Tamoxifen vs Raloxfene

Wabbitt

My doctor is now suggesting raloxfene instead of tamoxifen...neither of which I have started.  I just had my bilateral masectomy on March 25th.  Margins are clean, only slightly invasive on one side..I mean tiny...I am post menopausel.

 

 

 

adjacks

im not sure how these

im not sure how these discussion boards work..im a recent breast cancer patient (bi-lateral mastectomy) dcis hormone positive..im looking for some insight about tamoxifen ive heard of the side affects from the dr but would like to hear from someone who takes it or decided not to take it and why. im pre-menopausal.

 any help would be appreciated.

thank you

Wabbitt

adjacks said:

im not sure how these

im not sure how these discussion boards work..im a recent breast cancer patient (bi-lateral mastectomy) dcis hormone positive..im looking for some insight about tamoxifen ive heard of the side affects from the dr but would like to hear from someone who takes it or decided not to take it and why. im pre-menopausal.

 any help would be appreciated.

thank you

I'm also new to this so not

I'm also new to this so not sure how to connect but I'm after the same answer..who out there has been on this and what side effects did they have...here's hoping we hear something.

cinnamonsmile

I was wondering, what kind of

I was wondering, what kind of cancer were you diagnosed with? DCIS, IDC, ILC etc and what stage?

Wabbitt

cinnamonsmile said:

I was wondering, what kind of

I was wondering, what kind of cancer were you diagnosed with? DCIS, IDC, ILC etc and what stage?

DCIS, low grade and caught

DCIS, low grade and caught early. 

Minimally invasive

 

Clementine_P

Tamoxifen

I have been on Tamoxifen for over 5 years now.  I am pre-menopausal.  For me the side effects have been minimal.  For the first few months I had pain and stiffness in my joints.  After a few months that subsided and by about 6 months those side effects were nearly gone.  I do get hot flashes from time to time as well.  I have not heard of Raloxfene before but hopefully someone here knows about it and can give you her opinion.  I'm sorry you are going through this but this board is a good place for advice and encouragement.  Take care.

Clementine

cinnamonsmile

Wabbitt said:

DCIS, low grade and caught

DCIS, low grade and caught early. 

Minimally invasive

 

There is another great

There is another great website for you called breastcancer.org. They have a forum JUST for people with DCIS and a microinvasion. Here is the link..

https://community.breastcancer.org/forum/111

I think you will find it really helpful. DCIS with a microinvasions is an odd duck. Stage O but yet Stage 1 because of the microinvasion. I hope you check it out.Just like with the site, you will need to join it to post.

aisling8

Clementine_P said:

Tamoxifen

I have been on Tamoxifen for over 5 years now.  I am pre-menopausal.  For me the side effects have been minimal.  For the first few months I had pain and stiffness in my joints.  After a few months that subsided and by about 6 months those side effects were nearly gone.  I do get hot flashes from time to time as well.  I have not heard of Raloxfene before but hopefully someone here knows about it and can give you her opinion.  I'm sorry you are going through this but this board is a good place for advice and encouragement.  Take care.

Clementine

Raloxifene/Evista

Hello,

I finished five years of Arimidex and my oncologist suggested I stop because she said there were not, yet, any studies about the efficacy of continuing another five years and since the Arimidex pushed me from osteopenia into osteoporosis. She put me on Raloxifene saying it would help both the osteoporosis and breast cancer issues. I've been on it about a year and have had no side effects. I know, we're all different, so just because something is good or bad for one of us doesn't mean the same for someone else, but I thought I'd pass on a positive experience.

Best of luck to you,

Victoria

camul

aisling8 said:

Raloxifene/Evista

Hello,

I finished five years of Arimidex and my oncologist suggested I stop because she said there were not, yet, any studies about the efficacy of continuing another five years and since the Arimidex pushed me from osteopenia into osteoporosis. She put me on Raloxifene saying it would help both the osteoporosis and breast cancer issues. I've been on it about a year and have had no side effects. I know, we're all different, so just because something is good or bad for one of us doesn't mean the same for someone else, but I thought I'd pass on a positive experience.

Best of luck to you,

Victoria

I was on tamoxifen and after about 5 months

It became toxic to my system.  So I was on Evista.  That lasted about 3 1/2 months then he stopped all of it because I got blood clots, most likely from the chemo I was on.  I was stage 4, and shortly after stopping I changed oncologists and the new one started me on Aromason.  I am stage iv, he said Evista was not effective on me as my tumor markers were way high, on Aromason they dropped from 500+ to 24.  He said the Evista probably slowed the progression, but it was not strong enough to stop the spread.  

When I started the Evista, Aromason was not yet available so I am glad I was on it.  I had no side effects on the Evista or the Aromason.  

disneyfan2008

2 lumpectomies, radation and

2 lumpectomies, radation and 5 yrs tamoxifen..

 

(post meno)

I did end up with a total hysterectomy due to the Tamoxifen-but i was told ahead of this side effect.

 

Other then that, NO side effects from the med.

 

Denise

disneyfan2008

I took tamoxifen with the

I took tamoxifen with the knowledge of chances or thickening of my uterus-which did happen after about 4 yrs (had total hysterectomy) and completed

5 yrs...no other side effects

(maybe weight gain-not sure if my age &  now age 56-cancer 8 yrs ago)

 

Denise

 

Double Whammy

disneyfan2008 said:

I took tamoxifen with the

I took tamoxifen with the knowledge of chances or thickening of my uterus-which did happen after about 4 yrs (had total hysterectomy) and completed

5 yrs...no other side effects

(maybe weight gain-not sure if my age &  now age 56-cancer 8 yrs ago)

 

Denise

 

Took it for 5+ years.  I was

Took it for 5+ years.  I was postmenopausal and switched from Arimdex to Tamoxifen because I wanted to see if it would effect my hairloss (it didn't - I'm still bald).  At that time, my oncologist was sort of happy to switch me because I, too, had developed osteoporosis on Arimidex.  That has improved dramatically because she said our bones use it like estrogen.  And that's why some women develop endometrial cancer:   the uterus does, too.  Since I'd already had a hysterectomy for endometrial cancer, that was not a worry for me.  I've had a lot of discussions with my oncologist over the years about hormone therapy, staging, etc. and as of yesterday I'm no longer taking anything.  At this point, my risk is so low of developing a recurrence, it isn't worth it to me to take it for 10 years.  But I was compliant every single day until now, for just over 5 years I swallowed a pill every day.  That little tumor I had was invasive, my oncotype score was high, and it scared me.  I had no side effects on either Tamoxifen or Arimidex (except osteoporosis).  I have no experience with raloxfine. 

(My weight gain is related to how much I eat.  I don't think the drugs have a thing to do with it.  I simply eat too much sometimes and then I have to pay).

Suzanne

tokumura77

nausea

My girlfriend is currently undergoing chemo (ACT) for triple negative breast cancer.  The most challenging side effect is nausea.  She guven anti nausea pills and tried home-remedy tips like ginger but it still persists.  Does anybody have other remedies that they found to work???