Starting Sutent again.

sierra28
sierra28 Member Posts: 70
in Kidney Cancer #1

I was suppose to start my treatment with Sutent 3 weeks ago but because I had a blockage in my windpipe it was delayed.  So far I have had 8 radiation treatments on my windpipe and 7 more to go but they are gobng to start my Sutent on Monday because my breathing as gotten a little better. (I think) I am still worried about the shortness of breath but they say that they can adjust my dose if it becomes a problem. Has any one had any problems with rapid heart rate as a side efect from Sutent?

Sierra

Comments

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #2
    Hi Sierra,
    Is it RCC mets to

    Hi Sierra,

    Is it RCC mets to your windpipe or something else?

    I have no experience with Sutent, so cannot help you out in that regard. Hoping this treatment works well for you.

    Hugs

    Jojo

     

  • hardo718
    hardo718 Member Posts: 853 Member
    #3
    Jojo61 said:

    Hi Sierra,
    Is it RCC mets to

    Hi Sierra,

    Is it RCC mets to your windpipe or something else?

    I have no experience with Sutent, so cannot help you out in that regard. Hoping this treatment works well for you.

    Hugs

    Jojo

     

    Praying for you

    Hi Sierra,

    I can't offer any experience with Sutent, but please know that I'm praying for you and your health to be restored.

    Donna~

  • Eliezer2
    Eliezer2 Member Posts: 85
    #4
    worked well for me 4 years

    need to cope with side effects, but tolerable

  • sierra28
    sierra28 Member Posts: 70
    #5
    Jojo61 said:

    Hi Sierra,
    Is it RCC mets to

    Hi Sierra,

    Is it RCC mets to your windpipe or something else?

    I have no experience with Sutent, so cannot help you out in that regard. Hoping this treatment works well for you.

    Hugs

    Jojo

     

    RCC

    Yes, the tumor is from the renal cancer. I have four more treatments left and I started my Sutent on Mon. nite. Did you need ay type of chemo?

    Sierra

  • sierra28
    sierra28 Member Posts: 70
    #6
    hardo718 said:

    Praying for you

    Hi Sierra,

    I can't offer any experience with Sutent, but please know that I'm praying for you and your health to be restored.

    Donna~

    Thanks

    I hope I tolerate the chemo well.nad it works for me.

    Sierra

  • sierra28
    sierra28 Member Posts: 70
    #7
    Eliezer2 said:

    worked well for me 4 years

    need to cope with side effects, but tolerable

    Sutent

    Eliezer,

    That sounds encouraging.  Ihope I am that blessed.  The doctors say that this is the best to go wtih at this time.  My cancer is clear cell renal cc.  No sure wha that means but they say it responds better to treatment.Did you have any severe side effects?

    Sierra

  • foroughsh
    foroughsh Member Posts: 779 Member
    #8
    Sierra
    Ask your question from

    Sierra

    Ask your question from smartpatients.com members. Many informed members can help you. Hoping for best result from sutent

    Forough

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #9
    sierra28 said:

    Sutent

    Eliezer,

    That sounds encouraging.  Ihope I am that blessed.  The doctors say that this is the best to go wtih at this time.  My cancer is clear cell renal cc.  No sure wha that means but they say it responds better to treatment.Did you have any severe side effects?

    Sierra

    Sutent

    Worked for a few months for me.

    All of which confirmed what my Dr said to me, "All you Predict about RCC is its unpredictability."

    Good luck, hope it works for you.

  • Eliezer2
    Eliezer2 Member Posts: 85
    #10
    sierra28 said:

    Sutent

    Eliezer,

    That sounds encouraging.  Ihope I am that blessed.  The doctors say that this is the best to go wtih at this time.  My cancer is clear cell renal cc.  No sure wha that means but they say it responds better to treatment.Did you have any severe side effects?

    Sierra

    side effects

    mine also clear cell - most common - just a cell type

     

    side effects annoying but manageable

    worst for me were gastro problems

    high blood pressure and hypo-thyroid manageable ok with pills

    some taste changes in mouth

    some skin problems but not too bad

    tend to fatigue but nap helps

     

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