high grade cancer, but does not show well on CT

kimberly sue 63 · July 2016

Hi everyone, I have not been on for a while. I scanned the posts and there are so many new names. I am on my 3rd recurrence. I have found that my cancer even though I am having symptoms and unstable CT it is not appering on my CT scan. I think this has always been the truth because I have had two surgeries and both times my surgeon was surprised on how much disease I had compared to the preoperative scans. Has anyone else had similar issues? Because my disease is not measurable, it makes me unqulified for most clinical trials. Kim

Tethys41 · July 2016

PET scan

Do you have the option of a PET scan?

kimberly sue 63 · July 2016

Yes I had a pet scan and it

Yes I had a pet scan and it showed disease right where pain is. The problem is that clinical trials won't accept pet scan. You have to have measurable disease from CT. Kim

lovesanimals · July 2016

Dear Kim

I haven't had similar issues but am sending lots of good wishes and big hugs your way as you fight this.

Warmly,

Kelly

Tethys41 · July 2016

Measurable Disease

Kim,

Are you a member of Inspire? A friend of mine is in a similar situation. Evidently, quite a few women are. Anyway, she recently started this thread on Inspire. You might find it interesting.

https://www.inspire.com/groups/ovarian-cancer/discussion/exclusion-from-clinical-trials-due-to-non-measurable-disease/reply/7235517/?msg_activity=reply_posted

Good luck

high grade cancer, but does not show well on CT

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