Meeting Mr. NED

fishmanpa
fishmanpa Member Posts: 1,227 Member
edited August 2016 in Head and Neck Cancer #1

Just a note folks....

3.5 years out - NED. Despite lingering side effects (definitely a PITA but all part of the "new normal") I'm functioning at 90+% pre cancer in terms of saliva, swallowing, eating, taste etc. Rad Onc couldn't have been more pleased. next poke, scope and prod in Feb. 2017. 

Keep up the good fight!

Positive thoughts and prayers

"T"

 

Comments

  • Fritz
    Fritz Member Posts: 106
    #2
    Congrats!

    I hope to follow in your footsteps! Just finished treatments on 7/15/16 with first PET scheduled in October. Hope my news for the next few years is as good as yours. 

    Hope all of your future scans work out the same!!

    Freddie

  • Kari2007
    Kari2007 Member Posts: 108
    edited August 2016 #3
    Mr. T

    Thats great news! I'm also hoping to follow in your footprints.

    Kari

  • MarineE5
    MarineE5 Member Posts: 1,034 Member
    #4
    Outstanding

    This is good news to hear "T". I remember when you joined the "Club" that no one wants to be a part of as Phrannie51 often states. I am also happy to read that your saliva and other functions have returned to almost 100%. And last but not least, your voice and ability to sing at a high level once again. 

    My Best to You and Everyone Here

  • wmc
    wmc Member Posts: 1,804
    #5
    Great news "T"

    Always love to hear NED

    Bill

  • phrannie51
    phrannie51 Member Posts: 4,716
    edited August 2016 #6
    Whoo Hoo T!!!

    You keep on truckin' my friend.  Love to hear those words!

    p

  • hlrowe
    hlrowe Member Posts: 80
    #7
    Yeppers! 

    Yeppers! Cool

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #8
    WooHoo

    WTG T Bone.., glad to hear the abi-normal news..

  • Guzzle
    Guzzle Member Posts: 710
    edited August 2016 #9
    Groovy

    Great news mate! 

  • Raddude
    Raddude Member Posts: 84
    #10
    Congrats T

    congrats t

  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    edited August 2016 #11
    NED

    Hi “T“,

    I’ve met him, nice guy.

    Glad to hear the news.

    Matt

     d

     

  • donfoo
    donfoo Member Posts: 1,773 Member
    #12
    Nice!

    Always great to hear NED reports. Glad to hear side effects are being kept at bay. 

  • robswife87
    robswife87 Member Posts: 209
    #13
    Awesome

    T

    So happy to here all is good in your world. We are 3 months behind you and have Rob's appt tomorrow. He had a chest CT in January and it was all good, so we expect to hear the same words tomorrow that NED is still our friend. He has gotten about 70% saliva and taste back, doesn't have a great sense of smell anymore, and suffers from myoclonus, which they have no idea why, so we now have a neurologist in our portfolio. Had a neck and brain MRI and he has a neck and a brain (could have fooled me sometimes) and they really don't know why he has the myoclonus but Keppra keeps it uder control pretty good. All in all life is good.

    Sandy

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