Tamoxifen vs Raloxfene

im not sure how these discussion boards work..im a recent breast cancer patient (bi-lateral mastectomy) dcis hormone positive..im looking for some insight about tamoxifen ive heard of the side affects from the dr but would like to hear from someone who takes it or decided not to take it and why. im pre-menopausal.

 any help would be appreciated.

thank you

I was wondering, what kind of cancer were you diagnosed with? DCIS, IDC, ILC etc and what stage?

I have been on Tamoxifen for over 5 years now.  I am pre-menopausal.  For me the side effects have been minimal.  For the first few months I had pain and stiffness in my joints.  After a few months that subsided and by about 6 months those side effects were nearly gone.  I do get hot flashes from time to time as well.  I have not heard of Raloxfene before but hopefully someone here knows about it and can give you her opinion.  I'm sorry you are going through this but this board is a good place for advice and encouragement.  Take care.

Clementine

Clementine_P said:

Tamoxifen

I have been on Tamoxifen for over 5 years now.  I am pre-menopausal.  For me the side effects have been minimal.  For the first few months I had pain and stiffness in my joints.  After a few months that subsided and by about 6 months those side effects were nearly gone.  I do get hot flashes from time to time as well.  I have not heard of Raloxfene before but hopefully someone here knows about it and can give you her opinion.  I'm sorry you are going through this but this board is a good place for advice and encouragement.  Take care.

Clementine

Hello,

I finished five years of Arimidex and my oncologist suggested I stop because she said there were not, yet, any studies about the efficacy of continuing another five years and since the Arimidex pushed me from osteopenia into osteoporosis. She put me on Raloxifene saying it would help both the osteoporosis and breast cancer issues. I've been on it about a year and have had no side effects. I know, we're all different, so just because something is good or bad for one of us doesn't mean the same for someone else, but I thought I'd pass on a positive experience.

Best of luck to you,

Victoria

2 lumpectomies, radation and 5 yrs tamoxifen..

(post meno)

I did end up with a total hysterectomy due to the Tamoxifen-but i was told ahead of this side effect.

Other then that, NO side effects from the med.

Denise

disneyfan2008 said:

I took tamoxifen with the

I took tamoxifen with the knowledge of chances or thickening of my uterus-which did happen after about 4 yrs (had total hysterectomy) and completed

5 yrs...no other side effects

(maybe weight gain-not sure if my age &  now age 56-cancer 8 yrs ago)

 

Denise

 

Took it for 5+ years.  I was postmenopausal and switched from Arimdex to Tamoxifen because I wanted to see if it would effect my hairloss (it didn't - I'm still bald).  At that time, my oncologist was sort of happy to switch me because I, too, had developed osteoporosis on Arimidex.  That has improved dramatically because she said our bones use it like estrogen.  And that's why some women develop endometrial cancer:   the uterus does, too.  Since I'd already had a hysterectomy for endometrial cancer, that was not a worry for me.  I've had a lot of discussions with my oncologist over the years about hormone therapy, staging, etc. and as of yesterday I'm no longer taking anything.  At this point, my risk is so low of developing a recurrence, it isn't worth it to me to take it for 10 years.  But I was compliant every single day until now, for just over 5 years I swallowed a pill every day.  That little tumor I had was invasive, my oncotype score was high, and it scared me.  I had no side effects on either Tamoxifen or Arimidex (except osteoporosis).  I have no experience with raloxfine. 

(My weight gain is related to how much I eat.  I don't think the drugs have a thing to do with it.  I simply eat too much sometimes and then I have to pay).

Suzanne