Caregiver Chat Room

heartbroken2
heartbroken2 Member Posts: 1
edited March 2014 in Caregivers #1
I see a lot of references to a Caregive Chat Room but cannot find the link on this website to get to it. Can anyone tell me how to find it?

Comments

  • slickwilly
    slickwilly Member Posts: 334 Member
    #2
    heartbroken2
    click on csn home and the center column will have chat rooms listed. Slickwilly
  • glasus
    glasus Member Posts: 34
    #3
    slickwilly said:

    heartbroken2
    click on csn home and the center column will have chat rooms listed. Slickwilly

    chatroom






    Hi'i am new here also, aren't the chats on tuesdays at 6;00 pm cdt?
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    #4
    glasus said:

    chatroom






    Hi'i am new here also, aren't the chats on tuesdays at 6;00 pm cdt?

    chat
    The chat room is open 24/7. The chat you are referring to is the Caregiver session, but the room is open all of the time, and both survivors and caregivers are welcome to be there at any time.

    Typically, there is a group that shows up in the morning, then another small bunch around lunchtime, and then after say 5PM, 6PM EDT.

    Hope this helps.

    Take care,

    Joe
  • mizray
    mizray Member Posts: 8
    #5
    soccerfreaks said:

    chat
    The chat room is open 24/7. The chat you are referring to is the Caregiver session, but the room is open all of the time, and both survivors and caregivers are welcome to be there at any time.

    Typically, there is a group that shows up in the morning, then another small bunch around lunchtime, and then after say 5PM, 6PM EDT.

    Hope this helps.

    Take care,

    Joe

    chat rooms
    Hello,

    Is there a trick to getting into the chat rooms. When I click on it, a page comes up that says the rooms will open momentarily and if they don't open in 10 seconds, to click the "connect" button below. I don't have a connect button below.
    You said the caregiver group is 6pm cdt? Is that 5pm eastern time?

    Thanks for your help.

    I just found this site and am enjoying it very much. It is comforting to find that others are going through the same things I am (caring for husband with phase 4 laryngeal/tongue cancer). There are times that I have thought that I am just a weak, unfit caregiver. But now I am beginning to see that I am "normal". At least in that aspect.

    Michele
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    #6
    mizray said:

    chat rooms
    Hello,

    Is there a trick to getting into the chat rooms. When I click on it, a page comes up that says the rooms will open momentarily and if they don't open in 10 seconds, to click the "connect" button below. I don't have a connect button below.
    You said the caregiver group is 6pm cdt? Is that 5pm eastern time?

    Thanks for your help.

    I just found this site and am enjoying it very much. It is comforting to find that others are going through the same things I am (caring for husband with phase 4 laryngeal/tongue cancer). There are times that I have thought that I am just a weak, unfit caregiver. But now I am beginning to see that I am "normal". At least in that aspect.

    Michele

    Michele
    I am not sure if that caregiver's group is still meeting every tuesday evening (it would be 7pm EST), but caregivers are welcome in the chat room at ANY time, and there is typically a healthy mix of survivors and caregivers in the room, when people can get into it :).

    There have been some issues with some folks not being able to get in, both 'oldtimers' and newcomers. CSN is aware of this. However, if you cannot get in (it takes longer than 10 seconds, trust me, for the new window to open) writer to the webmaster and let him/her know. They may be able to help you.

    Best wishes with that. Look forward to seeing you in the room.

    Take care,

    Joe
  • mizray
    mizray Member Posts: 8
    #7
    soccerfreaks said:

    Michele
    I am not sure if that caregiver's group is still meeting every tuesday evening (it would be 7pm EST), but caregivers are welcome in the chat room at ANY time, and there is typically a healthy mix of survivors and caregivers in the room, when people can get into it :).

    There have been some issues with some folks not being able to get in, both 'oldtimers' and newcomers. CSN is aware of this. However, if you cannot get in (it takes longer than 10 seconds, trust me, for the new window to open) writer to the webmaster and let him/her know. They may be able to help you.

    Best wishes with that. Look forward to seeing you in the room.

    Take care,

    Joe

    Thanks
    Thank you for your help.

    Michele
  • gthufford
    gthufford Member Posts: 34
    #8
    mizray said:

    chat rooms
    Hello,

    Is there a trick to getting into the chat rooms. When I click on it, a page comes up that says the rooms will open momentarily and if they don't open in 10 seconds, to click the "connect" button below. I don't have a connect button below.
    You said the caregiver group is 6pm cdt? Is that 5pm eastern time?

    Thanks for your help.

    I just found this site and am enjoying it very much. It is comforting to find that others are going through the same things I am (caring for husband with phase 4 laryngeal/tongue cancer). There are times that I have thought that I am just a weak, unfit caregiver. But now I am beginning to see that I am "normal". At least in that aspect.

    Michele

    Chat Rooms
    I can't get in either, but I think it is because of a security setting on my computer. I have sent an email to CSN tech support to see if they have a fix for this issues. Once I hear back from them, I'll post what they suggest.

    Can't wait to get on there - sounds like a great place to give/get support.
  • mizray
    mizray Member Posts: 8
    #9
    gthufford said:

    Chat Rooms
    I can't get in either, but I think it is because of a security setting on my computer. I have sent an email to CSN tech support to see if they have a fix for this issues. Once I hear back from them, I'll post what they suggest.

    Can't wait to get on there - sounds like a great place to give/get support.

    I will be waiting
    Hello,

    I will be waiting to hear what you find out. I wrote to the webmaster, but have not heard back yet.

    Michele
  • gthufford
    gthufford Member Posts: 34
    #10
    mizray said:

    I will be waiting
    Hello,

    I will be waiting to hear what you find out. I wrote to the webmaster, but have not heard back yet.

    Michele

    CSN response
    Here is the reply email that I received:
    ____________________________
    Hi,

    Some members have had problems accessing chat and our technical folks have not been able to find the cause in order to correct it. However, it seems that most with access problems have a dial-up connection. What sort of connection are you using?

    We are in the process of upgrading to a new, enhanced chat tool that should eliminate the problems. We anticipate it will be implemented soon.

    Your CSN Staff
    American Cancer Society Cancer Survivors Network®
    ______________________________

    Anyway - I have a high speed connection that I use at both work and home, so I don't think that is the problem. I guess we'll have to wait until the upgrade is completed - thanks.
  • longingforhope
    longingforhope Member Posts: 60
    #11
    mizray said:

    I will be waiting
    Hello,

    I will be waiting to hear what you find out. I wrote to the webmaster, but have not heard back yet.

    Michele

    Fellow Care Giver
    Michele,

    I know the anxiety, exhaustion, uncertainty and just plain fear of being a care giver. That has been my "new" career since Aug 2008. One day I was in nursing school and working in home health care the next I was living the cancer nightmare all of us endure.

    It's very lonely and confining and this website is a God send. Please feel free to lean on me when you need a shoulder. Somedays it's so overwhelming you can hardly get out of bed I know.

    Feel free to send me a private message. I can understand what you are going through.

    God Bless

    LH
  • charbannon
    charbannon Member Posts: 8
    #12
    longingforhope said:

    Fellow Care Giver
    Michele,

    I know the anxiety, exhaustion, uncertainty and just plain fear of being a care giver. That has been my "new" career since Aug 2008. One day I was in nursing school and working in home health care the next I was living the cancer nightmare all of us endure.

    It's very lonely and confining and this website is a God send. Please feel free to lean on me when you need a shoulder. Somedays it's so overwhelming you can hardly get out of bed I know.

    Feel free to send me a private message. I can understand what you are going through.

    God Bless

    LH

    speaking of being late,
    hi lh,sorry i'm late getting back with this,as to the fact, i just got in to this network.i hope you did'mt give up on checking to see if anyone did reply, i feel it is worth the chance of trying. when you say"next i was living this nightmare, do you mean you have cancer, or a loved one. myself i am a caregiver for my husband, he has esophageal cancer stage4 which spread to his hip bone. ill tell more if i know your still on this network, hop you are LH
  • anotherid
    anotherid Member Posts: 1
    edited September 2016 #13
    I am new here

    hi, my wife has urothelial carcinoma and has been fighting cancer since 2012. It got bad last december. I have been caring for her 24/7 since January. she is now in hospice at home. weeks to months left. Hard to watch her suffer. She has 5 or 6 reasonable hours per day. Final family visits. etc. I just want some folks to talk to who are going through the same stuff.

  • jorola
    jorola Member Posts: 243 Member
    #14
    anotherid said:

    I am new here

    hi, my wife has urothelial carcinoma and has been fighting cancer since 2012. It got bad last december. I have been caring for her 24/7 since January. she is now in hospice at home. weeks to months left. Hard to watch her suffer. She has 5 or 6 reasonable hours per day. Final family visits. etc. I just want some folks to talk to who are going through the same stuff.

    The CSN Chatroom is often busy every night between 8-10 mtn time

    Come join us there and chat with other caregivers and survivors for support.

    You can find the link on the the left hand side in the brownish red area where is says CSNChatroom

  • Jacsmom6
    Jacsmom6 Member Posts: 1 *
    #15
    https://csn.cancer.org/discussion/166986/caregiver-chat-room

    Hello I agree

  • CSNSupportTeam
    CSNSupportTeam admin Posts: 224
    #16
    https://csn.cancer.org/discussion/comment/1711515#Comment_1711515

    Hello Jacsmom6,

    You can access the chatroom by clicking on the link at the top of the page labeled 'CSN Chatroom'. There is only one chatroom, and it is open to both patients and caregivers. Members are usually active in the late evening. Please feel free to stop by later today if you would like to connect with others.

    Best,

    Nydia

    CSN Support Team

  • MICHELS
    MICHELS Member Posts: 1 *
    #17

    Hi, I am a caregiver for my son (26), he was diagnosed with leukemia Feb 11, 2022. I am looking for someone to talk to, but also wanted to know if there is any help for college for him or how to pay for his ponatnib (oral chemo drug) thank you to anyone that can point me in the right direction.

  • CSNSupportTeam
    CSNSupportTeam admin Posts: 224
    #18

    Hello MICHELS,

    For help locating programs that can provide financial assistance to patient with cancer for needs such as college tuition or with medication costs please contact the National Cancer Information Center at 1-800-227-2345 or through their website chat service on www.cancer.org. Cancer information specialists will be available to help you at any time of the day via phone, and Monday – Friday from 8 AM – 6:30 PM CST on chat.

    Best regards,

    Anne

    CSN Support Team

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