some bleeding but not excessive and I have already began taking anti biotics to avoid infection. I am taking pain pills for the pain and they seem to be working fine.  Thanks to everyone.

    Mark

  • APny
    APny Member Posts: 1,995 Member
    edited November 2016 #13
    No advice, just hugs and

    No advice, just hugs and wishes for the very best. I'm sure you'll reach the right conclusion; one that is best for you.

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #14
    Big hugs, thoughts and prayers

    Big hugs, thoughts and prayers are coming your way, Mark. You have a lot of decision making ahead of you. Wishing you peace.

    Hugs

    Jojo

  • NewDay
    NewDay Member Posts: 272
    #15
    Wound healing

    I know it is too late to offer this now, but have not been here in a long while.  Many of the drugs for kidney cancer can cause wound healing complications.  Please be sure not to start back on on the cabo too soon and contact your doc if anything seems unusual.  I hope all goes well.  This is on the box warning:

    Wound Healing Complications

    This medication can lead to slower or incomplete wound healing, such as a surgical wound not healing or staying closed. Therefore, it is recommended that the medication be discontinued 28 days prior to any surgery. In addition, any surgical incision should be fully healed prior to starting or restarting the medication. If you have a surgical wound that has not healed or begins to have signs of infection (redness, swelling, warmth), report this to your healthcare team.

    Kathy

     

  • nancybuck
    nancybuck Member Posts: 117
    edited December 2016 #16
    Healing Thoughts

    Thinking of you and sending prayers your way.

     

    Nancy

  • mrou50
    mrou50 Member Posts: 389 Member
    #17
    Update

    The oral surgery went well, I have been off the Cabo for almost three weeks now and no more bleeding issues.  My Cancer team want me to start the Cabo back up next week but on  lower dose. I have agreed to this but I told them if I start feeling as sick as I was or start bleeding like I was I will probably go off of it. 

    Mark

  • stub1969
    stub1969 Member Posts: 978 Member
    #18
    Good Luck

    Mark, I wish you luck with round two of Cabo.  I'll be saying prayers for you and sendng positive thoughts your way.  Please keep us updated.

    Stub

  • hardo718
    hardo718 Member Posts: 853 Member
    #19
    Still praying for you Mark

    May God richly bless you and keep you safe, especially in this beautiful time of year.  You're an inspiration, truly.

    Donna~

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    edited December 2016 #20
    Oh Yay Mark!! Glad to hear

    Oh Yay Mark!! Glad to hear some good news for you! I meant it!! :)Laughing

    Keep in touch, as you can see we CARE about YOU!!

    Hugs, Jan

  • lobbyist0724
    lobbyist0724 Member Posts: 515 Member
    #21
    It is great that you have

    It is great that you have received the good news before the holiday season, good news is always the best present! Looking forward for more good news from you!

    Carmen

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