HPV vaccination: Slate, July 8, 2016 article.

Pilikia55
Pilikia55 Member Posts: 17 Member
edited July 2016 in Anal Cancer #1

This article imparts some useful information in a national forum. And although I don't usually support Big Pharma

ads, the one in this article is dramatic and important. I'm glad I had my boys vaccinated 10 years ago, as was their

pediatrician. Spread the word

http://www.slate.com/blogs/xx_factor/2016/07/08. 

http://www.slate.com/blogs/xx_factor/2016/07/08/hpv_cancers_are_on_the_rise_why_aren_t_parents_protecting

_their_kids_with.html.

Comments

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #2
    I had it done when I was 43.

    I was sexually active and I asked the doctor if it has anything against it getting it at a late age. He said it may not prevent infection but won't hurt. Usually the give it before age 26. And I certainly had my daughter get it at 13.

    Laz

  • Pilikia55
    Pilikia55 Member Posts: 17 Member
    #3
    lp1964 said:

    I had it done when I was 43.

    I was sexually active and I asked the doctor if it has anything against it getting it at a late age. He said it may not prevent infection but won't hurt. Usually the give it before age 26. And I certainly had my daughter get it at 13.

    Laz

    It's good to hear that, Laz.

    It's good to hear that, Laz. I told many of my friends about vaccinating their kids against HPV when the vaccine was new, but many thought I was alarmist. Hmm, after the treatment we've all experienced? Yep, count me as an alarmist. All my nieces and nephews have been vaccinated, though, and even great-nieces and nephews now. It's my mission to get the word out. I wish there'd been a vaccine for me. Or even the certain knowledge that HPV causes anal cancer. I would have been more vigilant after I was told in the '80s that my abnormal Pap smear was likely undiagnosed papilloma virus, but not to worry, freezing my cervix would do the trick. They were right, I never had another abnormal pap, but my gynecologist and I may not have ignored my early symptoms of cancer 20 years later. Aloha. 

  • mp327
    mp327 Member Posts: 4,440 Member
    #4
    Pilikia55

    Thanks for posting this.  I agree.  If parents knew the hell that we go through with this treatment, their attitudes might change regarding getting their kids vaccinated.  I remember when I was in my 20's having abnormal paps--back then referred to as "Class II."  They were always just repeated in a few months and always came back normal the second time.  Now I truly believe that was a sign of HPV infection.

  • Pilikia55
    Pilikia55 Member Posts: 17 Member
    edited July 2016 #5
    mp327 said:

    Pilikia55

    Thanks for posting this.  I agree.  If parents knew the hell that we go through with this treatment, their attitudes might change regarding getting their kids vaccinated.  I remember when I was in my 20's having abnormal paps--back then referred to as "Class II."  They were always just repeated in a few months and always came back normal the second time.  Now I truly believe that was a sign of HPV infection.

    Martha, that was my

    Martha, that was my experience to a T.  And I suspect many, many other young women's. 

  • gabby_ca
    gabby_ca Member Posts: 38
    #6
    My cancer was NOT due to HPV.

    My cancer was NOT due to HPV.  I had testing done prior to my clinical trial entry and I will NEVER vaccinate my son with the gardisal vaccine for my own reasons.  There are too many things that we do not know yet about the vaccine and I'm not buying into it just yet although I have spent a LOT of time researching it.  Big Pharma is NOT always our friend.  I know this from working in the vaping advocacy space.

     

  • JMC100
    JMC100 Member Posts: 2
    edited July 2016 #7
    Hpv at 42

    I had stage 3 tonsil cancer at 42 caused by the hpv.  If the vaccine prevents one person from going through what I've gone through, it's probably a good thing.

  • nicotianna
    nicotianna Member Posts: 209
    edited July 2016 #8
    gabby_ca said:

    My cancer was NOT due to HPV.

    My cancer was NOT due to HPV.  I had testing done prior to my clinical trial entry and I will NEVER vaccinate my son with the gardisal vaccine for my own reasons.  There are too many things that we do not know yet about the vaccine and I'm not buying into it just yet although I have spent a LOT of time researching it.  Big Pharma is NOT always our friend.  I know this from working in the vaping advocacy space.

     

    HPV vaccine

    Oh how I wish the HPV vaccine was available to me & everyone around the world who is suffering due to the HPV virus!

    Nic 

  • sephie
    sephie Member Posts: 650 Member
    #9
    gabby_ca said:

    My cancer was NOT due to HPV.

    My cancer was NOT due to HPV.  I had testing done prior to my clinical trial entry and I will NEVER vaccinate my son with the gardisal vaccine for my own reasons.  There are too many things that we do not know yet about the vaccine and I'm not buying into it just yet although I have spent a LOT of time researching it.  Big Pharma is NOT always our friend.  I know this from working in the vaping advocacy space.

     

    hey

    if you dont mind telling us,,,,what caused your anal cancer ,, if you have figured it out.....i have never ever tested positive for HPV but i have had anal cancer....md anderson tested me multiple times for lots of hpv strains and all negative..... i do know that HPV can lie dormant and be there and not get picked up by pap smear....would help me figure out why i got it ,,if you have any ideas......thx....sephie

  • nicotianna
    nicotianna Member Posts: 209
    #10
    sephie said:

    hey

    if you dont mind telling us,,,,what caused your anal cancer ,, if you have figured it out.....i have never ever tested positive for HPV but i have had anal cancer....md anderson tested me multiple times for lots of hpv strains and all negative..... i do know that HPV can lie dormant and be there and not get picked up by pap smear....would help me figure out why i got it ,,if you have any ideas......thx....sephie

    hey

    Sephie - My path report stated that neoplastic cells expressed  "p16" among other markers for basaloid squamous cell anal ca.  P16 indicates the presence of HPV.  All my paps were ngative.  No HPV tests were done.

    Nic

  • sephie
    sephie Member Posts: 650 Member
    #11
    gabby_ca said:

    My cancer was NOT due to HPV.

    My cancer was NOT due to HPV.  I had testing done prior to my clinical trial entry and I will NEVER vaccinate my son with the gardisal vaccine for my own reasons.  There are too many things that we do not know yet about the vaccine and I'm not buying into it just yet although I have spent a LOT of time researching it.  Big Pharma is NOT always our friend.  I know this from working in the vaping advocacy space.

     

    gabby

     to Gabby......if you do not mind telling us....what caused your anal cancer..... as stated before,,, i have never tested positive for HPV but it can be there without being picked up by testing..... thanks....sephie

  • sephie
    sephie Member Posts: 650 Member
    #12
    nicotianna said:

    hey

    Sephie - My path report stated that neoplastic cells expressed  "p16" among other markers for basaloid squamous cell anal ca.  P16 indicates the presence of HPV.  All my paps were ngative.  No HPV tests were done.

    Nic

    thanks

    Nic.... thx for response.... i would like one from Gabby if she does not mind.....cause HPV is soooooo dangerous.... i might have it and not know it even tho tested over and over......sephie

  • gabby_ca
    gabby_ca Member Posts: 38
    #13
    Hey again,  sorry I did not

    Hey again,  sorry I did not see this until now.  As part of my cancer treatment, I participated in a phase 2 clinical trial with DNA mutation to attack the SCC that I had.  As part of this protocol, I have DNA testing done with NO HPV so therefore mine was NOT caused by the virus.  On a side note, I was pregnant with my son and the HCG fueled my cancer the team said.  They suspected that I would not have become symptomatic if I had not become pregnant for about 15-20 years or so.  I had numerous ultrasounds etc that would have picked up my lime sized tumour so they said that hormones fed it like gasoline to fire.  I am not saying that the HPV vaccine is bad for everyone else.  I'm only saying that my research leads me to believe that it is not studied or tested enough at this stage to warrant a free for all in vaccinating everyone.

     

  • sephie
    sephie Member Posts: 650 Member
    #14
    thx gabby

    thankyou for your clariifcation.........sorry you have had to go through this....sephie

  • nicotianna
    nicotianna Member Posts: 209
    #15
    HPV vaccine

    I have read from a reliable resource, "Manual of Clinical Oncology", 70% of anal cancers show  HPV DNA.  Therefore, not all anal cancers are caused by the HPV.  However, according to the cdc.gov web site, 17,600 women & 9300 men are affected by cancers caused by HPV.  180,000 women & 160,00 men arre affected by anal warts caused by HPV.  I think that those stats are annual occurences.  I know that the vaccine protects against other cancers, such as, oral, cervical, genital cancers.  I think choosing the vaccine is a wise decision!

    Nic 

  • HapB
    HapB Member Posts: 527
    #16
    HPV

    Hi. I am 5 years past treatment for stage 2 Anal Cancer. I have asked all of the doctors that i have seen whether they can tell what caused this, and whether I have HPV in my body now and they tell me that there is no real way to tell at this time. I have also asked whether I should have the vaccine now....and they told me it is too late. i am 64. I am divorced after finding out that my husband of 20 years had not been faithful to me during the marriage. So, I assume he transmitted HPV to me. 

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