update janae

janaes
janaes Member Posts: 799 Member

So it my day after chemo.  Ive been fine.  I ussually am on this day.  I guess what i really want to say is my update on my joint pain.  In another thread i mentioned that i didnt know if this eggshell membraine for my joint pain in my legs was working.  I have been observing this for the last five or so days.  I think i had one day it felt like it was still bothersome but to be honest the other days it seemed to be improving.  I hope its the eggshell membraine working.  I guess i would be okay if the pain was just going away.  I just have a hard time thinking that is it.  just to good to be true.  Im hoping my joint pain will stay this way.  I also lined up me next chemo for thurday in three weeks.  I have been doing them on tuesday but i wanted to do them on thursday so i can hopefully go back to work and have the weekend to recover.  we will see about that.  Im still not sure if it is going to work.  the next few days are going to say alot.  Im just glad the joint pain is feeling better for now.

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Comments

  • Editgrl
    Editgrl Member Posts: 903 Member
    edited July 2016 #2
    Janae

    I'm glad the eggshell membrane seems to be working for you.  I had never heard of this until I read about it on this board.  Just take things one day at a time, as you seem to be doing.

  • janaes
    janaes Member Posts: 799 Member
    Good thing i enjoyed those

    Good thing i enjoyed those days because the pain in my legs is back.  I cant figure out why.  I did diside to not take claritin and alive this time in hopes i wouldnt get dizzy like last treatment. I dont know if thats it.  Its day 6 now and and im not dizzy which is good.  not a very good trade off though.  This living a day at a time is so benifitial.  I still got to work on that one still though. 

  • brissance
    brissance Member Posts: 192
    Editgrl said:

    Janae

    I'm glad the eggshell membrane seems to be working for you.  I had never heard of this until I read about it on this board.  Just take things one day at a time, as you seem to be doing.

    Sexy Lady

    Had to jump in and comment on how darn sexy you look!  Love the hair.  

     

  • brissance
    brissance Member Posts: 192
    edited August 2016 #5
    Tough

    Not fun deciding whether to be dizzy or have pain..  I choose - neither, thank you.  I sure hope you feel better soon and hang in there.  

  • Editgrl
    Editgrl Member Posts: 903 Member
    brissance said:

    Sexy Lady

    Had to jump in and comment on how darn sexy you look!  Love the hair.  

     

    Aw, thanks!  I figured since

    Aw, thanks!  I figured since my hair was pretty much back to normal, a new photo was needed. I'll be coming up on my second post-chemo haircut soon.

  • Editgrl
    Editgrl Member Posts: 903 Member
    janaes said:

    Good thing i enjoyed those

    Good thing i enjoyed those days because the pain in my legs is back.  I cant figure out why.  I did diside to not take claritin and alive this time in hopes i wouldnt get dizzy like last treatment. I dont know if thats it.  Its day 6 now and and im not dizzy which is good.  not a very good trade off though.  This living a day at a time is so benifitial.  I still got to work on that one still though. 

    Dang it!

    Sounds like maybe the Claritin did cause your dizziness. Yeah, you're right, not a great trade-off.  I was really hoping the eggshell membrane was going to be the answer for you.

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    Editgrl said:

    Aw, thanks!  I figured since

    Aw, thanks!  I figured since my hair was pretty much back to normal, a new photo was needed. I'll be coming up on my second post-chemo haircut soon.

    Chris, you look great and I

    Chris, you look great and I love the new hairdo!!  I haven't had a haircut yet and my hair just seems to be growing out crazily (is that a word??).  Maybe I'll try getting it trimmed.  I'll take YOUR picture along with me to my hairdresser and tell her "I want to look like this!"  LOL  When was your last chemo??

    Love,

    Eldri

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    I'm sorry, Jana! I went

    I'm sorry, Jana! I went through hell and back with chemo side effects.  How are you feeling today?  Any better?  (((Jana)))

    Love,

    Eldri

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member

    Chris, you look great and I

    Chris, you look great and I love the new hairdo!!  I haven't had a haircut yet and my hair just seems to be growing out crazily (is that a word??).  Maybe I'll try getting it trimmed.  I'll take YOUR picture along with me to my hairdresser and tell her "I want to look like this!"  LOL  When was your last chemo??

    Love,

    Eldri

    Chris - You do LOOK GREAT!

    Chris - You do LOOK GREAT! Healthy, happy and one hot lady! I can't believe you are already due for a second hair cut!

    Eldri - I haven't had a hair cut yet and mine is starting to do some weird things as well. I'm still learning what to do with curly hair. And the top seems to be growing much slower than the sides. I'm planning to wait a while before I get it cut since I want it to grow longer - closer to shoulder length again.  I'm just glad to have hair again so that I don't have to wear any covers! :-)

    Love and Hugs,

    Cindi

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    edited August 2016 #11
    Janaes, I sure hope you are

    Janaes, I sure hope you are feeling better today. That leg pain is the pits.

    Take care and remember this will pass.

    Love and Hugs,

    Cindi

  • beccabtown
    beccabtown Member Posts: 234
    Editgrl said:

    Aw, thanks!  I figured since

    Aw, thanks!  I figured since my hair was pretty much back to normal, a new photo was needed. I'll be coming up on my second post-chemo haircut soon.

    I love the haircut, too,

    I love the haircut, too, Chris.

    (Writing from the infusion center, where I'm having Round #3, end of Phase 1 of the sandwich regime.)

  • Editgrl
    Editgrl Member Posts: 903 Member

    Chris, you look great and I

    Chris, you look great and I love the new hairdo!!  I haven't had a haircut yet and my hair just seems to be growing out crazily (is that a word??).  Maybe I'll try getting it trimmed.  I'll take YOUR picture along with me to my hairdresser and tell her "I want to look like this!"  LOL  When was your last chemo??

    Love,

    Eldri

    Crazy hair

    Mine has grown out very wavy, and by the end of May, especially at the back of my neck, it was flipping up and doing all sorts of weird stuff.  My last chemo was mid-December and by the first of July, it was messy enough to be styled and trimmed.

  • MAbound
    MAbound Member Posts: 1,168 Member
    janaes said:

    Good thing i enjoyed those

    Good thing i enjoyed those days because the pain in my legs is back.  I cant figure out why.  I did diside to not take claritin and alive this time in hopes i wouldnt get dizzy like last treatment. I dont know if thats it.  Its day 6 now and and im not dizzy which is good.  not a very good trade off though.  This living a day at a time is so benifitial.  I still got to work on that one still though. 

    What about just

    What about just trying the ibuprofen without the Claritin? 

    After making me think I was going to skate through my 4th round of chemo (carbo/taxotere), it hit me like a ton of bricks a day later than usual and I'm just starting to feel like I'm on the upswing from it today. Besides extreme weakness, I was hit with muscle and bone pain in my calves and shins. A bit different from the neuropathy pain I had, which is almost gone now. My feet and ankles weren't involved this time. 600 mg. ibuprofen really helped and seemed to last for almost a day and a half before I needed to take another one.  Yesterday I cut back to 400 mg. and that was enough and I'm still good today.

     

  • MAbound
    MAbound Member Posts: 1,168 Member
    edited August 2016 #15
    Editgrl said:

    Aw, thanks!  I figured since

    Aw, thanks!  I figured since my hair was pretty much back to normal, a new photo was needed. I'll be coming up on my second post-chemo haircut soon.

    So Pretty

    Wow! O Wow! Your hair is just so pretty! 

    I finally gave in and cut my hair myself yesterday. Not much left and it just kept snarling, but I'm keeping the rest as long as I can because I think it protects my scalp from irritation somewhat.

    Love hearing and seeing how others are progressing post treatment. It keeps me going when things get rough between treatments.

  • MAbound
    MAbound Member Posts: 1,168 Member

    I love the haircut, too,

    I love the haircut, too, Chris.

    (Writing from the infusion center, where I'm having Round #3, end of Phase 1 of the sandwich regime.)

    I'll be thinking about you

    Hope all goes well for you during this! Keep us updated if you're up to it.

  • janaes
    janaes Member Posts: 799 Member
    Im doing what i have to do

    Im doing what i have to do today.  Ive been walking around, doing arrands, been pretty busy. My legs still bother me but today im not letting it stop me from doing what i need to do. Wish me luck for the future.  Thanks every one for caring about me.  I was so excited to here from you all.  Accually been so busy that I havent had time to get on here tell now. Love you all.

  • Soup52
    Soup52 Member Posts: 908 Member
    After my last chemo, it

    After my last chemo, it seemed to take a it longer to recover, but I did. Probably a little cumulative effects. My final chemo was the end of June and my hair is now growing back though more salt than pepper this time. On the downside chin hairs came back with a vengeance, go figure:(. On the upside my eyebrows and eyelashes are really coming back:)

  • Kvdyson
    Kvdyson Member Posts: 790 Member

    I love the haircut, too,

    I love the haircut, too, Chris.

    (Writing from the infusion center, where I'm having Round #3, end of Phase 1 of the sandwich regime.)

    Becca, hope all went well

    Becca, hope all went well with your 3rd infusion. I know that you've told us before but I can't remember if you are geting external or internal radiation next? I had the sandwich regime, too. 28 external pelvic radiation treatments. They were pain free and virtually side-effect free, too. Hopefully yours will go as smoothly as mine. Let us know how you're doing. Kim

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    Soup52 said:

    After my last chemo, it

    After my last chemo, it seemed to take a it longer to recover, but I did. Probably a little cumulative effects. My final chemo was the end of June and my hair is now growing back though more salt than pepper this time. On the downside chin hairs came back with a vengeance, go figure:(. On the upside my eyebrows and eyelashes are really coming back:)

    Hair everywhere!

    Hi Soup, the first time my hair starting to grow back after chemo, I noticed super fine (but noticeable in certain lights) hair growing all over my cheeks, upper lip and chin. The nice ladies on this forum let me know I could shave it without worrying that it would come back in thicker. Thankfully, it's not nearly as bad this second time. Hopefully you don't experience anything like that but if you do, please know that it seems to be normal (and manageable!). Kim

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    janaes said:

    Im doing what i have to do

    Im doing what i have to do today.  Ive been walking around, doing arrands, been pretty busy. My legs still bother me but today im not letting it stop me from doing what i need to do. Wish me luck for the future.  Thanks every one for caring about me.  I was so excited to here from you all.  Accually been so busy that I havent had time to get on here tell now. Love you all.

    Wishing you luck, Janae!

    Wishing you luck, Janae! With your fighting attitude and strength of spirit to get through the tough times, you've shown that you will make it no matter what. So glad to hear that you're staying busy and keeping your eyes on the prize! Kim