Has anybody heard from brissance (Patty)?

EZLiving66
EZLiving66 Member Posts: 1,483 Member

I haven't seen anything from Patty since November 9th here and on Facebook since November 10th.  She had been hospitalized but then seemed to be doing better.  Patty, if you can see this, just give a thumbs up!!  I'm worried about you!!

Love,

Eldri

 

Comments

  • Nellasing
    Nellasing Member Posts: 528 Member
    I've been wondering and sent out a post

    I got not reply :(  I keep praying everything is ok.  I wish there was a way to know- miss her little peppermint patty self!!!!  <3

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    I've been hoping

    we'd hear from her soon.  Also I'm concerned about HellieC (Helen from U.K.).  Anyone heard from her?  She hasn't signed on since August.

  • MAbound
    MAbound Member Posts: 1,168 Member
    Thank you!

    Thanks Eldri, I've been wanting to ask about Patti for days now, but didn't want to be pushy about it if she doesn't have the energy to keep us posted. I think about her (but not just her!) every day! If you see this Patti, you have a lot of people here who care and are praying for you. I'd love to hear how things are going for Becca and Chris, too, but feel free to maintain your privacy if you need that. Just know that I'm hoping all is well with what you're dealing with, too. 

  • Editgrl
    Editgrl Member Posts: 903 Member
    Hi, guys...

    I've been in and out of town and now I've got a substantial amount of work, so I haven't been on here too much.

    I did manage to squeeze in a couple of phone appointments with my gyn/onc and my medical oncologist last week.  The upshot is, for right now, we are watching and waiting.  My gyn/onc offered three scenarios:  chemo and rads, chemo only, and monitoring for 3 months and then do another scan, unless I develop symptoms sooner.  He said monitoring was a reasonable option given that no one is willing to say what appeared on the scan is a recurrence.  I'm just not willing to subject my body to the rigors of either taxotere/gemzar or, more likely, doxil/avastin, which is what my medical onc thought we should do, without knowing for sure.  However, like daylady's doc, she gave me the 20% response rate statistics.  I know how we all feel about statistics, but for the moment, I'm going to let that lie. My gyn/onc was very much in favor of me working with my naturopath and in his words, "researching and investigating whatever else might be out there."

    I have consulted with my naturopath and we are being more aggressive, adding more medicinal mushrooms to my supplements, and changing up some other things.  I also did a nutrient panel which will be helpful when I get the results back.  So I'm going to enjoy the rest of the year and the holidays, and be fired up and ready to deal with whatever the new year may bring.

    I too, have missed Patti's posts, and I hope that she is just resting and recovering.

    Chris

  • Nellasing
    Nellasing Member Posts: 528 Member
    edited November 2016 #6
    Editgrl said:

    Hi, guys...

    I've been in and out of town and now I've got a substantial amount of work, so I haven't been on here too much.

    I did manage to squeeze in a couple of phone appointments with my gyn/onc and my medical oncologist last week.  The upshot is, for right now, we are watching and waiting.  My gyn/onc offered three scenarios:  chemo and rads, chemo only, and monitoring for 3 months and then do another scan, unless I develop symptoms sooner.  He said monitoring was a reasonable option given that no one is willing to say what appeared on the scan is a recurrence.  I'm just not willing to subject my body to the rigors of either taxotere/gemzar or, more likely, doxil/avastin, which is what my medical onc thought we should do, without knowing for sure.  However, like daylady's doc, she gave me the 20% response rate statistics.  I know how we all feel about statistics, but for the moment, I'm going to let that lie. My gyn/onc was very much in favor of me working with my naturopath and in his words, "researching and investigating whatever else might be out there."

    I have consulted with my naturopath and we are being more aggressive, adding more medicinal mushrooms to my supplements, and changing up some other things.  I also did a nutrient panel which will be helpful when I get the results back.  So I'm going to enjoy the rest of the year and the holidays, and be fired up and ready to deal with whatever the new year may bring.

    I too, have missed Patti's posts, and I hope that she is just resting and recovering.

    Chris

    Hi Chris

    That is a great update - working steady and a plan for moving forward with your naturopath and your onc agreeing- all sounds positive!  I am doing the medicinal mushrooms in both tincture and caps.  Are you doing Pectasol?  That is supposed to stop mets.    ((HUGS)) <3<3

  • janaes
    janaes Member Posts: 799 Member
    Im glad you are doing what

    Im glad you are doing what you are doing Chris. I hope you enjoy your holiday season. 

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    janaes said:

    Im glad you are doing what

    Im glad you are doing what you are doing Chris. I hope you enjoy your holiday season. 

    Hey, Chris

    Sounds like a good plan.  

  • MAbound
    MAbound Member Posts: 1,168 Member
    Good to hear

    That sounds like a good plan when there's still uncertainty about whether or not what you have is recurrance. So glad you'll be able to enjoy the holidays, but sure wish you didn't have any of this hanging over your head. Happy Turkey Day everyone!

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    edited November 2016 #10
    Chris, Thanks for updating us

    Chris, Thanks for updating us.  I'm glad you decided to go the watch approach since they don't know if you have mets or not. My sister had pancreatic cancer and they removed almost half of her pancreas. She has a cyst on the other part that they have been watching for 2 years now. She gets MRIs every 3 months. So far, so good - no growth and no cancer. I'm hopeful that yours ends up doing the same darn thing!  Enjoy your holidays and I know you are going to approach this next year with loads of strength.

    Love and Hugs,

    Cindi

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    I'm glad to hear from you too

    I'm glad to hear from you too, Chris.  I like this plan.  Why subject your body to those horrible chemo drugs when you don't even know what's going on?  Have a great Thanksgiving!

    Love,

    Eldri

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited November 2016 #12
    Editgrl said:

    Hi, guys...

    I've been in and out of town and now I've got a substantial amount of work, so I haven't been on here too much.

    I did manage to squeeze in a couple of phone appointments with my gyn/onc and my medical oncologist last week.  The upshot is, for right now, we are watching and waiting.  My gyn/onc offered three scenarios:  chemo and rads, chemo only, and monitoring for 3 months and then do another scan, unless I develop symptoms sooner.  He said monitoring was a reasonable option given that no one is willing to say what appeared on the scan is a recurrence.  I'm just not willing to subject my body to the rigors of either taxotere/gemzar or, more likely, doxil/avastin, which is what my medical onc thought we should do, without knowing for sure.  However, like daylady's doc, she gave me the 20% response rate statistics.  I know how we all feel about statistics, but for the moment, I'm going to let that lie. My gyn/onc was very much in favor of me working with my naturopath and in his words, "researching and investigating whatever else might be out there."

    I have consulted with my naturopath and we are being more aggressive, adding more medicinal mushrooms to my supplements, and changing up some other things.  I also did a nutrient panel which will be helpful when I get the results back.  So I'm going to enjoy the rest of the year and the holidays, and be fired up and ready to deal with whatever the new year may bring.

    I too, have missed Patti's posts, and I hope that she is just resting and recovering.

    Chris

    Chris

    So glad to hear from you. I am happy you now have a plan, sounds like a good idea to me.  I have an elderly freind at church who has two small tumors in her breast that they are waiting and seeing,on.  And the last CT scan she,had,show,that they were smaller.  No,treatment for her and it is just fine.  Have a wonderful Thanksgiving

    Hugs and prayers, Lou Ann